Coping Strategies in Liver Patients as a Function of Relatives' Anxiety Level

Domínguez-Cabello, E.; Martín-Rodríguez, Agustín; Pérez-San-Gregorio, María Ángeles; Fernández-Jiménez, E.; Sousa-Martı́n, J.M.; Bernardos-Rodríguez, A.

doi:10.1016/j.transproceed.2012.09.106

Cited by 11 publications

(10 citation statements)

References 11 publications

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“…Consistent with previous study, [ 24 ] our investigation also indicated that caregivers who suffered from severe care burden, dubious, and clinical levels of anxiety and depression had poor life quality. While there were also reported that caring transplant patients may bring benefits to caregivers, for instance caregivers may feel useful and needed, or they could discovery their inner strength from daliy caring, and at the same time developing a new life perspective.…”

Section: Discussionsupporting

confidence: 92%

“…[ 12 ] Professionals could offer caregivers timely support to help them overcome obstacles, such as encouraging them to participate in transplantation groups, to use more positive coping skills, even giving them access to these resources during the patients’ regularly scheduled clinic visits. [ 24 ] These are effective ways in reducing psychological distress.…”

Section: Discussionmentioning

confidence: 99%

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Quality of life and care burden in primary caregivers of liver transplantation recipients in China

Wei¹,

Cao

et al. 2018

Medicine

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So far, liver transplantation (LT) has become the most effective way to treat end-stage liver-related diseases. As we all know, a stable caregiver is crucial to LT recovery. However, compared with LT patients, few studies were focused on LT caregivers.This study aimed to describe the quality of life (QoL), care burden, and their related factors in caregivers of LT patients in Shanghai, China.We collected 225 liver transplanted patients and their corresponding caregivers’ social demographic and medical information; meanwhile, we assessed 225 LT recipients’ caregivers’ life quality; by using Caregiver Quality of Life Index-Liver Transplantation in Chinese version (CQOLC-LT), Zarit caregiver burden inventory in Chinese version (ZBI) was used to access the care burden. Self-Rating Anxiety Scale (SAS) and Center for Epidemiological Survey-Depression Scale (CES-D) were used to assess caregivers’ anxiety and depression status. For physical assessment, we used Fatigue Scale-14 (FS-14). Logistic regression analysis was performed to identify clinical factors influencing QOL of LT primary caregivers.The QoL of LT caregiver was not optimistic; the care burden on caregiver was still heavy. In particular, most caregivers experienced mild to moderate mental health disorders.In general, our findings emphasized the importance of assessment of physical and mental health in primary caregivers during overall process.

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Section: Discussionsupporting

confidence: 92%

Section: Discussionmentioning

confidence: 99%

Quality of life and care burden in primary caregivers of liver transplantation recipients in China

Wei¹,

Cao

et al. 2018

Medicine

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“…It is the patients, rather than their family members, who tend to criticize and blame themselves for what happened. This result could be explained by patients considering themselves responsible for the distress their family members feel due to their illness, and feeling like a burden on the whole family (Domínguez-Cabello et al, 2012a). It should be stressed that the main illnesses triggering liver transplant are alcohol addiction and illegal use of drugs, reason for which, for example, the caregiver of a patient who is a candidate for a liver transplant compared to those of a lung transplant, experience a heavier burden (Meltzer and Rodrigue, 2001), in addition to suffering in each of the stages associated with transplantation, especially in those before it (pre-transplant study and waiting list) (Domínguez-Cabello et al, 2012b).…”

Section: Discussionmentioning

confidence: 99%

Coping Strategies in Liver Transplant Recipients and Caregivers According to Patient Posttraumatic Growth

et al. 2017

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The purpose of this study was to analyze the differences in coping strategies employed by liver transplant recipients and their family members according to patient posttraumatic growth. Two matched groups of 214 liver transplant recipients and 214 family members were selected. The Posttraumatic Growth Inventory and Brief COPE were used. The most relevant results were: (1) Interactive effects in active coping, support (instrumental and emotional) and acceptance strategies, which were all used more by patients with higher growth levels, while their family members showed no differences in use of these strategies by patient growth level. Furthermore, while a low level of patient growth did not mark differences between them and their caregivers, a high level did, patients employing more active coping and support (instrumental and emotional), (2) In both groups a high level of patient growth was associated with more use of positive reframing and denial than a low one, and (3) Self-blame was employed by patients more than by their caregivers. It was concluded that a high level of posttraumatic growth in liver transplant recipients is associated with more use of healthy coping strategies, basically active coping, instrumental support, and emotional support.

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“…20,21,25 Perceived Caregiver Burden: 31-item questionnaire was used in 77% of the studies. 15,16,22,25,27 Overall, only 7.6% of the studies included a comprehensive assessment that included mental, emotional, physical, financial, and psychological. 1,2,4,16,[18][19][20][21][22]25,27,[49][50][51][52] The study included a 20-patient caregiver dyad and used a total of seven assessment tools in order to be inclusive.…”

Section: Caregiver Assessment Toolsmentioning

confidence: 99%

“…Financial burden was considered in 38% of the studies and psychological in 77% of the studies, which included anxiety, depression, sleep heath, and feeling of entrapment. 2,16,[19][20][21][22][25][26][27]49 QOL was assessed in 53.8% of the studies. Caregiver burden assessed with the Zarit Burden tool with a score of 15 (± 0.8) posed the poorest outcomes for patients with CLD.…”

Section: Caregiver Assessment Toolsmentioning

confidence: 99%

Approaches to Assessing Burden in Caregivers of Patients with Cirrhosis

Yanny

Pham

Saleh

et al. 2020

Journal of Clinical and Translational Hepatology

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Background and Aims: Being a caregiver for a patient with chronic liver disease (CLD) can be burdensome mentally, emotionally financially, and physically. The aim of this study was to systemically review the available tools and propose tools that can comprehensively evaluate caregiver burden for individuals caring for patients with CLD. Methods: We searched the PubMed database for all studies on the impact of patients with CLD on caregiver burden without timeframe restriction. Eligible studies included cohort studies, review studies, or cross-sectional studies. The number of patients and caregivers was isolated from each paper. Studies in the same categories were isolated and statistically compared. Results: A total of 13 studies meeting our inclusion criteria as stated in the methods sections were included. In total, 2528 caregivers were taking care of 2003 patients with CLD. Women made up the majority of caregivers at 78.2%, 95.7% of whom identified as the patient's spouse. Caregiver strain index is one of the most comprehensive tools; however, the questions are very general and do not fully elucidate financial strain. Beck depression and anxiety were correlated (p=0.0001), and both depression and anxiety were correlated with perceived caregiver burden (PCB) and Zarit Burden Interview (ZBI) (p=0.002). Depression scale correlated with Interpersonal Support Evaluation-Short Form, and Model for End-Stage Liver Disease score correlated with ZBI and PCB (total and in most domains; p=0.001). Patient's poorer cognitive performance correlated with higher ZBI and PCB (employed patients had higher cognitive performance and lower ZBI and PCB). Conclusions: Caregiver burden remains poorly understood due to the lack of uniformity in the assessment tools used to evaluate caregiver burden. None of the tools used to evaluate caregiver burden are comprehensive; however, most tools correlate statistically in the ability to identify caregiver burden. A comprehensive tool is lacking for identifying caregiver burden in patients with CLD.

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Coping Strategies in Liver Patients as a Function of Relatives' Anxiety Level

Cited by 11 publications

References 11 publications

Quality of life and care burden in primary caregivers of liver transplantation recipients in China

Quality of life and care burden in primary caregivers of liver transplantation recipients in China

Coping Strategies in Liver Transplant Recipients and Caregivers According to Patient Posttraumatic Growth

Approaches to Assessing Burden in Caregivers of Patients with Cirrhosis

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