Coping Skills of Iranian Family Caregivers’ in Caretaking of Patients Undergoing Haemodialysis: A Qualitative Study

Rabiei, Leili; Abedi, Heidarali; Shirani, Majid; Masoudi, Reza

doi:10.1111/jorc.12166

Cited by 14 publications

(27 citation statements)

References 23 publications

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“…Besides that, they need further mental support to tolerate the heavy burden of disease-related difficulties, irrespective of what problem their patients are suffering from. [ 11 13 ]…”

Section: Discussionmentioning

confidence: 99%

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Dedication in caring of hemodialysis patients: Perspectives and experiences of Iranian family caregivers

Rabiei

Shirani

Masoudi

2018

Indian J Palliat Care

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Background:Although dialysis treatment is considered as a life-saving treatment for chronic renal failure patients, the caregivers face challenges in caretaking of these patients.Objectives:This study is aimed to explain the perspectives and experiences among caregivers of the patients undergoing hemodialysis in Iran.Methods:A qualitative design, based on a thematic analysis approach, was used to reach the study aim. In this study, 25 hemodialysis family caregivers were selected by purposeful sampling. The data were gathered through in-depth and unstructured interview and field observation and analyzed by the inductive thematic approach.Results:The three main themes were generated from the analysis of the data indicating that the caregivers face challenges such as heavy burden of care, tension in care, and emotional exhaustion.Conclusion:Caretaking of the hemodialysis patients is constantly accompanied with challenges and concerns regarding the effective care for patients. Health-care providers need to address these concerns based on both patient- and caregiver-focused approaches, rather than only patient focused, to the design and planning for helping the patients and their caregivers.

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“…Besides that, they need further mental support to tolerate the heavy burden of disease-related difficulties, irrespective of what problem their patients are suffering from. [ 11 13 ]…”

Section: Discussionmentioning

confidence: 99%

“…A thematic analysis approach was used to figure out the patterns within the texts. [ 11 ] Initially, the interviews were transcribed word for word and reviewed repeatedly and meticulously to ensure the data immersion. The first author gathered the data through face-to-face interviews, which were the main tools of data gathering.…”

Section: Ethodsmentioning

confidence: 99%

Dedication in caring of hemodialysis patients: Perspectives and experiences of Iranian family caregivers

Rabiei

Shirani

Masoudi

2018

Indian J Palliat Care

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“…The prevalence of chronic kidney disease (CKD) is increasing in both developed and developing countries. Worldwide, over 1.5 million individuals receive regular haemodialysis, a number which is projected to double in the next decade [ 3 ]. In the United Kingdom (UK) in 2019 there were 7845 adults who commenced renal replacement therapy, a number which is comparable to the previous year.…”

Section: Introductionmentioning

confidence: 99%

Knowledge Requirements and Unmet Needs of Informal Caregivers of Patients with End-Stage Kidney Disease (ESKD) Receiving Haemodialysis: A Narrative Review

et al. 2021

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Background: Patients with end-stage kidney disease receiving haemodialysis rely heavily on informal caregivers to support them living at home. Informal caregiving may exact a toll on caregivers’ physical, emotional, and social well-being, impacting negatively on their overall quality of life. The aim of this narrative review is to report knowledge requirements and needs of informal caregivers of patients with end stage kidney disease (ESKD) receiving haemodialysis. Methods: The review followed the Preferred Reporting Items for Reporting Systematic Reviews and Meta-analyses (PRISMA). Five electronic databases were searched: Web of Science, PsycINFO, Embase, Medline, and CINAHL to identify the experiences and unmet needs of informal caregivers of patients with end stage kidney disease (ESKD) receiving haemodialysis. Results: Eighteen papers were included in the review and incorporated a range of methodological approaches. There are several gaps in the current literature around knowledge and informational needs and skills required by informal caregivers, such as signs and symptoms of potential complications, dietary requirements, and medication management. Although most research studies in this review illustrate the difficulties and challenges faced by informal caregivers, there is a paucity of information as to which support mechanisms would benefit caregivers. Conclusion: Informal caregivers provide invaluable assistance in supporting people with ESKD undergoing haemodialysis. These informal caregivers however experience multiple unmet needs which has a detrimental effect on their health and negatively influences the extent to which they can adequately care for patients. The development of supportive interventions is essential to ensure that informal caregivers have the requisite knowledge and skills to allow them to carry out their vital role.

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“…Considering the results of studies on self-management, a general self-management program in chronic diseases can be considered in several dimensions (Table 1) (18,19,22).…”

Section: Introductionmentioning

confidence: 99%

The effect of implementing self-management plan on selfconcept of family caregivers of multiple sclerosis patients

Banitalebi

Etemadifar

Kheiri

et al. 2020

J Shahrekord Univ Med Sci

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Background and aims: Caring for patients with multiple sclerosis causes family caregivers many problems and challenges. Self-management interventions can facilitate the caring process and increase the quality of patient care. Therefore, the aim of this study was to investigate the effect of a self-management program on Self-concept of the family caregivers of multiple sclerosis patients. Methods: This quasi-experimental study was conducted in 2018 at the MS Treatment Center of Shahrekord. The samples were selected through convenience sampling method. First, participants were assigned to two groups of men and women by stratified random sampling, and then men and women were assigned randomly to intervention (n=35) and control (n=35) groups. For the intervention group, the selfmanagement program was implemented twice a week in 8 sessions. Data collection was performed using the Coopersmith self-concept Inventory in two groups before, immediately after, and three months after the intervention. Data were analyzed by SPSS version 16.0. Results: The mean scores of self-concept in the intervention and control groups before the intervention were 72.6±9.1 and 72±10.6, respectively. There was no significant difference between the mean score of self-concept between the intervention and control groups before the intervention (P>0.05). The mean scores of self-concept immediately after the intervention in the two groups were 86.4±9.2 and 73±10.6, and three months after the intervention, they were 103±7.4 and 73.9±10.5, respectively. A significant increase in the scores of self-concept in the intervention group (P<0.001) was observed. Moreover, the independent t test showed a significant difference in the two groups immediately after and three months after the intervention (P<0.001). Conclusion: Self-management program increased the self-concept of multiple sclerosis (MS) patients’ caregivers. Therefore, selfmanagement can play a critical role in improving the quality of life of family caregivers and coping with the physical and psychological stress related to their caring role.

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Coping Skills of Iranian Family Caregivers’ in Caretaking of Patients Undergoing Haemodialysis: A Qualitative Study

Cited by 14 publications

References 23 publications

Dedication in caring of hemodialysis patients: Perspectives and experiences of Iranian family caregivers

Dedication in caring of hemodialysis patients: Perspectives and experiences of Iranian family caregivers

Knowledge Requirements and Unmet Needs of Informal Caregivers of Patients with End-Stage Kidney Disease (ESKD) Receiving Haemodialysis: A Narrative Review

The effect of implementing self-management plan on selfconcept of family caregivers of multiple sclerosis patients

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