Coping Strategies Utilized by Middle-Aged and Older Latino Caregivers of Loved Ones with Alzheimer’s Disease and Related Dementia

Balbim, Guilherme Moraes; Marques, Isabela G.; Cortez, Claudia; Magallanes, Melissa; Rocha, Judith S.; Márquez, David X.

doi:10.1007/s10823-019-09390-8

Cited by 24 publications

(9 citation statements)

References 62 publications

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“…The region of convivir points to a more complex understanding of kinship than past research on familismo, focused on caregivers, allows (Balbim et al, 2019(Balbim et al, , 2020Flores et al, 2009). It provides an innovative angle to build theory and test hypotheses related to the positive aging of Latinos.…”

Section: Discussionmentioning

confidence: 99%

Convivir (to Coexist) and Other Insights: Results From the Positive Aging for Latinos Study

et al. 2022

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Many Latinos in the United States do not have access to culturally sensitive services to help them age well. We combined community-based participatory research with concept mapping methods to understand how a sample of community-dwelling Latino older adults view positive aging. Nine focus groups ( N = 101) generated 85 non-repeating statements, which were used to produce a final map with 11 clusters, organized into four overarching regions: Convivir (To Coexist), Self-Sufficiency, Perspectives on Life, and Healthy Behaviors. Further analyses revealed three themes: (1) the importance of varied social connections, as conveyed by the region labeled Convivir; (2) a multifaceted understanding of “stability” that includes finances, relationships, and spirituality; and (3) the need for a mature mindset reflected in the thematic cluster Tomalo Suave (Take It Easy). Findings can inform the development of interventions for Latino older adults and the cultural adaptation of programs initially designed for non-Latinos.

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Section: Discussionmentioning

confidence: 99%

Convivir (to Coexist) and Other Insights: Results From the Positive Aging for Latinos Study

et al. 2022

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“…This finding is not surprising, given that familism is a core Latino cultural value that prioritizes the collectivist needs of the family over the needs of oneself, while in mainstream American or US culture, the focus is more individualistic. 35 Familism can profoundly affect health care behaviors and use of health care services, particularly in the setting of palliative and end-of-life care. [36][37][38] For example, end-of-life care decisions are often made through family consensus, and often, several family members attend clinic and treatment visits.…”

Section: Discussionmentioning

confidence: 99%

Human Connection: Oncologist Characteristics and Behaviors Associated With Therapeutic Bonding With Latino Patients With Advanced Cancer

Tergas,

Prigerson,

Penedo

et al. 2024

JCO Oncol Pract

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PURPOSE Therapeutic alliances (TAs) between oncologists and patients are bonds characterized by mutual caring, trust, and respect. We here relate oncologist characteristics and behaviors to TA among Latino and non-Latino patients with advanced cancer. METHODS Participants included non-Latino oncologists (n = 41) and their Latino (n = 67) and non-Latino White (n = 90) patients with advanced cancer who participated in Coping with Cancer III, a multisite, US-based prospective cohort study of Latino/non-Latino disparities in end-of-life cancer care, conducted 2015-2019. Oncologist characteristics included age, sex, race, institution type, Spanish language proficiency, familismo practice style (emphasis on family) and clinical etiquette behaviors. Patient-reported TA was assessed using the average score of six items from The Human Connection scale. Hierarchical linear modeling (HLM) estimated effects of oncologist characteristics on TA. RESULTS Of 157 patients, a majority were female (n = 92, 58.6%) and age younger than 65 years (n = 95, 60.5%). Most oncologists were male (n = 24, 58.5%), non-Latino White (n = 25, 61%), and age 40 years and older (n = 25, 61%). An adjusted HLM in the full sample showed that Latino patient ethnicity was associated with significantly lower TA (β = −.25; P < .001). In an adjusted stratified HLM for TA, among Latino patients, oncologist familismo practice style (β = .19; P = .012), preference using first names (β = .25; P = .023), and greater Spanish fluency (β = .11; P < .001) were positively associated with TA. In contrast, familismo practice style had no impact on TA for non-Latino White patients. CONCLUSION Latino patients with advanced cancer had worse TAs with their oncologists versus non-Latino patients. Modifiable oncologist behaviors may be targeted in an intervention designed to improve the patient-physician relationship between oncologists and their Latino patients with advanced cancer.

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“…Tailoring of intervention to the faith traditions of this population, particularly the role of faith sharing, scripture and prayer, has been largely ignored (Epps et al, 2019). Note that integration of such spiritual elements into the fabric of CBI may not only augment the desirability and impact of treatment for distressed African Americans CGs, it has the potential of yielding similar results for CGs with strong faith traditions from other races and ethnicities, such as Hispanic-Latinos, Arab Americans, and Asian Americans (Balbim et al, 2019; Meyer et al, 2020; Sayegh et al, 2013). Finally, if the ACTS2 faith-integrated intervention proves successful, it may serve as a paradigm for organizations providing behavioral services to distressed African American CGs of persons with dementia to follow.…”

Section: Discussionmentioning

confidence: 99%

African American Alzheimer’s Caregiver Training and Support Project 2 (ACTS2) pilot study: Outcomes analysis.

Glueckauf¹,

Kazmer²,

Nowakowski³

et al. 2022

Rehabilitation Psychology

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Purpose/Objective: The purpose of this study was to conduct an initial evaluation of the quantitative and qualitative outcomes of the African American Alzheimer's Caregiver Training and Support Project 2 (ACTS2). Quantitative objectives focused on assessing changes in caregiver depression and health status, as well as the severity of caregiving and self-care problems from pre-to postintervention. Secondary quantitative analyses examined posttreatment changes in social support and caregiver burden. Qualitative objectives included examining caregivers' perceptions of the effectiveness of in-session training activities, quality of relationships among group participants and their facilitator, and appraisals of spiritual elements of the program. Research Method/Design: Nine African American family caregivers of older adults with dementia completed the ACTS2 lay pastoral care facilitator-led, telephone cognitive-behavioral intervention. The 12-week training program included seven skills-building groups and five individual problem-solving sessions. Results: Significant improvements were found on the majority of dependent measures, including caregiver depression, health status, problem severity, and social support. Qualitative analysis highlighted the value caregivers placed on relationships with coparticipants and group facilitators, the role of spirituality in the program, and the importance of goal setting for improving caregiver distress and self-care. Conclusions/Implications: Convergence was found between quantitative and qualitative findings, particularly improvements in caregiver distress, health status, and social support. Overall, the findings of the pilot study were promising. Replication using a randomized controlled design with a larger sample size is needed to test the reliability of the findings. The benefits of tailoring intervention to caregivers' sociocultural preferences and spiritual values are also addressed. Impact and ImplicationsAlthough the number of studies on the effects of telehealth-based, cognitive-behavioral intervention for distressed African American caregivers of older adults with dementia has increased over the past few years, most investigations have not tailored treatment to the cultural preferences and faith traditions of this at-risk population. The present study represents the initial stage of Robert L. Glueckauf https://orcid.

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Coping Strategies Utilized by Middle-Aged and Older Latino Caregivers of Loved Ones with Alzheimer’s Disease and Related Dementia

Cited by 24 publications

References 62 publications

Convivir (to Coexist) and Other Insights: Results From the Positive Aging for Latinos Study

Convivir (to Coexist) and Other Insights: Results From the Positive Aging for Latinos Study

Human Connection: Oncologist Characteristics and Behaviors Associated With Therapeutic Bonding With Latino Patients With Advanced Cancer

African American Alzheimer’s Caregiver Training and Support Project 2 (ACTS2) pilot study: Outcomes analysis.

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