Coping, social support, and family quality of life for caregivers of individuals with autism: Meta-analytic structural equation modeling

Wang, Ruodan; Liu, Qing; Zhang, Wenjuan

doi:10.1016/j.paid.2021.111351

Cited by 21 publications

(7 citation statements)

References 79 publications

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“…Greater loneliness is associated with lower IQ in aging TD adults [ 110 ], possibly due to reduced cognitive stimulation available through social interaction, and this pattern, though largely unexplored, may hold in individuals with IDDs. At the level of the family unit, stronger social support is associated with lower parental stress and greater family adaptability in families of individuals with IDDs [ 118 , 119 ], as well as greater family hardiness and quality of life in families of autistic youth [ 120 , 121 ]. Associations between family support and positive quality of life outcomes may be due to greater availability of other family members and friends to assist with childcare in addition to the well-established social-emotional benefits (i.e., reduced stress) of having supportive relationships.…”

Section: Social-environmental Areas For Future Considerationmentioning

confidence: 99%

The impact of social-environmental factors on IQ in syndromic intellectual developmental disabilities

McKinney,

Williford,

Abbeduto

et al. 2024

J. Clin. Trans. Sci.

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Despite having the same underlying genetic etiology, individuals with the same syndromic form of intellectual developmental disability (IDD) show a large degree of interindividual differences in cognition and IQ. Research indicates that up to 80% of the variation in IQ scores among individuals with syndromic IDDs is attributable to nongenetic effects, including socialenvironmental factors. In this narrative review, we summarize evidence of the influence that factors related to economic stability (focused on due to its prevalence in existing literature) have on IQ in individuals with syndromic IDDs. We also highlight the pathways through which economic stability is hypothesized to impact cognitive development and drive individual differences in IQ among individuals with syndromic IDDs. We also identify broader socialenvironmental factors (e.g., social determinants of health) that warrant consideration in future research, but that have not yet been explored in syndromic IDDs. We conclude by making recommendations to address the urgent need for further research into other salient factors associated with heterogeneity in IQ. These recommendations ultimately may shape individualand community-level interventions and may inform systems-level public policy efforts to promote the cognitive development of and improve the lived experiences of individuals with syndromic IDDs.

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Section: Social-environmental Areas For Future Considerationmentioning

confidence: 99%

The impact of social-environmental factors on IQ in syndromic intellectual developmental disabilities

McKinney,

Williford,

Abbeduto

et al. 2024

J. Clin. Trans. Sci.

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“…It is well‐established that perceived social support predicts positive outcomes among parents of children with ASD (e.g., George‐Levi & Laslo‐Roth, 2021; Wang et al, 2022). It also serves as a major protective resource against loneliness (Lu et al, 2021).…”

Section: Introductionmentioning

confidence: 99%

Vulnerability to loneliness among fathers of children with autism spectrum disorder: The role of interpersonal and familial resources

2023

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Fathers of children with autism spectrum disorder (ASD) might be at increased risk of becoming lonely. In the current study, we explored the differences in loneliness between fathers of children with and without ASD and identified interpersonal and familial resources (social support, family cohesion, and family adaptability) that might be related to levels of loneliness. Using a cross‐sectional design, 348 fathers (of 114 children with ASD and 234 without) completed a series of questionnaires. Fathers of children with ASD reported higher levels of loneliness and lower levels of social support and family cohesion. A moderated mediation model indicated that the interaction between social support and family cohesion mediated the association between ASD group (i.e., ASD vs. non‐ASD) and fathers' loneliness. Findings suggest the importance of interpersonal and familial resources (e.g., perceived social support and family cohesion) for family members at risk of loneliness.

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“…A recent meta-analysis found social support to be associated with reduced caregiver burden [ 12 ]. Moreover, social support, whether perceived or actual, has many health benefits for caregivers, such as positive correlations with psychological resilience [ 7 , 15 ], mediating effects of internalized stigma and caregiving burden [ 16 ], and coping and family quality of life for caregivers of individuals with autism [ 17 ]. Given its health-protective role, one can see why translating social support for the purposes of interventions for family caregivers has been the focus of research [ 17 ].…”

Section: Introductionmentioning

confidence: 99%

“…Moreover, social support, whether perceived or actual, has many health benefits for caregivers, such as positive correlations with psychological resilience [ 7 , 15 ], mediating effects of internalized stigma and caregiving burden [ 16 ], and coping and family quality of life for caregivers of individuals with autism [ 17 ]. Given its health-protective role, one can see why translating social support for the purposes of interventions for family caregivers has been the focus of research [ 17 ]. In fact, caregiving can be considered an ongoing stressful life event, and social support in the form of support groups can have a particular role, function, and meaning for family caregivers.…”

Section: Introductionmentioning

confidence: 99%

Online Support Groups for Family Caregivers: Scoping Review

Daynes-Kearney,

Gallagher

2023

J Med Internet Res

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Background Caregiving can affect people of all ages and can have significant negative health impacts on family caregivers themselves. Research has shown that social support acts as a buffer against many negative health impacts. A common source of social support is support groups. Although traditionally, these groups were conducted in a face-to-face setting, the advent of the internet, social media applications, and the smartphone have seen online support groups (OSGs) develop as a space where many caregivers seek support. The number of OSGs has increased exponentially, but there is no clear consensus on what factors or characteristics of OSGs contribute to social support development within them or what types of OSGs are available to family caregivers. Objective This study aimed to conduct a scoping review to contribute to the understanding of the types and characteristics of OSGs for family caregivers. Methods Following the Preferred Reporting Items for Systematic Reviews and Meta-Analyses Extension for Scoping Reviews guidelines, the CINAHL, PsychInfo, Psych Articles, Social Sciences, Communication Source, Medline, and Web of Science databases were searched for studies (caregiver focused, adults aged 18 years or older, online social support groups, caring for a living person, peer-reviewed journal publications on empirical research). In total, 19 studies were included in the review. The research questions were (1) what type of social support groups are online for adult family caregivers, (2) what the communication mediums and characteristics of these OSGs are, and (3) what psychosocial or other factors make OSGs successful or unsuccessful for participants. Results In response to the first research question, we found that the majority of OSGs took place on public text-based forums and were illness specific. Where demographics were reported, participants were predominately women, White, and working with university-level education. There were a variety of caregiving relationships. For the second research question, the most common communication medium found was text-based communication, with the use of emojis, photos, and GIF (Graphics Interchange Format) files as part of these exchanges. Most frequently, the OSGs were asynchronous with a degree of anonymity, not time-limited by the frequency of contact or duration, and moderated by peer or professional moderators or facilitators. Results for the third research question explored the overarching categories of safe communication and engagement and group management. These described successful OSGs as having a focus on similar others with shared lived experiences communicated in a nonjudgmental space overseen by trained peer or professional facilitators. Conclusions There are several key considerations for OSGs to be successful for family caregivers. A general recommendation for practitioners is to give importance to building active moderation and multifaceted structures of support to meet different levels of caregiver needs and the ability to engage.

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Coping, social support, and family quality of life for caregivers of individuals with autism: Meta-analytic structural equation modeling

Cited by 21 publications

References 79 publications

The impact of social-environmental factors on IQ in syndromic intellectual developmental disabilities

The impact of social-environmental factors on IQ in syndromic intellectual developmental disabilities

Vulnerability to loneliness among fathers of children with autism spectrum disorder: The role of interpersonal and familial resources

Online Support Groups for Family Caregivers: Scoping Review

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