Coping strategies among patients with malignant lymphoma– a qualitative study from the perspectives of Swedish patients

Glasdam, Stinne; Bjerström, Charlotta; Carvalho, Cecilia Engberg de

doi:10.1016/j.ejon.2019.101693

Cited by 8 publications

(24 citation statements)

References 48 publications

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“…Manageability manifests itself in the conviction of the individual about their ability to cope with difficult situations, an active and effective way to influence one's own life situation and draw conclusions from past experience [5]. Therefore, the concept of SOC could be helpful for oncological patients to understand how to deal with the situation [6]. SOC gains particular relevance in oncological diseases if the diagnosis is advanced and associated with a limited life expectancy.…”

Section: Introductionmentioning

confidence: 99%

Consideration of sense of coherence in a structured communication approach with stage IV lung cancer patients and their informal caregivers: a qualitative interview study

Krug

Bossert

Stooß

et al. 2020

Support Care Cancer

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Objective Salutogenetic aspects are valuable for consideration in patient-centred care of advanced oncological diseases with a limited life expectancy. The Milestone Communication Approach (MCA), involving physician-nurse tandems, addresses specific challenges and needs over the disease trajectory of patients with stage IV lung cancer and their informal caregivers. This study aims to explore patients' and informal caregivers' salutogenetic experiences with the MCA concept. Methods This qualitative study used face-to-face semi-structured interviews with patients and informal caregivers. All generated data were audio-recorded, pseudonymised and transcribed verbatim. Data were structured using Qualitative Content Analysis. The material was coded deductively into themes related to the components of sense of coherence (Aaron Antonovsky) and emerging sub-themes. All data was managed and organised in MAXQDA. Results In 25 interviews, sense of coherence was referred to with all three components: "Comprehensibility" was supported by information conveyed suitably for the patients; "meaningfulness" was addressed as accepting the situation; and "manageability" led to advance care planning the patients were comfortable with. Patients and informal caregivers experienced the interprofessional tandem as an added value for patient care. Conclusions Participants appreciate the MCA in its support for coping with a life-limiting disease. Considering salutogenetic aspects facilitates prognostic awareness and advance care planning. Nevertheless, individual needs of patients and informal caregivers require an individualised application of the MCA.

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Section: Introductionmentioning

confidence: 99%

Consideration of sense of coherence in a structured communication approach with stage IV lung cancer patients and their informal caregivers: a qualitative interview study

Krug

Bossert

Stooß

et al. 2020

Support Care Cancer

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“…"Well, I attended rehabilitation and learned how to train my pelvis … I think that helps me keep my bowels back for longer… (19) Another man described how he dealt with his increased flatus:…”

Section: Adapting To a New Life Situationmentioning

confidence: 99%

Coping strategies and considerations regarding low anterior resection syndrome and quality of life among patients with rectal cancer; a qualitative interview study

et al. 2022

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IntroductionLow anterior resection syndrome (LARS) is defined as disordered bowel function following rectal resection, which is detrimental to quality of life (QoL). A recent international consensus definition of LARS stresses the importance of focusing on both the symptoms and the consequences that the symptoms have for the individual patient as studies indicate that LARS has a negative impact on patients’ QoL. However, an ongoing PROM study investigating late sequelae after rectal cancer finds that a minor proportion of patients scoring major LARS experience none or only little impact on quality of lifeAimThe aim of this study was to identify patients’ considerations and coping strategies to establish why the burden caused by major LARS had little or no influence on their QoL.Materials and methodsThis was a qualitative interview study based on 21 semi-structured individual telephone interviews with patients treated for rectal cancer. Data were analysed using a hermeneutic inspired thematic analysis.Results and conclusionThree themes emerged from the analysis; Adapting new life situation, Altering life perception and the Importance of relationships. Major LARS and its consequences following rectal cancer may be managed or altered by adopting problem-focused and emotion-focused coping strategies. Maintaining a positive attitude and having a good network of family and friends constitute a surplus, allowing patients to cope with the need for changed behaviour and appreciate the life that they have been given. Accepting that major LARS and its consequences cause limitations in life allowed patients to change their normality threshold over time.

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“…(Saukkonen et al, 2017. ) It is important to take into consideration the complexity and variety of patients' coping behaviours in enabling them to manage their cancer-related challenges (Glasdam et al, 2020). To proceed with their lives while coping with their disease, cancer patients need various kinds of support (Hallman and Newton, 2019;Saukkonen et al, 2017;van Roij et al, 2019;Viitala et al, 2018).…”

Section: Introductionmentioning

confidence: 99%

“…(Magalhães et al, 2020;Mendonça et al, 2020. ) Support and guidance should be given while remembering that during the different phases of illness and life, patients' goals may vary (Glasdam et al, 2020;Kjørven Haug, 2016). The importance of support provided in ways other ways than face-to-face contact has been highlighted by the physical and social distancing during the COVID-19 pandemic (Torres-Vigil et al, 2021).…”

Section: Introductionmentioning

confidence: 99%

Online follow-up with a mobile device improves incurable cancer patients’ coping – A qualitative study

Viitala

Åstedt‐Kurki

Lehto

et al. 2021

European Journal of Oncology Nursing

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Coping strategies among patients with malignant lymphoma– a qualitative study from the perspectives of Swedish patients

Cited by 8 publications

References 48 publications

Consideration of sense of coherence in a structured communication approach with stage IV lung cancer patients and their informal caregivers: a qualitative interview study

Consideration of sense of coherence in a structured communication approach with stage IV lung cancer patients and their informal caregivers: a qualitative interview study

Coping strategies and considerations regarding low anterior resection syndrome and quality of life among patients with rectal cancer; a qualitative interview study

Online follow-up with a mobile device improves incurable cancer patients’ coping – A qualitative study

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