Correlational study: illness representations and coping styles in caregivers for individuals with schizophrenia

Rexhaj, Shyhrete; Python, Nataly Viens; Morin, Diane; Bonsack, Charles; Favrod, Jérôme

doi:10.1186/1744-859x-12-27

Cited by 35 publications

(26 citation statements)

References 29 publications

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“…Overall, these findings appear consistent with the findings obtained in previous research among family caregivers of patients enduring schizophrenia. Such research reveals the preferential use of problem-focused coping, followed by social-focused coping and, finally, emotion-focused coping (Grover et al, 2015;Rexhaj et al, 2013;Scazufca & Kuipers, 1999).…”

Section: Discussionmentioning

confidence: 99%

“…However, depending on the coping strategies adopted by family caregivers of persons with schizophrenia, the burden associated with the process of caregiving could be experienced as more or less important or unchanged (Grover et al, 2015;Magliano et al, 2000;Rexhaj et al, 4 support-focused coping (Magliano et al, 1996). This instrument is repeatedly used in the scientific literature among family members of schizophrenic patients [parents, siblings or, more rarely, more distant family members (Caqueo-Urízar et al, 2012;Chandrasekaran et al, 2002;Gonçalves-Pereira et al, 2013;Hanzawa et al, 2010;Hanzawa et al, 2008;Magliano et al, 1998;Magliano et al, 2000;Magliano et al, 2005;Rexhaj et al, 2016;Rexhaj et al, 2013)].…”

Section: Introductionmentioning

confidence: 99%

“…All the item translations were considered accurate and similar in meaning. For that matter, this French version of the FCQ had already been used in previous studies (Rexhaj et al, 2016;Rexhaj et al, 2013) and is available in the appendix. The original Italian instrument can also be obtained directly from the author, who authorized us to publish her email address: lorenza.magliano@unicampania.it.…”

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confidence: 99%

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Internal validity of the French version of the Family Coping Questionnaire (FCQ): A confirmatory factor analysis

Plessis¹,

Golay

Wilquin³

et al. 2018

Psychiatry Research

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Family members of patients with schizophrenia, especially when they assume caregivers' positions, experience difficulties to adapt to the situation. To gain insight into these caregivers' coping style is a challenge to decrease the stress of family members, and in this way, improve patient related outcome. The FCQ (Family Coping Questionnaire) is an adapted clinical assessment tool that focuses on specific ways to cope with dysfunction that characterize the psychotic pathology. The goal of this study was to provide validity evidence about the French version of the FCQ. Swiss and French family members of individuals suffering from schizophrenia (n = 204) responded to the FCQ. A confirmatory factor analysis (CFA) was applied estimating two models. The seven-factor model showed adequate fit to the data while the three-factor model fit was poor. This FCQ internal validation showed an adequate model fit with a French population including various family members (parents, siblings, etc.) of persons with enduring mental illness.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

mentioning

confidence: 99%

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Internal validity of the French version of the Family Coping Questionnaire (FCQ): A confirmatory factor analysis

Plessis¹,

Golay

Wilquin³

et al. 2018

Psychiatry Research

Self Cite

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“…Main informal caregiver is the person who takes care and responsible for the patient without receiving any economic retribution [6]. Main informal caregivers need to confront the consequences of psychological instability of schizophrenia patients [7]. Social supports can be de ned as having reliable people to assist in meeting material resource and psychosocial need [8].…”

Section: Introductionmentioning

confidence: 99%

Awareness, utilization and influencing factors of social supports for main informal caregivers of schizophrenia patients: a cross-sectional study in primary care settings in Beijing, China

Wang

Jin

Wei

et al. 2020

Preprint

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Background: Most schizophrenia patients are supported by main informal caregivers at home in China. This study aims to investigate the further needs of social supports for main informal caregivers of schizophrenia patients and to analyze influencing factors on the awareness and utilization of social supports in Beijing. The results of this study could potentially act as reference for health professionals to implement appropriate and effective support programs.Methods: A mixed-methods approach was used in this study. Awareness, utilization and influencing factors of social supports for main informal caregivers were investigated using questionnaires in 6 urban districts in Beijing. Meanwhile, individual in-depth interviews with 10 main informal caregivers from the urban districts of Beijing were conducted to identify the caregivers’ perspective on social supports and their further needs. Results: Quantitative results showed that although the government provided multi-channel resources for schizophrenia patients and their families, awareness and utilization of the resources such as rehabilitation and relevant subsidies were less than 10.0% and 5.0% respectively. Most caregivers in in-depth interviews expressed that they had negative experiences with respect to obtaining social supports, and they emphasized that more support would be needed in terms of financial support, respect, and rehabilitation institutions.Conclusions: The awareness and utilization of social supports are low for main informal caregivers of schizophrenia patients. More services and improved public attitudes are needed for schizophrenia patients and their caregivers.

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“…Studies involving caregivers or spouses of people in other health conditions have reported that IRs can influence caregivers' coping styles and well-being (e.g. Heijmans, de Ridder, & Bensing, 1999;Lobban, Barrowclough, & Jones, 2005;Rexhaj, Python, Morin, Bonsack, & Favrod, 2013). There has been little exploration of IRs in caregivers of people with dementia.…”

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confidence: 99%

Caregivers’ beliefs about dementia: findings from the IDEAL study

Quinn

Jones

Martyr

et al. 2019

Psychology & Health

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Objective: Informal caregivers of people with dementia develop their own beliefs about the condition, referred to as Dementia Representations (DRs), as they try to make sense of the changes they are observing. The first aim of this study was to provide a profile of the types of DRs held by caregivers. The second aim was to examine the impact of caregivers' DRs on their well-being, satisfaction with life (SwL) and caregiving stress. Methods: Participants were 1264 informal caregivers of people in the mild-to-moderate stages of dementia from time-point 1 of the IDEAL cohort study. Measures: DRs were measured using questionnaire items covering: Identity, Cause, Control, and Timeline. Results: Almost half (49.2%) of caregivers used a diagnostic term to describe the person's condition, although 93.4% of caregivers stated they were aware of the diagnosis. Higher well-being, SwL, and lower caregiving stress were associated with the use of an identity term relating to specific symptoms of dementia, attributing the cause to ageing or not knowing the cause, and believing the condition would stay the same. Lower well-being, SwL, and higher caregiving stress were associated with believing there was little that could be done to control the effects of the condition. Conclusion: Healthcare professionals should assess and gain an understanding of caregivers' DRs in order to provide more tailored information and support.

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Correlational study: illness representations and coping styles in caregivers for individuals with schizophrenia

Cited by 35 publications

References 29 publications

Internal validity of the French version of the Family Coping Questionnaire (FCQ): A confirmatory factor analysis

Internal validity of the French version of the Family Coping Questionnaire (FCQ): A confirmatory factor analysis

Awareness, utilization and influencing factors of social supports for main informal caregivers of schizophrenia patients: a cross-sectional study in primary care settings in Beijing, China

Caregivers’ beliefs about dementia: findings from the IDEAL study

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