Correlates of adherence in a home-based, self-managed exercise program tailored to wheelchair users with spinal cord injury

Wilroy, Jereme; Lai, Byron; Davlyatov, Ganisher; Mehta, Tapan; Thirumalai, Mohanraj; Rimmer, James H.

doi:10.1038/s41393-020-0497-4

Cited by 18 publications

(43 citation statements)

References 24 publications

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“…Only studies on synchronous tele-exercise with SCI on an individual basis were found. 16 , 40 For collective tele-exercise, a study with Tai Chi exercises was found with older adults 41 and another using adapted dance in individuals with Parkinson's disease. 42 Thus, the present study provides an alternative, using tele-exercise muscle strength training in groups for individuals with different levels of SCI.…”

Section: Discussionmentioning

confidence: 99%

Synchronous and asynchronous tele-exercise during the coronavirus disease 2019 pandemic: Comparisons of implementation and training load in individuals with spinal cord injury

et al. 2021

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Introduction Tele-exercise could represent an alternative for remote care in individuals with spinal cord injury at this time of the pandemic of coronavirus disease 2019. However, the differences regarding the training loads and implementation between synchronous and asynchronous types are not yet known. The purpose of this study was to compare the implementation and training load between synchronous and asynchronous tele-exercise programs in individuals with spinal cord injury. Methods Forty individuals with spinal cord injury were recruited and stratified into tetraplegia and paraplegia groups. All subjects performed 3 weeks of both the synchronous and asynchronous tele-exercise programs, after two weeks of familiarization with the exercises, remote connection tools and methods to record information. The primary outcomes were training load (average daily workload and average and total weekly training load) and implementation (adherence and successful exercise recording). Demographic characteristics were obtained from participants' electronic medical records. Results Weekly mean workload, total workload, adherence and successful exercise recording presented significantly higher values in the synchronous compared to asynchronous tele-exercises. Average daily workload did not present significant differences between the tele-exercises. Discussion The training load for each training session presented no differences between synchronous and asynchronous tele-exercises. Both adherence and successful data recording showed more favourable implementation values for synchronous training, thus allowing greater weekly training loads (total and average).

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Section: Discussionmentioning

confidence: 99%

Synchronous and asynchronous tele-exercise during the coronavirus disease 2019 pandemic: Comparisons of implementation and training load in individuals with spinal cord injury

et al. 2021

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“…The 24 included publications comprised 20 (83%) studies [ 36 , 37 , 40 , 42 - 57 , 59 ], 3 (12%) reports [ 38 , 39 , 58 ], and 1 (4%) protocol paper [ 41 ] (Table S1 Multimedia Appendix 3 ). The included publications primarily aimed to describe and develop mHealth tools (10/24, 42%) [ 38 , 39 , 43 , 45 , 46 , 48 , 54 , 56 - 58 ], evaluate implementation factors (9/24, 38%) [ 37 , 40 , 45 , 46 , 49 , 50 , 54 , 55 , 57 ], evaluate usability and user experience (7/24, 29%) [ 45 - 48 , 52 - 54 ] and effectiveness (6/24, 25%) [ 36 , 41 , 42 , 44 , 51 , 54 ], and describe stakeholder perspectives (1/24, 4%). The included publications were published between 2015 and 2022, and most (18/24, 75%) were published from 2018 onward [ 41 - 57 , 59 ].…”

Section: Resultsmentioning

confidence: 99%

“…The included publications were published between 2015 and 2022, and most (18/24, 75%) were published from 2018 onward [ 41 - 57 , 59 ]. The research teams were mainly based in North America (15/24, 62%) [ 38 , 40 - 42 , 44 - 47 , 50 , 52 , 53 , 55 , 56 , 58 , 59 ], followed by Europe (6/24, 25%) [ 36 , 37 , 48 , 49 , 54 , 57 ], Asia (2/24, 8%) [ 43 , 51 ], and Europe and Asia (1/24, 4%) [ 39 ].…”

Section: Resultsmentioning

confidence: 99%

Mobile Health Self-management Support for Spinal Cord Injury: Systematic Literature Review

Bernard¹,

Seijas²,

Davis³

et al. 2023

JMIR Mhealth Uhealth

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Background Self-management plays a critical role in maintaining and improving the health of persons with spinal cord injury (SCI). Despite their potential, existing mobile health (mHealth) self-management support (SMS) tools for SCI have not been comprehensively described in terms of their characteristics and approaches. It is important to have an overview of these tools to know how best to select, further develop, and improve them. Objective The objective of this systematic literature review was to identify mHealth SMS tools for SCI and summarize their characteristics and approaches to offering SMS. Methods A systematic review of the literature published between January 2010 and March 2022 was conducted across 8 bibliographic databases. The data synthesis was guided by the self-management task taxonomy by Corbin and Strauss, the self-management skill taxonomy by Lorig and Holman, and the Practical Reviews in Self-Management Support taxonomy. The PRISMA (Preferred Reporting Items for Systematic Reviews and Meta-Analyses) standards guided the reporting. Results A total of 24 publications reporting on 19 mHealth SMS tools for SCI were included. These tools were introduced from 2015 onward and used various mHealth technologies and multimedia formats to provide SMS using 9 methods identified by the Practical Reviews in Self-Management Support taxonomy (eg, social support and lifestyle advice and support). The identified tools focused on common SCI self-management areas (eg, bowel, bladder, and pain management) and overlooked areas such as sexual dysfunction problems and environmental problems, including barriers in the built environment. Most tools (12/19, 63%) unexpectedly supported a single self-management task instead of all 3 tasks (ie, medical, role, and emotional management), and emotional management tasks had very little support. All self-management skills (eg, problem-solving, decision-making, and action planning) had coverage, but a single tool addressed resource use. The identified mHealth SMS tools were similar in terms of number, introduction period, geographical distribution, and technical sophistication compared with SMS tools for other chronic conditions. Conclusions This systematic literature review provides one of the first descriptions of mHealth SMS tools for SCI in terms of their characteristics and approaches to offering SMS. This study’s findings highlight a need for increased coverage of key SMS for SCI components; adopting comparable usability, user experience, and accessibility evaluation methods; and related research to provide more detailed reporting. Future research should consider other data sources such as app stores and technology-centric bibliographic databases to complement this compilation by identifying other possibly overlooked mHealth SMS tools. A consideration of this study’s findings is expected to support the selection, development, and improvement of mHealth SMS tools for SCI.

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“…With virtual interventions, there is likely a desire for immersive, engaging, and social experiences to support ongoing needs of patients; but we were unable to find any literature at this time. Early evidence for efficacy of various teleSCI modalities is promising, but the benefits of engagement are clear: increased adherence and lower attrition [ 81 ], which, ultimately, support better clinical outcomes when using effective treatments. Additionally, we anticipate growth in the use of wearables and other ways to gather patient-generated data, given the benefits of having directly accessible feedback for patients and additional data points for providers doing remote care.…”

Section: Discussionmentioning

confidence: 99%

Current Approaches in Telehealth and Telerehabilitation for Spinal Cord Injury (TeleSCI)

Touchett

Apodaca

Siddiqui

et al. 2022

Curr Phys Med Rehabil Rep

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Purpose of Review Telehealth and telerehabilitation in spinal cord injury (teleSCI) is a growing field that can improve access to care and improve health outcomes in the spinal cord injury population. This review provides an overview of the recent literature on the topic of teleSCI and provides insights on current evidence, future directions, and considerations when using teleSCI for clinical care. Recent Findings TeleSCI is used most often for preventive health; management of chronic pain, anxiety, and depression; and rehabilitation-related interventions. As video telehealth becomes mainstream, growth in wearable monitors, bio and neurofeedback mechanisms, and app-based care is expected. Summary TeleSCI is growing in prevalence, demonstrates positive impact on health outcomes, and requires ongoing study to identify, refine, and implement best practices.

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Correlates of adherence in a home-based, self-managed exercise program tailored to wheelchair users with spinal cord injury

Cited by 18 publications

References 24 publications

Synchronous and asynchronous tele-exercise during the coronavirus disease 2019 pandemic: Comparisons of implementation and training load in individuals with spinal cord injury

Synchronous and asynchronous tele-exercise during the coronavirus disease 2019 pandemic: Comparisons of implementation and training load in individuals with spinal cord injury

Mobile Health Self-management Support for Spinal Cord Injury: Systematic Literature Review

Current Approaches in Telehealth and Telerehabilitation for Spinal Cord Injury (TeleSCI)

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