Contrasting parental perspectives with those of teenagers and young adults with cancer: Comparing the findings from two qualitative studies

Parents as Advocates for the Psychosocial Survival of Adolescents and Young Adults with Cancer

“…We do not know if parents continued advocacy and actions caused tension in the relationships between parents in our study and their offspring. Certainly findings from previous studies have suggested that this might be the case (Grinyer, 2009). Grinyer's (2002) work demonstrates that relationships between parents and their adolescent and young adult offspring are in a constant state of renegotiation under normal circumstances and that young people often return to the family home and the care of their parents when they are diagnosed with cancer and debilitated by treatment.…”

“…For example, Flurry et al's (2011) participants were parents of children aged 2-16 years and Shepherd and Woodgate's (2011) were parents of children aged 5-15 years; neither highlighted potential differences in parenting young people across diverse developmental stages. Notable exceptions are Grinyer's (2002Grinyer's ( , 2003Grinyer's ( , 2006Grinyer's ( , 2009 research with parents of young adults over 18 years of age and more recent research by Cassilas et al (2010) with parents of 15 -30 year olds. Williams et al (2013) studied parents of young people diagnosed with cancer in childhood and adolescence and divided their findings into three groups; those applying only to parent of children 14 years and younger, those applying only to parents of young people 15 years and older, and those applying to parents of young people diagnosed in all age groups (Williams et al 2013).…”

“…Following cancer treatment, parents might find it difficult to let go of parenting practices required by the crisis of cancer treatment. While parents can see how difficult it is for the young person to lose his or her newly won independence, they sometimes find it difficult to hand back freedoms when the young person has recovered (Grinyer, 2009). In short, parents develop a new self-identity and social role in response to the demands of parenting an offspring with cancer (Young et al, 2002).…”

A experiência de ser acompanhante de paciente cirúrgico oncológico em unidade de internação terciária

“…O acompanhante se depara com novas situações ao longo do processo de internação do familiar com CCR, porém permanece à margem de todo o contexto, na maioria das vezes, devido à inexistência de uma estratégia de abordagem adequada à sua inserção (PENA, DIOGO, 2005;MACIEL, SOUZA, 2006;BOCHI et al, 2007;GRINYER, 2009;MCCARTHY, 2011).…”

“…Por sua vez, a instituição hospitalar, os profissionais da saúde e da equipe de enfermagem necessitam buscar novas estratégias para que o acompanhante possa se tornar um elo entre os profissionais da saúde, a equipe de enfermagem, a família e o paciente, melhorando a qualidade do relacionamento no contexto terciário e, consequentemente, podendo contribuir na melhoria da assistência à saúde do paciente hospitalizado e sua família (GAUDERER, 1998;PENA, DIOGO, 2005;BECK et al, 2007;BOCHI et al, 2007;SCHUMACHER et al, 2008;GRINYER, 2009;HACIALIOGLU et al, 2010;BRASIL, 2011c).…”