Coping and caring: support for family caregivers of stroke survivors

Chow, Susan Ka Yee; Wong, Frances Kam Yuet; Poon, Christopher Yee‐Fat

doi:10.1111/j.1365-2702.2006.01711.x

Cited by 48 publications

(45 citation statements)

References 30 publications

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“…39 It might be that even without the intervention the dyads found sufficient coping-strategies for supporting each other. 2 Moreover, in comparison with other disease groups, there is a greater burden of caregiving in, eg, dementia and stroke patients 40,41 than we found in our group of CHF partners.…”

Section: Discussioncontrasting

confidence: 46%

Dyads Affected by Chronic Heart Failure: A Randomized Study Evaluating Effects of Education and Psychosocial Support to Patients With Heart Failure and Their Partners

Ågren

Evangelista²,

Hjelm

et al. 2012

Journal of Cardiac Failure

133

189

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Background Chronic heart failure (CHF) causes great suffering for both patients and their partners. The aim of this study was to evaluate the effects of an integrated dyad care program with education and psychosocial support to patients with CHF and their partners during a postdischarge period after acute deterioration of CHF. Methods One hundred fifty-five patient-caregiver dyads were randomized to usual care (n = 71) or a psychoeducation intervention (n = 84) delivered in 3 modules through nurse-led face-to-face counseling, computer-based education, and other written teaching materials to assist dyads to develop problem-solving skills. Follow-up assessments were completed after 3 and 12 months to assess perceived control, perceived health, depressive symptoms, self-care, and caregiver burden. Results Baseline sociodemographic and clinical characteristics of dyads in the experimental and control groups were similar at baseline. Significant differences were observed in patients’ perceived control over the cardiac condition after 3 (P < .05) but not after 12 months, and no effect was seen for the caregivers. No group differences were observed over time in dyads’ health-related quality of life and depressive symptoms, patients’ self-care behaviors, and partners’ experiences of caregiver burden. Conclusions Integrated dyad care focusing on skill-building and problem-solving education and psychosocial support was effective in initially enhancing patients’ levels of perceived control. More frequent professional contact and ongoing skills training may be necessary to have a higher impact on dyad outcomes and warrants further research.

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Section: Discussioncontrasting

confidence: 46%

Dyads Affected by Chronic Heart Failure: A Randomized Study Evaluating Effects of Education and Psychosocial Support to Patients With Heart Failure and Their Partners

Ågren

Evangelista²,

Hjelm

et al. 2012

Journal of Cardiac Failure

133

189

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“…Those who cannot count on social and family support in these circumstances or are not able to take a break and detach themselves, increase the risk of experiencing the often cited caregiver’s strain and burden (Lim & Zebrack 2004, Sit et al. 2004, Chow et al. 2007).…”

Section: Discussionmentioning

confidence: 99%

Becoming a caregiver: new family carers’ experience during the transition from hospital to home

Plank¹,

Mazzoni²,

Cavada³

2012

Journal of Clinical Nursing

142

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“…Five characteristics of people who had had a stroke were found to contribute to their burden: being a female [15], the presence of depression [15,16,17], older age [15, 18], low functional status [15, 16,19,20,21] and deficits in cognitive functions [20, 22, 23]. Seven personal characteristics of the caregivers were found to contribute to their burden: older age [15, 20], being a female [16], being the care recipient’s daughter-in-law [16], not being employed [16], the presence of depression [16, 19, 20], the presence of a disability [19] and a high number of tasks performed [16, 18, 19]. Finally, two support mechanisms related to the caregiver were found to decrease the burden: social network [19] and help with activities of daily living and instrumental activities of daily living [19].…”

Section: Introductionmentioning

confidence: 99%

Burden of Caregivers of People with Stroke: Evolution and Predictors

Vincent¹,

Desrosiers

Landreville

et al. 2009

Cerebrovasc Dis

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Background: Caregiver burden differs according to the amount of care, but no study has really focused on that point. This study compares the evolution of burden of two groups of caregivers of people with a recent stroke who returned home after discharge from two different types of health care facilities. Methods: Burden was assessed at 3 weeks and 3 and 6 months after discharge. The two groups of people with stroke and their caregivers were recruited from acute care (n = 69) and rehabilitation facilities (n = 89). Caregivers completed a questionnaire with three dimensions. In addition to sociodemographic characteristics, we assessed variables pertaining to the clinical, physical and cognitive functioning of the people with stroke. Results: Differences in burden were noted. The best predictors of burden were the caregivers’ characteristics, i.e. gender (female), occupation (retired), schooling (low), age (older) and hours of care given, and the stroke survivors’ characteristics, i.e. depressive symptoms, poor motor function (leg), verbal comprehension deficits, difficulty walking and neurological deficits. Conclusion: These results reinforce the view that services (information, training and support) should be tailored to the needs of caregivers, depending on whether or not the recipient of care has received rehabilitation services.

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Coping and caring: support for family caregivers of stroke survivors

Abstract: The results illustrated that enhanced discharge planning and nurse follow-up sessions are considered essential in maintaining the well-being of the stroke caregivers and bridging the gap between the hospital and the community.

Cited by 48 publications

References 30 publications

Dyads Affected by Chronic Heart Failure: A Randomized Study Evaluating Effects of Education and Psychosocial Support to Patients With Heart Failure and Their Partners

Dyads Affected by Chronic Heart Failure: A Randomized Study Evaluating Effects of Education and Psychosocial Support to Patients With Heart Failure and Their Partners

Becoming a caregiver: new family carers’ experience during the transition from hospital to home

Burden of Caregivers of People with Stroke: Evolution and Predictors

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