Coping with Pediatric Leukemia: A Two-Year Follow-Up

Kupst, Mary Jo; Schulman, Jerome L.; Maurer, Helen S.; Honig, George R.; Morgan, Elaine; Fochtman, Dianne

doi:10.1093/jpepsy/9.2.149

Cited by 57 publications

(22 citation statements)

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“…More mothers suffered career setbacks than fathers did. Lack of additional stresses has repeatedly been found to be associated with better adjustment by Kupst et al [38,39].…”

Section: Life Events and Concurrent Stressorsmentioning

confidence: 90%

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Adjustment and coping by parents of children with cancer: a review of the literature

Grootenhuis

1997

Support Care Cancer

196

167

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Studies published since about 1980 on psychological adjustment and coping of parents of children with cancer were reviewed. First, results concerning parental adjustment in terms of psychological distress, marital distress, and family functioning were summarized. Secondly, the use of coping strategies such as social support, communication, and search for meaning were described. Thirdly, factors that influence parental adjustment to childhood cancer, such as coping strategies and illness-related and demographic variables were discussed. All studies are summarized in a review table, with information about the number of participating parents and children, the purpose, measures and major results. Difficulties in generalizing findings are possibly due to the heterogeneous group of children with cancer, the differences in reporting emotional problems by mothers and fathers, the difficulties in assessing illness-specific problems, and the diversity in the ways of assessing coping and adjustment.

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“…More mothers suffered career setbacks than fathers did. Lack of additional stresses has repeatedly been found to be associated with better adjustment by Kupst et al [38,39].…”

Section: Life Events and Concurrent Stressorsmentioning

confidence: 90%

“…In several studies parents report that support from family and friends was very helpful to them [36,39]. Morrow et al [56] report that next to the spouse, the medical community and other parents in the mutual help group were the most helpful sources of support as perceived by the parents.…”

Section: Social Supportmentioning

confidence: 99%

Adjustment and coping by parents of children with cancer: a review of the literature

Grootenhuis

1997

Support Care Cancer

196

167

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“…In contrast, health status classification in the OPCS was based on postal surveys and interviews (with parents answering on the behalf of their disabled children) while the CGSS was based on self-report data collected via telephone interviews. The evidence on the validity of proxy respondents for collecting data on health status is mixed (Cartwright, 1957;Clarridge & Massagli, 1989;Herjanic & Reich, 1982;Kupst et al, 1984;Kupst & Schulman, 1988;Lansky et al, 1987;Magaziner et al, 1988;O'Malley et al, 1979;Rotham et al, 1991 Table V probably understates the differences between the two groups and the relatively higher burden of morbidity for the ALL survivors. Given that the ALL survivors appear to experience higher burdens in the emotion and cognition attributes and that the biases inherent in these methods would tend to understate rather than overstate that difference, the results may be interpreted as indicative of a truly higher burden of morbidity.…”

Section: Discussionmentioning

confidence: 99%

The comprehensive assessment of health status in survivors of childhood cancer: application to high-risk acute lymphoblastic leukaemia

Feeny

Leiper²,

Barr³

et al. 1993

Br J Cancer

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Summary The health status of 69 survivors of high-risk acute lymphoblastic leukaemia (ALL) is assessed using a multi-attribute classification system. Seven attributes are included: sensation, mobility, emotion, cognition, self-care, pain and fertility. Three to five levels of functioning are defined for each attribute. Comprehensive health states are described as a specific combination of seven attribute levels. The system captures combinations of sequelae. The system provides a compact but comprehensive tool for long term follow up of survivors of childhood cancer. The results underscore the cognitive and emotional burdens of morbidity affecting survivors of high-risk ALL.

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“…In the late 1970s and early 1980s, there was a shift in focus from issues related to the child's death to issues related to improving the child's quality of life during treatment. With landmark studies such as Koocher and O'Malley (1981) comprehensive investigation on the psychosocial effects of cancer on the child and family, and the research of Kupst et al (1984) on adjustment in families, the focus on issues other than death or pure physical outcomes was realized.…”

mentioning

confidence: 99%

Subjective Well-Being in Pediatric Oncology Patients

Hexdall

2007

Applied Research Quality Life

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Using negative and positive measures of subjective well-being (SWB), we compared reports of 29 youth with cancer to a matched control sample of 29 youth. Youth with cancer did not differ from healthy controls on self-report measures of life satisfaction, hope, positive affect, or negative affect. Scores on measures of hope were positively correlated with time since diagnosis; none of the other SWB variables was significantly related to time since diagnosis. Except for negative affect, moderate correlations were found between parents' reports of their own SWB and their youths' self-reported SWB. Parents' estimates of their youths' SWB were also moderately associated with youth self-reports, except for negative affect. Parents of youth with cancer and their youth may use different criteria for reporting the nature and frequency of negative affect, but use similar criteria for reporting positive affect and other positive measures (hope, life satisfaction). Implications for more comprehensive assessments of the well-being of pediatric oncology patients are discussed. Subjective Well-Being in Pediatric Oncology PatientsAdvances in medicine have transformed the diagnosis of childhood cancer from meaning almost certain mortality to a chronic illness with a strong possibility of survival. Over the years, pediatric psychologists have sought to improve the quality of life for individuals diagnosed with cancer, have developed interventions to aid in coping, management of pain or other physical and psychological side effects, and

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Coping with Pediatric Leukemia: A Two-Year Follow-Up

Cited by 57 publications

References 0 publications

Adjustment and coping by parents of children with cancer: a review of the literature

Adjustment and coping by parents of children with cancer: a review of the literature

The comprehensive assessment of health status in survivors of childhood cancer: application to high-risk acute lymphoblastic leukaemia

Subjective Well-Being in Pediatric Oncology Patients

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