Correlates of Consumer Participation in Health Planning Agencies: Findings and Implications From a National Survey

Checkoway, Barry; O'Rourke, Thomas W.; Bull, David

doi:10.1111/j.1541-1338.1984.tb00121.x

Cited by 11 publications

(13 citation statements)

References 19 publications

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“…Our results reinforce findings from a succession of public participation studies that have documented failed attempts at incorporating public and patient involvement in health planning, even when there appears to be a general policy mandate to do so 5–7,16–20,20–23,45,46 . However, they point to different underlying reasons for the failure than have been exposed in previous studies.…”

Section: Discussionsupporting

confidence: 82%

From rhetoric to reality: including patient voices in supportive cancer care planning

Gold

Abelson

Charles

2005

Health Expectations

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Objective To explore the extent and manner of patient participation in the planning of regional supportive care networks throughout the province of Ontario. We consider the disconnect between the rhetoric and reality of patient involvement in network planning and co-ordination. ContextIn 1997, the Province of Ontario, Canada, established a new, regionalized cancer care system. By transferring responsibility to the regional level and to networks, the architects of the new provincial system hoped to broaden participation in decision making and to enhance the responsiveness of decisions to communities.Research approach Through a qualitative, multiple case study approach we evaluated the processes of involving patients in network development. In-depth, semi-structured interviews and document analysis were complemented by observations of provincial meetings, regional council and network meetings.Results The network development processes in the three case study regions reveal a significant gap between intentions to involve patients in health planning and their actual involvement. This gap can be explained by: (i) a lack of clear direction regarding networks and patient participation in these networks; (ii) the dominance of regional cancer centres in network planning activities; and, (iii) the emergence of competing provincial priorities.Discussion These three trends expose the complexity of the notion of public participation and how it is embedded in social and political contexts. The failed attempt at involving patients in health planning efforts is the result of benign neglect of public participation intents and the social and political contexts in which public and patient participation is meant to occur.

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Section: Discussionsupporting

confidence: 82%

From rhetoric to reality: including patient voices in supportive cancer care planning

Gold

Abelson

Charles

2005

Health Expectations

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“…A survey of the leaders of public involvement initiatives of Health Systems Agencies in the United States in 1980 asked respondents to judge the effects of involving patients. 41 42 Of the 154 (76%) who replied, 75% (116) said that involving patients had improved the quality of health services and 46% (71) that it had led to improvements in people's health. Of 63 patient participation groups in primary care settings surveyed in Britain in the mid-1980s, 32 (52%) were able to provide details of at least one change that groups had initiated 31…”

Section: Resultsmentioning

confidence: 99%

Systematic review of involving patients in the planning and development of health care

Crawford

Rutter

Manley³

et al. 2002

BMJ

798

690

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Objective To examine the effects of involving patients in the planning and development of health care. Data sources Published and grey literature. Study selection Systematic search for worldwide reports written in English between January 1966 and October 2000. Data extraction Qualitative review of papers describing the effects of involving patients in the planning and development of health care. Results Of 42 papers identified, 31 (74%) were case studies. Papers often described changes to services that were attributed to involving patients, including attempts to make services more accessible and producing information leaflets for patients. Changes in the attitudes of organisations to involving patients and positive responses from patients who took part in initiatives were also reported. Conclusions Evidence supports the notion that involving patients has contributed to changes in the provision of services across a range of different settings. An evidence base for the effects on use of services, quality of care, satisfaction, or health of patients does not exist.

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“…Some critics have stressed broader institutional and political limitations; for instance, embed-. ded class bias with local government, a lack of goal consensus, and unwillingness among elected officials and bureaucrats to share their power [Rosener, 1978;Checkoway, et al, 1984;Greene, 1982;Abney and Lauth, 1985;Ethridge, 1980;MacNair, et al, 19831. Other critics have emphasized the design inadequacies of participation techniques, such as sociocultural barriers that make public hearings inaccessible to large segments of the community, domination of citizen participation forums by unrepresentative interest groups, and too much reliance on superficial opinion surveys [Milbraith, 1965;Gittell, 1980;Almond and Verba, 1963;Verba, 1961;Arnstein, 1969;Rosener, 1978;Yin and Yates, 1975;Berry, 19811. Table 1 summarizes these limitations.…”

Section: Limitations To Effective Citizen Participationmentioning

confidence: 99%

Enhancing Citizen Participation: Panel Designs, Perspectives, and Policy Formation

Kathlene¹,

Martin²

1991

Journal of Policy Analysis and Management

206

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Even though a citizen participation component is included in nearly every major local government planning and policy initiative, most citizen participation techniques have been judged to be less than adequate tools for informing policy makers about the people's will. Recently, having planners or policy analysts work closely with long‐standing citizen panels composed of a randomly selected sample of community members has been proposed as one appropriate response to many of the inadequacies of traditional techniques. In this article, staff from a municipal government policy analysis unit describe and critique a yearlong citizen panel project focused on developing a transportation master plan in a university community. They argue that panels can overcome many of the limitations to effective citizen participation. The authors also suggest that panels can work well, but only if policy analysts assume more pro‐active and advocacy roles than those routinely found in local government.

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Correlates of Consumer Participation in Health Planning Agencies: Findings and Implications From a National Survey

Cited by 11 publications

References 19 publications

From rhetoric to reality: including patient voices in supportive cancer care planning

From rhetoric to reality: including patient voices in supportive cancer care planning

Systematic review of involving patients in the planning and development of health care

Enhancing Citizen Participation: Panel Designs, Perspectives, and Policy Formation

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