Coping of parents with physically and/or intellectually disabled children

Taanila, Anja; Syrjälä, Leena; Kokkonen, Jorma; Järvelin, Marjo‐Riitta

doi:10.1046/j.1365-2214.2002.00244.x

Cited by 123 publications

(178 citation statements)

References 27 publications

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“…Greeff, Vansteenwegen, and DeMot (2006) Communication thus helps families to attain optimal levels of cohesion and flexibility (Patterson, 2002 This finding was also reported by Taanila, Syrjälä, Kokkonen, and Järvelin (2002), who found that open expression facilitated coping by increasing feelings of togetherness and cooperation. Taanila et al (2002) conducted a study to evaluate the coping strategies employed by families of children with intellectual and physical disabilities in northern Finland, and to determine how families coping well differed from those that did not.…”

Section: Making Meaning Of Adversitysupporting

confidence: 60%

“…Taanila et al (2002) found that high-coping families reported that the first diagnosis of their child's disability had been delivered well and that they had also actively sought out further information. These families felt that the knowledge thus gained had facilitated their understanding and acceptance of the situation and enabled them to maintain a positive outlook for the future.…”

Section: First Diagnosis and Information About The Child's Conditionmentioning

confidence: 99%

“…Taanila et al (2002) conducted a study to evaluate the coping strategies employed by families of children with intellectual and physical disabilities in northern Finland, and to determine how families coping well differed from those that did not. Families identified as having a child with intellectual and/or physical disabilities in a previous survey were invited to participate in the study.…”

Section: Making Meaning Of Adversitymentioning

confidence: 99%

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Resilience in families of children with developmental disabilities.

Greeff¹,

Nolting²

2013

Families, Systems, & Health

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DeclarationBy submitting this dissertation electronically, I declare that the entirety of the work contained therein is my own, original work, that I am the owner of the copyright thereof (unless to the extent explicitly otherwise stated) and that I have not previously in its entirety or in part submitted it for obtaining any qualification. First and foremost, I would like to thank the families that agreed to participate in this study.Without their input this study would not have been possible.Thank you also to Mr Davis, the principal of the Dorothea School in Cloetesville, for his help in identifying families meeting the selection criteria and for facilitating my contact with these families.A big thank you to my supervisor, Professor Abraham Greeff, for his ongoing patience, support and encouragement, not to mention all his valuable input regarding the research design, the implementation thereof and ultimately, the writing of this document.Thank you to Professor Martin Kidd for conducting the statistical analyses of the data, and for patiently explaining away any uncertainties.To my siblings and all my friends, thank you for the emotional and practical support provided.And last, but definitely not least, a big thank you to my wonderful parents. Thank you for your continuing and unconditional love and support, and for believing in me even when I didn't. I couldn't have done it without you! iv SUMMARY Family resilience refers to the family's ability to overcome adversity using inherent and/or acquired strengths and resources. The aim of this study was to identify factors contributing to the successful adaptation, or resilience, of families following the birth or diagnosis of a child with a developmental disability. The study is based on the theoretical frameworks of family resilience proposed by and Walsh (2003) Quantitative data was analysed through analyses of variance, Pearson product-moment correlations and a multiple regression analysis. The qualitative data was analysed using thematic content analysis. These analyses revealed that an acceptance of the situation, positive patterns of family communication, commitment and support within the family unit, and a positive attitude with regard to new experiences and challenges facilitate family adaptation and resilience, while negative patterns of communication within the family were found to be inversely related to family adaptation. An inverse association was also found between age of the child with a disability and family adaptation. These findings suggest some possible avenues of intervention by which the adaptation of families with a child with a developmental disability in South Africa can be facilitated or supported. v OPSOMMING Gesinsveerkragtigheid verwys na die gesin se vermoë om terugslae en teenspoed te oorkom deur die gebruik van bestaande en aangeleerde sterktes en hulpbronne. Die doel van die huidige studie was om kwaliteite te identifiseer wat tot die aanpassing, en dus veerkragtigheid, van gesinne met 'n kind met 'n ontwikkelingsgestremdheid bydra...

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Section: Making Meaning Of Adversitysupporting

confidence: 60%

Section: First Diagnosis and Information About The Child's Conditionmentioning

confidence: 99%

Section: Making Meaning Of Adversitymentioning

confidence: 99%

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Resilience in families of children with developmental disabilities.

Greeff¹,

Nolting²

2013

Families, Systems, & Health

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“…Parental emotional reactions to the DCA are expected to be related to their early post-diagnosis emotional adjustment (i.e., psychopathological symptoms), as Taanila, Syrjälä, Kokkonen, and Järvelin (2002) showed that the first moments and days after being informed of their child's disability were critical in determining the family's adaptation process. Several studies described a process of gradual adjustment to the diagnosis (Lalor et al, 2009), although some parents may face difficulties.…”

Section: Introductionmentioning

confidence: 99%

Patterns of parental emotional reactions after a pre- or postnatal diagnosis of a congenital anomaly

Fonseca

Nazaré

Canavarro

2011

Journal of Reproductive and Infant Psychology

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“…1 In addition to both mortality and morbidity burden of congenital malformations, they have a major impact on the affected families as well as the community as a whole. 2,3 With more focus on the affected communities, it was revealed that the majority of these malformations (up to 94%) occur in middle and low income countries which reflect more closely the seriousness and the major impact of this problem on the affected families and countries. 1,4 The causation of congenital malformation was categorized into four broad categories namely genetic causes, multifactorial, environmental factors and finally the unknown group which constitutes up to 40 to 60 % of all malformations.…”

mentioning

confidence: 99%

Knowledge, attitudes and beliefs of women in the reproductive age towards prenatal screening for congenital malformations, Alexandria-Egypt

Youssef

El-Weshahi

Ashry

2017

Int J Reprod Contracept Obstet Gynecol

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Background: The study was conducted to explore the Egyptian women’s attitudes toward the prenatal screening (PNS) for congenital malformations and termination of pregnancy if medically indicated and assessing their knowledge and beliefs regarding prenatal screening.Methods: A total of 351 Egyptian women in the reproductive age giving birth to at least one child completed a structured questionnaire to assess their knowledge of prenatal diagnosis and their willingness to undergo prenatal screening as well as their opinions on termination of pregnancy if medically indicated. Women's beliefs were also assessed.Results: More than half of studied women (52.71%) are lacking knowledge about the availability of the accurate tests for prenatal screening of congenital malformations. After giving information about PNS, more than three quarters (77.5%) of the studied women held positive attitudes toward the prenatal screening for congenital malformations. The other one quarter was either refusing or not sure about their opinion (4.6% and 17.9% respectively). Only 58.7% accepting termination of pregnancy if medically indicated. Positive attitude towards PNS was significantly higher among females with older age (P=0.019) as well as those of higher social class as indicated by higher level of education (p=0.026), urban residency (p=0.046) and working women (p=0.005). Perceived seriousness of congenital malformations and believing in the importance of early detection of such condition were the significant motives to undergo PNS.Conclusions: There is marked lack of knowledge about the prenatal screening tests among the studied women. After giving information about PNS, most of them shows a positive attitude towards carrying out these tests and about half of them reported their acceptance for termination of pregnancy if medically indicated based on prenatal diagnosis of sever congenital malformations. Emphasis national needs for health education programs about PNS importance and development of well-structured national program for PNS.

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Coping of parents with physically and/or intellectually disabled children

Cited by 123 publications

References 27 publications

Resilience in families of children with developmental disabilities.

Resilience in families of children with developmental disabilities.

Patterns of parental emotional reactions after a pre- or postnatal diagnosis of a congenital anomaly

Knowledge, attitudes and beliefs of women in the reproductive age towards prenatal screening for congenital malformations, Alexandria-Egypt

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