Control Matters in Elder Care Technology: Evidence and Direction for Designing It In

Berridge, Clara; Zhou, Yuanjin; Lazar, Amanda; Porwal, Anupreet; Mattek, Nora; Gothard, Sarah; Kaye, Jeffrey

doi:10.1145/3532106.3533471

Cited by 14 publications

(7 citation statements)

References 134 publications

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“…These findings regarding age and gender are consistent with other research on comfort with data collection and sharing generally, which reports those who identify as female are less comfortable than are males with various types of data collection about them, potentially due to greater risks or sense of vulnerability to online abuses or exposures (Li, 2011;Matthews et al, 2017;Messing et al, 2020;Berridge et al, 2022). While this form of deception is a different kind of data flow question than personal data sharing preferences, they may both reflect greater weight placed on maintaining a level of control or greater perceived vulnerability to consequences of lacking control.…”

Section: Discussionsupporting

confidence: 88%

Companion robots to mitigate loneliness among older adults: Perceptions of benefit and possible deception

Berridge

Zhou²,

Robillard³

et al. 2023

Front. Psychol.

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ObjectiveGiven growing interest in companion robots to mitigate loneliness, large-scale studies are needed to understand peoples’ perspectives on the use of robots to combat loneliness and attendant ethical issues. This study examines opinions about artificial companion (AC) robots regarding deception with dementia and impact on loneliness.MethodsData are from a survey of 825 members of the OHSU Research via Internet Technology and Experience cohort (response rate = 45%). Sixty percent (n = 496) of the age diverse sample (range = 25–88; M = 64; SD = 13.17) is over 64, allowing us to compare across age and consider current and future older adults. Ordinal logistic regressions examined relationships between age, health, and other socio-demographic characteristics and perceptions of impact on loneliness and comfort with deception.ResultsMost participants (68.7%) did not think an AC robot would make them feel less lonely and felt somewhat-to-very uncomfortable (69.3%) with the idea of being allowed to believe that an artificial companion is human. In adjusted models, one additional year of age was associated with lower likelihood of perceived benefit of reducing loneliness [Odds Ratio (OR) = 0.98; (0.97–0.99), p = 0.003] and lower comfort with deception [OR = 0.99; (0.97–1.00), p = 0.044]. Being female was associated with lower likelihood of comfort with deception [OR = 0.68; (0.50–0.93), p = 0.014] and high confidence using computers with greater comfort [OR = 2.18; (1.42–3.38), p < 0.001].DiscussionThere was not strong support for AC robots to mitigate loneliness. Most participants were uncomfortable with this form of deception, indicating need for design solutions for those who want to avoid this possibility, as well as greater attentiveness to desirability and comfort across age and gender.

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Section: Discussionsupporting

confidence: 88%

Companion robots to mitigate loneliness among older adults: Perceptions of benefit and possible deception

Berridge

Zhou²,

Robillard³

et al. 2023

Front. Psychol.

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“…Their lack of positioning as experts in their own technological experiences is an acknowledged problem. At the same time, certain reasons that older adults provide through surveys for not adopting technologies like lack of interest or privacy concerns (Baig, 2021) tend to be downplayed (Berridge et al, 2022). Older adults' acts of resistance and rejection, along with reports of intentional nonadoption for reasons other than access or digital literacy barriers, are frequently overlooked in the framing of the problem (see Chu et al, 2022).…”

Section: We Would Incorporate Refusal Into Our Analytical Lensmentioning

confidence: 99%

Algorithmic harms and digital ageism in the use of surveillance technologies in nursing homes

Berridge

Grigorovich²

2022

Front. Sociol.

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“…Five of the most commonly endorsed risk mitigation strategy options were incorporated into a survey for 825 people aged 21-92 years, with a mean age of 64 years (SD 13.13 years). The sample included a significant proportion of people who had memory problems or had been seen by doctors about memory concerns (n=201) [ 56 ]. The survey assessed the importance participants placed on the 5 actionable risk mitigation strategies for the use of these kinds of technologies in elder care [ 56 ].…”

Section: Methodsmentioning

confidence: 99%

“…The sample included a significant proportion of people who had memory problems or had been seen by doctors about memory concerns (n=201) [ 56 ]. The survey assessed the importance participants placed on the 5 actionable risk mitigation strategies for the use of these kinds of technologies in elder care [ 56 ]. Findings from the survey confirmed the very high importance and relevance of these 5 options to an older sample of people, including those with and those without reported memory problems [ 56 ].…”

Section: Methodsmentioning

confidence: 99%

“…The person living with dementia is then prompted to document their use preference for each, as well as the options that use may be contingent on. After the technology modules are completed, participants are guided through a series of general questions regarding the options that may be important to them, derived from the survey research described above [ 56 ]. The web application provides a summary document that summarizes their choices and discussion.…”

Section: Methodsmentioning

confidence: 99%

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Advance Planning for Technology Use in Dementia Care: Development, Design, and Feasibility of a Novel Self-administered Decision-Making Tool

Berridge¹,

Turner²,

Liu³

et al. 2022

JMIR Aging

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Background Monitoring technologies are used to collect a range of information, such as one’s location out of the home or movement within the home, and transmit that information to caregivers to support aging in place. Their surveilling nature, however, poses ethical dilemmas and can be experienced as intrusive to people living with Alzheimer disease (AD) and AD-related dementias. These challenges are compounded when older adults are not engaged in decision-making about how they are monitored. Dissemination of these technologies is outpacing our understanding of how to communicate their functions, risks, and benefits to families and older adults. To date, there are no tools to help families understand the functions of monitoring technologies or guide them in balancing their perceived need for ongoing surveillance and the older adult’s dignity and wishes. Objective We designed, developed, and piloted a communication and education tool in the form of a web application called Let’s Talk Tech to support family decision-making about diverse technologies used in dementia home care. The knowledge base about how to design online interventions for people living with mild dementia is still in development, and dyadic interventions used in dementia care remain rare. We describe the intervention’s motivation and development process, and the feasibility of using this self-administered web application intervention in a pilot sample of people living with mild AD and their family care partners. Methods We surveyed 29 mild AD dementia care dyads living together before and after they completed the web application intervention and interviewed each dyad about their experiences with it. We report postintervention measures of feasibility (recruitment, enrollment, and retention) and acceptability (satisfaction, quality, and usability). Descriptive statistics were calculated for survey items, and thematic analysis was used with interview transcripts to illuminate participants’ experiences and recommendations to improve the intervention. Results The study enrolled 33 people living with AD and their care partners, and 29 (88%) dyads completed the study (all but one were spousal dyads). Participants were asked to complete 4 technology modules, and all completed them. The majority of participants rated the tool as having the right length (>90%), having the right amount of information (>84%), being very clearly worded (>74%), and presenting information in a balanced way (>90%). Most felt the tool was easy to use and helpful, and would likely recommend it to others. Conclusions This study demonstrated that our intervention to educate and facilitate conversation and documentation of preferences is preliminarily feasible and acceptable to mild AD care dyads. Effectively involving older adults in these decisions and informing care partners of their preferences could enable families to avoid conflicts or risks associated with uninformed or disempowered use and to personalize use so both members of the dyad can experience benefits.

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Control Matters in Elder Care Technology: Evidence and Direction for Designing It In

Cited by 14 publications

References 134 publications

Companion robots to mitigate loneliness among older adults: Perceptions of benefit and possible deception

Companion robots to mitigate loneliness among older adults: Perceptions of benefit and possible deception

Algorithmic harms and digital ageism in the use of surveillance technologies in nursing homes

Advance Planning for Technology Use in Dementia Care: Development, Design, and Feasibility of a Novel Self-administered Decision-Making Tool

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