Counseling families with hereditary breast and ovarian cancer: A psychosocial perspective

Richards, Martin; Hallowell, Nina; Green, Josephine M.; Murton, F; Statham, Helen

doi:10.1007/bf01408411

Cited by 46 publications

(28 citation statements)

References 36 publications

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“…Recent studies have looked at the provision of information during genetic consultations1 and counsellees' expectations before attending cancer family history clinics 2. Using data obtained during a prospective study of genetic counselling for breast or ovarian cancer,3 we present suggestions for the use of written information by family history clinics.…”

Section: Introductionmentioning

confidence: 99%

Women's need for information before attending genetic counselling for familial breast or ovarian cancer: a questionnaire, interview, and observational study

Hallowell

Murton

Statham

et al. 1997

BMJ

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There is growing consensus that treatment of cardiovascular risks should be based on multiple rather than single factors and on absolute rather than relative risks. Thresholds for treatment should reflect the level of absolute risk at which the benefits and hazards of treating outweigh the benefits and hazards of not treating. Once a decision has been made to initiate a treatment programme, clinicians need to know the patient's absolute risk. At this level of risk, do the benefits of treatment outweigh the hazards? Given this information, which treatment option does the patient prefer? Using cardiovascular disease as an example, I review some measures that assist decision making in primary care. Practice guidelines should routinely include accessible presentation of treatment outcomes on benefit, hazard, and costs for a range of absolute risks. These measures enable patients and their doctors to weigh the pros and cons of treatment in their particular circumstances.

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Section: Introductionmentioning

confidence: 99%

Women's need for information before attending genetic counselling for familial breast or ovarian cancer: a questionnaire, interview, and observational study

Hallowell

Murton

Statham

et al. 1997

BMJ

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“…Their expectations of the familial breast cancer clinic may include provision of breast screening, genetic risk information, or simply reassurance. It has been suggested that women may be more interested in obtaining reassurance and information about cancer detection and prevention than in procuring genetic risk information or genetic testing,14 15 though there is likely to be wide variety in their reasons for attending. To our knowledge, no published research to date has examined whether there is variance in the psychosocial characteristics of women who are attending the familial breast cancer clinic for different reasons.…”

mentioning

confidence: 99%

Why do women attend familial breast cancer clinics?

Brain

2000

Journal of Medical Genetics

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The increasing demand for genetic assessment for familial breast cancer has necessitated the development of cancer genetics services. However, little is known about the factors motivating the client population likely to approach these services. A cross sectional questionnaire survey of 1000 women with a family history of breast cancer was conducted to identify selfreported reasons for attending a familial breast cancer clinic and possible diVerences in the characteristics of women who were attending for diverse reasons. Before attendance at clinic, 833 women completed a baseline questionnaire (83% response rate). Women who gave personal risk (n=188), awareness of a family history (n=120), risk to family members (n=84), reassurance (n=69), genetic testing (n=65), breast screening (n=46), or prevention (n=39) as their main reason for attending were compared on demographic and medical variables, and on psychological variables including general anxiety, cancer worry, perceived risk, and attitudes towards prophylactic surgery and genetic testing. Important diVerences in the psychological characteristics of these groups were found, which were unrelated to reported family history. In particular, women who primarily wanted genetic testing felt extremely vulnerable to developing breast cancer, were more likely to be considering prophylactic surgery, and perceived fewer limitations of testing. Those who primarily wanted reassurance were highly anxious about the disease. We recommend that cancer genetics services take into consideration the informational and psychological needs and concerns of their client group.

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“…Boersma et al, 2007; gave us reason to believe that Deleted: Table 3 Deleted: This study, as some extracurricular developments, aim to introduce more contemporary concepts and genomics research techniques in school biology (Dougherty, 2009;Mil, Boerwinkel, Buizer-Voskamp, Speksnijder, & Waarlo, 2010). However, most of the concepts mentioned do not form a part of the formal curriculum, and also exceed some earlier recommendations that were limited to the more classical Mendelian concepts (Richards et al, 1995). This might be an important side effect.…”

Section: The Story Of Annementioning

confidence: 83%

“…Other authors suggest the introduction of NOS aspects such as collecting and interpreting data or the uncertainty of scientific information (Ryder, 2001). Although the number of publications on teaching genetics in this controversial genetic test practice is substantial, the majority of the work focuses on higher education (Challen, Hallowel, Green, Murton, & Statham, 1995). For high school teachers, the relevant knowledge for teaching genetics in context is still to be explored.…”

Section: Needs For Expanding the Curriculum On Genetic Testingmentioning

confidence: 99%

A Knowledge Base for Teaching Biology Situated in the Context of Genetic Testing

Zande

Waarlo

Brekelmans

et al. 2010

International Journal of Science Education

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Counseling families with hereditary breast and ovarian cancer: A psychosocial perspective

Cited by 46 publications

References 36 publications

Women's need for information before attending genetic counselling for familial breast or ovarian cancer: a questionnaire, interview, and observational study

Women's need for information before attending genetic counselling for familial breast or ovarian cancer: a questionnaire, interview, and observational study

Why do women attend familial breast cancer clinics?

A Knowledge Base for Teaching Biology Situated in the Context of Genetic Testing

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