Correlation between the PROMIS Pediatric Mobility Instrument and the Hospital for Special Surgery Pediatric Functional Activity Brief Scale (HSS Pedi-FABS)

Adjei, Joshua; Schachne, Jonathan M.; Green, Daniel W.; Fabricant, Peter D.

doi:10.1007/s11420-019-09726-7

Cited by 4 publications

(11 citation statements)

References 22 publications

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“…A total of 51 studies8–10,17–64 of PROMIS in pediatric orthopaedics were identified in the current review. Study characteristics by year, author, orthopaedic population, topic, and cohort size can be found in Appendix, Supplemental Digital Content 1, http://links.lww.com/BPO/A524.…”

Section: Resultsmentioning

confidence: 99%

“…For the purposes of this review, patients were grouped by body part or subspecialty. Most studies were included within the “Hand and Upper Extremity”10,23–34 (25.5%, n=13) and “Sports”47–58 (23.5%, n=12) categories followed by “Spine”8,41–46 (13.7%, n=7), “Trauma”9,59–64 (13.7%, n=7), “General Pediatric Orthopaedics”17–22 (11.8%, n=6), “Lower Extremity”35–39 (9.8%, n=5), and “Orthopaedic Oncology”40 (2%, n=1).…”

Section: Resultsmentioning

confidence: 99%

“…There were 1961 unique citations included after the removal of 1756 duplicates. After initial screening, 183 studies were screened under full-text review leaving a final number of 51 studies8–10,17–64 included in this scoping review (Fig. 1).…”

Section: Methodsmentioning

confidence: 99%

“…Ceiling and floor effects were assessed in 35.3% (n = 18/ 51) of the included studies. 8,9,19,[21][22][23]29,31,33,39,40,43,44,49,55,58,59,61 In each of the 18 studies, significant ceiling or floor effects were considered present when ≥ 15% of the study cohort had reached the maximum or minimum possible score. 65 Of note, the 3 most assessed PROMIS domains in terms of ceiling and floor effects were Pain Interference, Mobility, and Upper Extremity (Table 4).…”

Section: Ceiling and Floor Effectsmentioning

confidence: 99%

“…The methodology of the studies included 3 categories: (1) Outcome studies [8][9][10]17,18,[23][24][25][26][27][28][29][30][34][35][36][37][38][40][41][42]47,48,55,57,[59][60][61][62][63][64] in which baseline PROMIS scores were assessed in a specific disease state or to evaluate the outcome of a surgical procedure or treatment (n = 31, 60.8%), (2) PROM comparison studies 8,[19][20][21][22][23]29,31,33,39,41,[43][44][45][46]49,54,56,58 in which PROMIS was compared with a legacy PROM within a ...…”

Section: Study Designsmentioning

confidence: 99%

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PROMIS Utilization in Pediatric Orthopaedics: A Scoping Review

Eisenberg

Block

Ganapathy

et al. 2022

Journal of Pediatric Orthopaedics

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Background: The lack of a common patient-reported outcome metric used among the orthopaedic population is a problem that has been previously identified by the American Academy of Orthopaedic Surgeons. The Patient-Reported Outcomes Measurement Information System (PROMIS) was developed by the National Institute of Health with the goal of creating a precise and efficient measurement tool for patient-reported symptoms, functioning, and health-related quality of life to be used in clinical research. A study summarizing its use in the pediatric orthopaedic population has not been previously performed. Methods: We performed a literature search of Ovid Medline, Embase, Scopus, and the Cochrane Central Register of Controlled Trials from 2010 to August 2021. There were 1961 unique citations included after the removal of 1756 duplicates. After initial screening, 183 studies were screened under full-text review leaving a final number of 51 studies included in this scoping review. Results: Pediatric PROMIS studies were grouped by body part or sub-speciality: "Hand and Upper Extremity" (25.5%, n = 13), "Sports" (23.5%, n = 12), "Spine" (13.7%, n = 7), "Trauma" (13.7%, n = 7), "General Pediatric Orthopaedics" (11.8%, n = 6), "Lower Extremity" (9.8%, n = 5), and "Orthopaedic Oncology" (2%, n = 1). An increase in studies utilizing PROMIS was seen throughout the study period with only 3 studies published from 2013 to 2016 to 39 in 2020 and 2021 alone. The 3 most frequently used pediatric PROMIS domains were Pain Interference (76.5%, n = 39/51), Mobility (60.8%, n = 31/51), and Upper Extremity (54.9%, n = 28/51). 64.3% (n = 9/14) of the included studies which reported on the floor effects of Pain Interference exhibited a significant floor effect. In all, 77.8% (n = 7/9) of the included studies which reported on ceiling effects of Upper Extremity exhibited a significant ceiling effect. Conclusion: The use of PROMIS increased significantly since the first publication in 2013 suggesting orthopaedic providers have increasingly utilized PROMIS in their day-to-day practice as an outcome measure. Ceiling and floor effects were prominent in several of the included domains (Pain Interference and Upper Extremity). Overall, PROMIS measures are efficient, reliable, and effective to use. Level of Evidence: IV.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Ceiling and Floor Effectsmentioning

confidence: 99%

Section: Study Designsmentioning

confidence: 99%

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PROMIS Utilization in Pediatric Orthopaedics: A Scoping Review

Eisenberg

Block

Ganapathy

et al. 2022

Journal of Pediatric Orthopaedics

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Clinical Outcome Scale Development and Validation

Fabricant

2024

Practical Clinical Research Design and Application

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Quality of patient- and proxy-reported outcomes for children with impairment of the lower extremity: A systematic review using the COnsensus-based Standards for selection of health Measurement INstruments methodology

Saris,

Kalle,

Sierevelt

et al. 2023

Journal of Children's Orthopaedics

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Background: Patient-reported outcome measures have become crucial in the clinical evaluation of patients. Appropriate selection, in a young population, of the instrument is vital to providing evidence-based patient-centered healthcare. This systematic review applies the COnsensus-based Standards for selection of health Measurement INstruments methodology to provide a critically appraised overview of patient-reported outcome measures targeted at pediatric orthopedic patients with lower limb impairment. Method: A systematic search of electronic databases was performed to identify original studies reporting the development and/or validation of patient-reported outcome measures evaluating children with impairment of the lower extremity. Data extraction, quality assessment, and risk of bias evaluation were performed following the COnsensus-based Standards for selection of health Measurement INstruments guidelines and Preferred Reporting Items for Systematic reviews and Meta-Analyses statement. Results: A total of 6919 articles were screened. Thirty-three studies were included, reporting evidence on the measurement properties of 13 different patient-reported outcome measures and 20 translations. Four studies reported on content validity and patient-reported outcome measure development. The methodological quality of studies on structural validity, content validity, or patient-reported outcome measure development was mostly rated as “doubtful” or “very good.” The quality of evidence on measurement properties varied noticeably, with most studies needing to perform improve their methodological quality to justify their results. Conclusion: This review provides an extensive overview of all available patient-reported outcome measures for patients with lower extremity impairment within pediatric orthopedics. We cautiously advise the use of four patient-reported outcome measures. However, the scarce availability of research on content validity and patient-reported outcome measure development highlights an area for future research endeavors to improve our knowledge on the currently available patient-reported outcome measures. Level of evidence: Diagnostic level 1

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Correlation between the PROMIS Pediatric Mobility Instrument and the Hospital for Special Surgery Pediatric Functional Activity Brief Scale (HSS Pedi-FABS)

Cited by 4 publications

References 22 publications

PROMIS Utilization in Pediatric Orthopaedics: A Scoping Review

PROMIS Utilization in Pediatric Orthopaedics: A Scoping Review

Clinical Outcome Scale Development and Validation

Quality of patient- and proxy-reported outcomes for children with impairment of the lower extremity: A systematic review using the COnsensus-based Standards for selection of health Measurement INstruments methodology

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