Continuity and Change in Mothers’ Narratives of Perinatal Hospice

Lathrop, Anthony; VandeVusse, Leona

doi:10.1097/jpn.0b013e3181fa9c60

Cited by 19 publications

(58 citation statements)

References 25 publications

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“…In these studies representing 143 pregnancies, 37% to 85% of parents affected with a poor prenatal diagnosis continued their pregnancies. Excepting Leuthner and Jones’ study which did not provide data on timing of fetal/neonatal death, and taking into account Lathrop and VandeVusse's research (, ), 37 deaths (41%) out of 91 occurred in the antepartum period. Some neonates lived minutes to hours with the longest surviving child living 256 days.…”

Section: Resultsmentioning

confidence: 93%

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State of the Science on Perinatal Palliative Care

Wool

2013

Journal of Obstetric, Gynecologic & Neonatal Nursing

104

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Section: Resultsmentioning

confidence: 93%

“…A strong theme emerging from the qualitative literature was the desire for women to find meaning. Lathrop and VandeVusse (, ) interviewed 15 women who continued their pregnancies affected by lethal fetal anomalies. Women articulated a desire to attribute meaning to their experiences of pregnancy loss.…”

Section: Resultsmentioning

confidence: 99%

State of the Science on Perinatal Palliative Care

Wool

2013

Journal of Obstetric, Gynecologic & Neonatal Nursing

104

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“…8,9 Kalitatif çalışmalarda, kayıp sonrasında yeterince desteklenmeyen ebeveynlerin, özellikle kadınların gelecekteki tüm gebelikle-rinde prenatal bağlanmada zorluk yaşadıkları, depresif semptomlar sergiledikleri, bebeğin sağlığı konusunda kaygı yaşadıkları, bebeği kaybetme endişesi, kendini geri çekme, bir kaybın gerçekleş-tiğini ve bunun yeniden gerçekleşeceği gibi düşün-celerinin olduğu saptanmıştır. 5,6,10 Klinisyenler, bu durumun özellikle kadının yaşam kalitesini önemli derecede etkilemesi ve gebelik süreci-sonrası desteğin önemli olması nedeni ile profesyonel bir bakım modeli olarak palyatif bakımı perinatal tıbba entegre ederek geliştirmeye devam etmektedirler. 2 PPB'nin amacı yaşam kalitesini artırmak, bakım boyunca yaşanan acıyı en aza indirmek, hasta/aile dileklerine ve tercihlerine saygı duyarak bakımın son ana kadar sürekliliğini sağlamak ve ailelerin bebekleri ile olabileceği kısıtlı süreyi planlamanın önemini vurgulamaktır.…”

Section: Peri̇natal Palyati̇f Bakimunclassified

“…2,11 ANTENATAL DÖNEMDE PERİNATAL PALYATİF BAKIM TANININ KONMASI VE KARAR VERME SÜRECİ PPB'de tedavi kararlarını belirlemede tanının kesinliği, prognozun kesinliği ve prognozun aile için anlamı dikkat edilmesi gereken üç noktadır. 10 Tanı veya prognozun kesin olduğu olgularda aileler bilinçli olarak kararlar verebilir ve yoğun tedavi denemesi olmadan PPB aile için uygun bir seçenek olabilir. Eğer tanı erken gebelik sürecinde yapılırsa, ebeveynlere gebeliği sonlandırma seçeneği sunula-bilir.…”

Section: Peri̇natal Palyati̇f Bakim Modeli̇ni̇n Basamaklariunclassified

A Professional Maintenance Support Model: Perinatal Palliative Care and Nurse's Role: Review

Kadioğlu¹,

Öskay²

2016

Turkiye Klinikleri J Nurs

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“…Study Three. This third study explored the experiences of bereaved women who had continued a pregnancy after diagnosis of a lethal fetal anomaly (Lathrop &VandeVusse, 2011).…”

Section: Study Twomentioning

confidence: 99%

Parents living within the paradoxes of infant death from life-limiting anomaly: A grounded theory study

Welch¹

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BACKGROUND: Life-limiting congenital anomalies are the leading cause of death of infants in the United States. Most of these infants die in intensive care units with limited access to adequate palliative/end-of-life care. There is an extensive knowledge gap about the experience of the parent of infants who died from life-limiting anomaly. PURPOSE: The aims of the study was to explore the process a parent goes through as they experience the birth, life and ultimate death of an infant from a life-limiting explore the process a parent goes through as they experience the birth, life and ultimate death of an infant from a life-limiting congenital anomaly and (b) develop a substantive theory to describe the process parenting an infant with a lifelimiting congenital anomaly from birth to death. METHODS: Classic grounded methodology was used to analyze field notes of open-ended interviews with 11 parents whose infant died from a life-limiting congenital anomaly between the ages of 48 hours and 15 months. FINDINGS: The grounded theory Parents Living within the Paradoxes of Infant Death from Life-Limiting Anomaly describes the experience of parents from pregnancy to life after the infant's death. The theory contains three stages and two cutting points. The first stage of the theory is living in innocence in which the pregnant/expectant parent anticipates or has a healthy baby. This stage ends with the first cutting point of getting the bad news or getting the diagnosis of a life-limiting anomaly. The second stage is being a good mom/dad in the new reality in which the parent experiences being the parent of a baby expected to die from a life-limiting anomaly. The second stage ends with the second cutting point, death of the baby. The final stage of the theory is going on describes how a parent goes on with life after the death of the baby. CONCLUSIONS: Parents living within the paradoxes of infant death from life-limiting anomaly has great implications for nursing in education, practice and research. This new grounded theory has the potential to assist in improving palliative and end-of-life care for infants. I want to thank the chair and members of my committee for their guidance through the dissertation process. Dr. Alvita Nathaniel, chair of the committee, was always generous with her time, support, knowledge and feedback through the numerous drafts, personal meetings and phone calls. Classic grounded theory became alive to me through her mentoring. She is a nursing scholar in the truest sense. Dr. Mary Jane Smith, my first professor in the Ph.D. program, was open and allowed me to pursue a concept of which she was unfamiliar, a concept which ultimately became the theoretical framework for this study. Dr. Peggy Burkhardt was always positive and provided invaluable feedback. Dr. Joy Buck shared her extensive background in palliative care. Dr. Paula F. Taylor, a palliative care physician, provided clinical expertise and the means to recruit enough participants to complete this dissertation. This dissertation would not exis...

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Continuity and Change in Mothers’ Narratives of Perinatal Hospice

Abstract: Mothers' descriptions of their experiences can enhance nurses' understanding of perinatal loss. Established care practices, such as birth planning and creating mementoes, were supported. Nurses can help mothers experiencing loss by elucidating and reflecting their personal meanings.

Cited by 19 publications

References 25 publications

State of the Science on Perinatal Palliative Care

State of the Science on Perinatal Palliative Care

A Professional Maintenance Support Model: Perinatal Palliative Care and Nurse's Role: Review

Parents living within the paradoxes of infant death from life-limiting anomaly: A grounded theory study

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