Correlates of nursing care burden among institutionalized patients with dementia

Sun, Meng; Mainland, Brian J.; Ornstein, Tisha J.; Sin, Gwen Li; Herrmann, Nathan

doi:10.1017/s104161021800025x

Cited by 13 publications

(13 citation statements)

References 27 publications

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“…These events may lead to feelings of powerlessness among caregivers or feelings of loss of control 16 , which may be reinforced by the reported increase in behavioural problems among residents during the visitor-ban 14 , 21 . Especially, as irritability and aggressive or agitated behaviour are known to contribute to caregiver burden and distress 35 , 36 . Finally, it has been found that health care workers who were at higher risk of getting infected with COVID-19 reported higher levels of anxiety and burn-out, partly due to the risk of transmitting the disease to family members at home 37 .…”

Section: Discussionmentioning

confidence: 99%

The influence of the down- and upscaling of activities in long-term care facilities during the COVID-19 visitor ban on caregivers’ exhaustion and ability to provide care and support: A questionnaire study

et al. 2022

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Section: Discussionmentioning

confidence: 99%

The influence of the down- and upscaling of activities in long-term care facilities during the COVID-19 visitor ban on caregivers’ exhaustion and ability to provide care and support: A questionnaire study

et al. 2022

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“…Concurrent validity was measured using Spearman correlations with expected significant negative correlations with patient's function (GAF score), as well as significant positive correlations with caregiver's depression (PHQ-9 score), and anxiety symptoms (GAD-7 score) (Ji et al, 2014; Wang et al, 2017; Sun et al, 2018; Yu et al, 2018). We further performed Fisher r-to-Z test to compare the statistical significance of different correlations.…”

Section: Methodsmentioning

confidence: 99%

Assessment of Burden Among Family Caregivers of Schizophrenia: Psychometric Testing for Short-Form Zarit Burden Interviews

Liu

Zhou

et al. 2018

Front. Psychol.

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Objective: Although various short forms of Zarit Burden Interview (ZBI) have been developed, there is a lack of standard psychometric testing and comparison among them. The study aims to examine the psychometric properties of ten short versions of the most frequently used ZBI among a sample of schizophrenia caregivers and to find the one with the best performance.Methods: Cross-sectional door-to-door survey of ZBI-22 and a series of validated instrument data from 327 family caregivers of schizophrenia patients in a Chinese rural community were conducted from October 2015 to January 2016. Reliability was assessed using McDonald's omega coefficient (ω). Validity including concurrent validity, known group's validity, and criterion validity were assessed by Spearman correlations and Mann-Whitney U tests. Overall discrimination ability was evaluated using the area under the receiver operating characteristic curve (AUC).Results: Reliability was generally good for all short forms (ω = 0.69–0.84), except for the Gort ZBI-4 (ω = 0.58), which is acceptable considering its small item numbers. Concurrent validity was good across all various ZBI forms with significant negative correlations with patient's function (r = −0.34 to −0.48, p < 0.01), as well as significant positive correlations with caregiver's depression (r = 0.49–0.65, p < 0.01), and anxiety symptoms (r = 0.45–0.58, p < 0.01). Known groups' validity (carers with disease vs. without disease; carers being parents vs. spouse vs. others) showed inconsistent results among various short forms. Criterion validity was generally good for all short forms with significant positive correlations with Family Burden Interview Schedule (r = 0.67–0.75, p < 0.01), except for the Higginson ZBI-1(r = 0.57, p < 0.01). Discriminative ability was also good for all short forms (AUC range: 0.85–0.99), with various cutpoints proposed. Among all ten short forms, the Ballesteros ZBI-12 and the Gort ZBI-7 outperformed others with almost equally good performance in comprehensive psychometric testing.Conclusions: This study provides support for the reliability, validity, and discriminative ability of the ten various short forms of ZBI for use among schizophrenia family caregivers, with the Ballesteros ZBI-12 and the Gort ZBI-7 endorsed as the best ones.

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“…Between 50 and 80% of individuals in nursing homes are suffering from dementia, implying a higher care burden in terms of time and costs as compared to nursing home residents free of dementia. Studies found a relationship between deficits in ADL performance of individuals in nursing homes with perceived formal caregiver burden (Miyamoto, Tachimori, & Ito, 2010;Sun, Mainland, Ornstein, Sin, & Herrmann, 2018). Moreover, an increase of total resource use (hours per week) in nursing homes is associated with ADL dependence of nursing home residents (Sköldunger et al, 2019).…”

Section: Availability Of Data and Materialsmentioning

confidence: 99%

Effects of a 16-week multimodal exercise program on activities of daily living in institutionalized individuals with dementia

Bezold

Trautwein

Barisch‐Fritz

et al. 2021

Ger J Exerc Sport Res

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We aimed to examine the effects of a 16-week multimodal exercise program (MEP) on activities of daily living (ADL) in individuals with dementia (IWD). Furthermore, we investigated the participants’ individual response to the MEP and whether baseline cognitive and motor performance explain ADL performance. We conducted a multicenter randomized controlled trial (RCT) involving 319 participants aged ≥ 65 years with mild to moderate dementia. ADL were assessed at baseline and after the 16-week intervention using the Barthel Index (BI), the Erlangen Test of Activities of Daily Living (E-ADL) and the 7‑item Physical Performance Test (PPT-7). We additionally assessed cognitive and motor performance using standardized and validated assessments. Intervention effects were examined through two-factor analysis of variance with repeated measurements applying a per protocol and an intention-to-treat analysis. We compared baseline cognitive and motor performance between positive-responders (positive-R), non-responders (non-R), and negative-responders (negative-R) and examined cognitive and motor performance as potential cofounders of ADL by conducting multiple regression analyses. There were no significant time×group effects on ADL. Between 20 and 32% of participants responded positively to the intervention, i.e., improved ADL performance from baseline to follow-up. Positive-R had worse baseline motor performance compared to non-R. Cognitive and motor performance explained up to 51.4% of variance in ADL. The MEP had no significant overall effect on ADL in IWD. This may be related to insufficient exercise intensity. However, our results indicate that the response to the MEP depends on individual prerequisites which should thus be considered in further research on individual exercise approaches.

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Correlates of nursing care burden among institutionalized patients with dementia

Abstract: In the long-term care setting, aggressive behavior plays an important role in both subjective and objective nursing burden, while impaired ADLs increase the objective burden for nursing staff.

Cited by 13 publications

References 27 publications

The influence of the down- and upscaling of activities in long-term care facilities during the COVID-19 visitor ban on caregivers’ exhaustion and ability to provide care and support: A questionnaire study

The influence of the down- and upscaling of activities in long-term care facilities during the COVID-19 visitor ban on caregivers’ exhaustion and ability to provide care and support: A questionnaire study

Assessment of Burden Among Family Caregivers of Schizophrenia: Psychometric Testing for Short-Form Zarit Burden Interviews

Effects of a 16-week multimodal exercise program on activities of daily living in institutionalized individuals with dementia

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