Contraceptive knowledge and use among women with intellectual, physical, or sensory disabilities: A systematic review

Horner‐Johnson, Willi; Moe, Esther; Stoner, Ryan C.; Klein, Krystal A.; Edelman, Alison; Eden, Karen; Andresen, Elena M.; Caughey, Aaron B.; Guíse, Jeanne Marie

doi:10.1016/j.dhjo.2018.11.006

Cited by 40 publications

(28 citation statements)

References 71 publications

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“…Our study provides insight into factors that may lead to elevated risk of severe maternal morbidity or mortality among women with disabilities. Several important contributors to severe maternal morbidity and mortality, such as diabetes, cardiovascular disease, 7 and poverty, 44 occur more frequently in women with disabilities than in those without disabilities. [16][17][18][19][20] In our study, risks for severe maternal morbidity or mortality were attenuated after controlling for these and other disparities.…”

Section: Jama Network Open | Obstetrics and Gynecologymentioning

confidence: 99%

“…Studies showing that chronic conditions, such as cardiovascular disease and diabetes, are among the leading causes of such morbidity and mortality have led to significant preventive efforts for women with these conditions, including better preconception and perinatal care. 7 However, the association of maternal disability with these outcomes is relatively unknown.…”

Section: Introductionmentioning

confidence: 99%

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Association of Preexisting Disability With Severe Maternal Morbidity or Mortality in Ontario, Canada

et al. 2021

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IMPORTANCE Severe maternal morbidity and mortality are important indicators of maternal health. Pregnancy rates are increasing in women with disabilities, but their risk of severe maternal morbidity and mortality is unknown, despite their significant social and health disparities. OBJECTIVE To determine the risk of severe maternal morbidity or mortality among women with a physical, sensory, or intellectual/developmental disability compared with women without disabilities. DESIGN, SETTING, AND PARTICIPANTS This population-based cohort study used linked health administrative data in Ontario, Canada, from 2003 to 2018. The cohort included all singleton births to women with preexisting physical, sensory, and intellectual/developmental disabilities as well as with 2 disabilities or more compared with women without a disability. Data analysis was conducted from September 2019 to September 2020. EXPOSURES Disabilities were identified with published algorithms applied to diagnoses in 2 physician visits or more or at least 1 emergency department visit or hospitalization. MAIN OUTCOMES AND MEASURES Severe maternal morbidity (a validated composite of 40 diagnostic and procedural indicators) or all-cause maternal mortality, arising between conception and 42 days post partum. Relative risks were adjusted for maternal age, parity, income quintile, rurality, chronic medical conditions, mental illness, and substance use disorders. RESULTS The cohort comprised women with physical disabilities (144 972 women; mean [SD] age, 29.8 [5.6] years), sensory disabilities (45 259 women; mean [SD] age, 29.1 [6.0] years), intellectual/ developmental disabilities (2227 women; mean [SD] age, 26.1 [6.4] years), and 2 or more disabilities (8883 women; mean [SD] age, 29.1 [6.1] years), and those without disabilities (1 601 363 women; mean [SD] age, 29.6 [5.4] years). The rate of severe maternal morbidity or death was 1.7% (27 242 women) in women without a disability. Compared with these women, the risk of severe maternal morbidity or death was higher in women with a physical disability (adjusted relative risk [aRR], 1.29;

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Section: Jama Network Open | Obstetrics and Gynecologymentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Association of Preexisting Disability With Severe Maternal Morbidity or Mortality in Ontario, Canada

et al. 2021

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“…reversible contraceptive methods specifically (eg, intrauterine device) 74 put them at greater risk of unplanned pregnancy.…”

Section: Systematic Reviewsmentioning

confidence: 99%

Maternal disability and risk for pregnancy, delivery, and postpartum complications: a systematic review and meta-analysis

Tarasoff

Ravindran

Malik

et al. 2020

American Journal of Obstetrics and Gynecology

101

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O ne in 10 women of reproductive age has a disability. 1 While disabilities vary in their etiology and impact, they can be classified broadly based on common activity limitations. 2,3 Physical disabilities, such as cerebral palsy and spinal cord injuries, are those associated with limits to mobility, flexibility, and dexterity; sensory disabilities include vision and hearing impairments; and intellectual and developmental disabilities, such as Down syndrome, autism spectrum disorder, and fetal alcohol spectrum disorder, are associated with limitations in cognitive and adaptive functioning. In the past, stigma associated with disability and sexuality and medical factors, including risks of medication use in pregnancy, limited childbearing in women with disabilities. 4,5 However, with greater recognition of the reproductive rights of persons with disabilities 6 and medical advances, more women with disabilities now experience pregnancy. In fact, the 2008e2012 US Medical Expenditure Panel Survey showed that similar proportions of

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“…9 Individuals with all types of disabilities may have to negotiate varying and unique reproductive capacity and sexual intimacy issues, yet they routinely experience inadequate education and opportunities to develop competence. 10,11 Ample research indicates people with disabilities receive substandard sexual education and reproductive health care. [12][13][14][15] Families and/or caregivers of children with disabilities may be reluctant or feel that they are not empowered to acknowledge their child's potential as a sexual individual and may shelter them from the routine presexual social experiences of other children and underestimate their interest in sex and their risk for exploitation.…”

Section: The Sexual Health Needs Of Children and Youth With Disabilitiesmentioning

confidence: 99%

Promoting Healthy Sexuality for Children and Adolescents With Disabilities

2021

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This clinical report updates a 2006 report from the American Academy of Pediatrics titled "Sexuality of Children and Adolescents With Developmental Disabilities." The development of a healthy sexuality best occurs through appropriate education, absence of coercion and violence, and developmental acquisition of skills to navigate feelings, desires, relationships, and social pressures. Pediatric health care providers are important resources for anticipatory guidance and education for all children and youth as they understand their changing bodies, feelings, and behaviors. Yet, youth with disabilities and their families report inadequate education and guidance from pediatricians regarding sexual health development. In the decade since the original clinical report was published, there have been many advancements in the understanding and care of children and youth with disabilities, in part because of an increased prevalence and breadth of autism spectrum disorder as well as an increased longevity of individuals with medically complex and severely disabling conditions. During this same time frame, sexual education in US public schools has diminished, and there is emerging evidence that the attitudes and beliefs of all youth (with and without disability) about sex and sexuality are being formed through media rather than formal education or parent and/or health care provider sources. This report aims to provide the pediatric health care provider with resources and tools for clinical practice to address the sexual development of children and youth with disabilities. The report emphasizes strategies to promote competence in achieving a healthy sexuality regardless of physical, cognitive, or socioemotional limitations.

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Contraceptive knowledge and use among women with intellectual, physical, or sensory disabilities: A systematic review

Cited by 40 publications

References 71 publications

Association of Preexisting Disability With Severe Maternal Morbidity or Mortality in Ontario, Canada

Association of Preexisting Disability With Severe Maternal Morbidity or Mortality in Ontario, Canada

Maternal disability and risk for pregnancy, delivery, and postpartum complications: a systematic review and meta-analysis

Promoting Healthy Sexuality for Children and Adolescents With Disabilities

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