Corrigendum to: “Cancer in childhood: Children's and parents' aspects for quality of life” [Eur J Oncol Nurs 12 (2008) 209–216]

Matziou, Vasiliki; Perdikaris, Pantelis; Feloni, Dimitra; Moschovi, Maria; Tsoumakas, Konstantinos; Merkouris, Anastasios

doi:10.1016/j.ejon.2009.07.003

Cited by 2 publications

(2 citation statements)

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“…Parents reported significantly lower HRQOL scores than patients themselves in the total score, procedure anxiety, treatment anxiety and worry domains. These findings were comparable to related studies of Sand et al 11 and Matziou et al 23 These domains comprise emotional or internalized symptoms which may either be difficult to interpret by the parents or influenced by the emotions of the parents themselves. A systematic review reported a greater agreement between child and parent reports for observable functioning (physical HRQOL), and lesser agreement for nonobservable functioning (emotional or social HRQOL) domains.…”

Section: Discussionsupporting

confidence: 91%

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The Reliability of the Thai version of Health-Related Quality of Life Questionnaire: PedsQL 3.0 Cancer Module

Sudnawa

Yeepae

Photia

et al. 2022

Global Pediatric Health

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Assessing the health-related quality of life (HRQOL) is highly recommended as a standard of care for children with cancer in conjunction with medical treatment. The Pediatric Quality of Life Inventory (PedsQL) Cancer Module is a standard tool designed to assess the HRQOL among pediatric oncology patients. This study aimed to evaluate the reliability and correlation of the PedsQL 3.0 Cancer Module in Thai version between child and parent reports. A cross-sectional study was conducted on 85 Thai children with cancer and their families. Excellent internal consistency of the PedsQL 3.0 Cancer Module of the Thai version was addressed among child and parent reports (0.92 and 0.94, respectively). Overall positive correlations were also found between child and parent reports ( r = 0.61, P < .001). However, the statistically significant differences of HRQOL scores between child and parent reports were determined on procedural anxiety (70.05 ± 26.67 vs 60.03 ± 25.6, P = .003), treatment anxiety (88.15 ± 17.37 vs 76.82 ± 26.7, P = .001), worry (66.67 ± 25.59 vs 55.34 ± 30.37, P = .003) and the total score (74.37 ± 15.7 vs 70.42 ± 17.15, P = .034). This study demonstrated desirable internal reliability with positive correlations between child and parent reports of the PedsQL 3.0 Cancer Module in Thai version, although possible differences between child and parent HRQOL scores should be considered.

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Section: Discussionsupporting

confidence: 91%

“…Interestingly, pain and nausea are physical health scale domains which also showed a positive correlation between children and parents in several studies. 18 , 20 - 23 These might be due to the physical symptoms being externalized and generally accessible for objective evaluation.…”

Section: Discussionmentioning

confidence: 99%

The Reliability of the Thai version of Health-Related Quality of Life Questionnaire: PedsQL 3.0 Cancer Module

Sudnawa

Yeepae

Photia

et al. 2022

Global Pediatric Health

View full text Add to dashboard Cite

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Patient-Reported Outcomes In Performance Measurement

Cella¹,

Hahn²,

Jensen³

et al. 2015

204

215

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The National Quality Forum (NQF), a national organization that has been deeply involved in moving the quality-improvement agenda forward for many years (http://www.qualityforum.org), endorses and promulgates quality-ofcare and performance measures that various provider groups, regulatory agencies, payers and insurers, and others can use for accountability and quality improvement activities. In 2012 and 2013, the organization began an initiative to find PROs that might be added to its extensive collection of performance measures. Its National Voluntary Consensus Standards for Patient Outcomes: A Consensus Report defined outcomes as being important because they "reflect the reason that an individual seeks healthcare services. " 1 The individual patient's voice in many performance measures, however, has largely been missing. Few ways to assess performance are available at the organizational level, even though patients are often the best able to report on the experiences and results of their individual care.To fill that gap, NQF convened an expert panel at two public meetings and, as background for its deliberations, commissioned two authoritative background papers. This monograph is a revised and updated version of the first of these two papers, which provided the background on issues about selecting PROs for use in a variety of applications pertinent to the NQF mission and activities. The second paper, Patient-Reported Outcomes in Performance Measurement, 9 dealt with issues relating to processes for endorsing performance measures that reflect the end results (ultimate outcomes) of health care. Its primary focus was on accountable health care organizations.This monograph applies the conceptual and organizational frameworks that NQF has pioneered in the past decade or so. NQF distinguishes PROs, patientreported outcome measures (or PROMs), and patient-reported outcome performance measures (or PRO-PMs). NQF endorses PRO-PMs through transparent and consensus-based procedures. This monograph addresses the PROs that are likely to be used to inform PRO measures (PROMs) that would underpin scientifically acceptable and feasible performance measures. We do not address issues with identifying, evaluating, or endorsing PRO-PMs for health care organizations or clinicians. Key Concept DefinitionPatient A person who is receiving health care services or using long-term health care support services. Patientreported outcome (PRO)Any information on the outcomes of health care obtained directly from patients without modification by clinicians or other health care professionals. For purposes of this monograph, we use this term broadly to include any patient input, whether or not it is standardized or gathered with a structured questionnaire. Patientreported outcome measure (PROM)Any standardized or structured questionnaire regarding the status of a patient's health condition, health behavior, or experience with health care that comes directly from the patient (i.e., a PRO). The use of a structured, standardized tool such as a PROM wi...

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Corrigendum to: “Cancer in childhood: Children's and parents' aspects for quality of life” [Eur J Oncol Nurs 12 (2008) 209–216]

Cited by 2 publications

References 9 publications

The Reliability of the Thai version of Health-Related Quality of Life Questionnaire: PedsQL 3.0 Cancer Module

The Reliability of the Thai version of Health-Related Quality of Life Questionnaire: PedsQL 3.0 Cancer Module

Patient-Reported Outcomes In Performance Measurement

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