Control interfaces to actively support the arm function of men with Duchenn Muscular Dystrophy

Lobo-Prat, Joan

doi:10.3990/1.9789036541701

Cited by 4 publications

(12 citation statements)

References 244 publications

(503 reference statements)

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“…While the life expectancy of people with DMD has increased [4], due to dependency on caregivers, their self-reported quality of life remains poor [5]. Patient groups have expressed a clear desire for technical solutions, in order to achieve a greater degree of independence by using their own limbs for as long as possible [6,7].…”

Section: Introductionmentioning

confidence: 99%

“…Wearable robotic exoskeletons (WREs) can serve as means to achieve this goal. Such devices can assist in activities of daily living (ADLs) and at the same time enable users to use their own limbs [6], as opposed to external robotic grippers controlled remotely by a joystick and passive splints ( Figure 1b) that are often used in DMD [6,7]. Strapped around limbs (see Figure 1c), WREs support and augment the impaired motor function of users.…”

Section: Introductionmentioning

confidence: 99%

“…Strapped around limbs (see Figure 1c), WREs support and augment the impaired motor function of users. Currently, the main focus in the Netherlands lies on elbow/shoulder [6], trunk/neck [8] and hand/wrist [7] WREs.…”

Section: Introductionmentioning

confidence: 99%

“…In general, such socio-philosophical considerations are largely absent from the engineering discourse [20]. Despite the significant amount of research done in the last 7 years [6][7][8]21] on WREs for people with DMD in the Netherlands, ethical and societal aspects of WREs for DMD are treated as an optional part of WRE research. The main focus of the WRE researchers' work traditionally lies on the engineering developments [6,7] and safety (which is the case also for lower limb WREs [22]).…”

Section: Introductionmentioning

confidence: 99%

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Wearable robotic exoskeletons: A socio-philosophical perspective on Duchenne muscular dystrophy research

Kapeller

Nagenborg

Nizamis

2020

Paladyn, Journal of Behavioral Robotics

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Recently, several research projects in the Netherlands have focused on the development of wearable robotic exoskeletons (WREs) for individuals with Duchenne muscular dystrophy (DMD). Such research on WREs is often treated solely within the disciplines of biomedical and mechanical engineering, overlooking insights from disability studies and philosophy of technology. We argue that mainly two such insights should receive attention: the problematization of the ableism connected to the individual model of disability and the stigmatization by assistive technology. While disability studies have largely rejected the individual model of disability, the engineering sciences seem to still locate disability in an individual’s body, not questioning their own problematization of disability. Additionally, philosophy of technology has argued that technologies are not neutral instruments but shape users’ actions and perceptions. The design of WREs may convey a message about the understanding of disability, which can be comprehended as a challenge and an opportunity: stigmatization needs to be avoided and positive views on disability can be evoked. This article aims to highlight the benefits of considering these socio-philosophical perspectives by examining the case of WREs for people with DMD and proposing design principles for WREs. These principles may enhance acceptability of WREs, not only by individuals with DMD but also by other users, and help engineers to better place their work in the social context.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Wearable robotic exoskeletons: A socio-philosophical perspective on Duchenne muscular dystrophy research

Kapeller

Nagenborg

Nizamis

2020

Paladyn, Journal of Behavioral Robotics

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“…The Active A‐Gear provides motorized assistance and operates under admittance control (referred to by the group as force‐based control ) or electromyography (EMG) control. Researchers evaluating this design have substantiated the use of admittance control for individuals with DMD to increase upper extremity function . Comparative evaluations provided evidence that admittance control was more intuitive, while EMG‐based control was less fatiguing and better suited for individuals with DMD who cannot generate voluntary force greater than the intrinsic stiffness of the arm.…”

Section: Introductionmentioning

confidence: 99%

Evaluation of admittance control as an alternative to passive arm supports to increase upper extremity function for individuals with Duchenne muscular dystrophy

Corrigan

Foulds

2020

Muscle and Nerve

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The degree of upper extremity active range of motion provided by an admittance control robot compared with a commercially available passive arm support for individuals with DMD who have limited arm function was investigated in this study. The reachable workspace evaluation was used to assess active range of motion provided by both devices. A visual analog scale was also used to secure participantreported outcome measures. The admittance control robot significantly increased reachable surface area scores compared with the passive arm support for the dominant arm (Wilcoxon T = 5, P = .022, r 2 = 0.263) and for the nondominant arm (paired-samples t test, t(9) = 4.66, P = .001, r 2 = 0.71). The admittance control robot also significantly decreased participant-reported exertion compared with the passive arm support. Results of this study substantiated the benefits of admittance control for individuals with DMD compared with a commercially available passive arm support. K E Y W O R D S active range of motion, admittance control, Duchenne muscular dystrophy, participantreported outcome measures, upper extremity

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Design requirements of upper extremity supports for daily use in Duchenne muscular dystrophy with severe muscle weakness

Filius,

Harlaar,

Alberts

et al. 2024

Journal of Rehabilitation and Assistive Technologies Engineerin

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Background People with Duchenne muscular dystrophy (DMD) cope with progressive muscular weakness and consequential upper extremity function loss. They benefit from arm supports, or arm exoskeletons, to assist arm function. Especially for severe muscle weakness (DMD ≥ Brooke Scale 4), the design of such arm support is challenging. This study aims to structurally develop functional and technical design requirements of arm supports for people with DMD Brooke Scale 4. Methods An overview of clinical characteristics and a classification of clinically meaningful activities were derived from data from the Dutch Dystrophinopathy Database and available literature. Based on these, functional and technical design requirements of arm supports were developed and matched to the achievable needs of the user. Results First, the clinical characteristics of the target population, such as strength, range of motion, and functional ability, are given. Next, clinically relevant activities of daily living are translated to functional requirements categorised in a ‘must,’ ‘should,’ and ‘could’ category. Last, the technical requirements to realise these functional goals are presented. Conclusions The recommendations following from the functional user needs, technical requirements, and safety considerations can be used to make the development of assistive arm supports for people with DMD Brooke Scale 4 more user-centred.

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Control interfaces to actively support the arm function of men with Duchenn Muscular Dystrophy

Cited by 4 publications

References 244 publications

Wearable robotic exoskeletons: A socio-philosophical perspective on Duchenne muscular dystrophy research

Wearable robotic exoskeletons: A socio-philosophical perspective on Duchenne muscular dystrophy research

Evaluation of admittance control as an alternative to passive arm supports to increase upper extremity function for individuals with Duchenne muscular dystrophy

Design requirements of upper extremity supports for daily use in Duchenne muscular dystrophy with severe muscle weakness

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