Counseling Women Who Have Terminated a Pregnancy Due to Fetal Anomaly (TOPFA): The ACCEPT Model

Hyatt, Erica Goldblatt; Danya, Erica

doi:10.1007/s10615-019-00732-0

Cited by 8 publications

(5 citation statements)

References 58 publications

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“…The findings relating to the need for compassionate care are congruent with other literature regarding TOPFA, which highlights the importance and impact of compassionate relationships with healthcare professionals for parents in this situation [44,50,80]. While these findings are not dissimilar to the experiences of every pregnant woman [94], the circumstances and the outcome of a TOPFA makes this different [95][96][97].…”

Section: The Importance Of Compassionate Caresupporting

confidence: 80%

“…The search strategy was developed by reviewing and extracting search terms from existing relevant reviews [39,44] or published studies with a similar sample [50][51][52]. Six multi-disciplinary electronic databases (Medline, Embase, PsycINFO, CINAHL, Web of Science, and Cochrane) were searched individually on 6 th August 2021 using the search terms in Table 1.…”

Section: Search Strategy and Sourcesmentioning

confidence: 99%

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Termination of pregnancy for fetal anomaly: a systematic review of the healthcare experiences and needs of parents

Heaney¹,

Tomlinson

Aventin³

2022

BMC Pregnancy Childbirth

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Background Improved technology and advances in clinical testing have resulted in increased detection rates of congenital anomalies during pregnancy, resulting in more parents being confronted with the possibility of terminating a pregnancy for this reason. There is a large body of research on the psychological experience and impact of terminating a pregnancy for fetal anomaly. However, there remains a lack of evidence on the holistic healthcare experience of parents in this situation. To develop a comprehensive understanding of the healthcare experiences and needs of parents, this systematic review sought to summarise and appraise the literature on parents’ experiences following a termination of pregnancy for fetal anomaly. Review question What are the healthcare experiences and needs of parents who undergo a termination of pregnancy following an antenatal diagnosis of a fetal anomaly? Methods A systematic review was undertaken with searches completed across six multi-disciplinary electronic databases (Medline, Embase, PsycINFO, CINAHL, Web of Science, and Cochrane). Eligible articles were qualitative, quantitative or mixed methods studies, published between January 2010 and August 2021, reporting the results of primary data on the healthcare experiences or healthcare needs in relation to termination of pregnancy for fetal anomaly for either, or both parents. Findings were synthesised using Thematic Analysis. Results A total of 30 articles were selected for inclusion in this review of which 24 were qualitative, five quantitative and one mixed-methods. Five overarching themes emerged from the synthesis of findings: (1) Contextual impact on access to and perception of care, (2) Organisation of care, (3) Information to inform decision making, (4) Compassionate care, and (5) Partner experience. Conclusion Compassionate healthcare professionals who provide non-judgemental and sensitive care can impact positively on parents’ satisfaction with the care they receive. A well organised and co-ordinated healthcare system is needed to provide an effective and high-quality service. Trial Registration: PROSPERO registration number: CRD42020175970.

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Section: The Importance Of Compassionate Caresupporting

confidence: 80%

Section: Search Strategy and Sourcesmentioning

confidence: 99%

Termination of pregnancy for fetal anomaly: a systematic review of the healthcare experiences and needs of parents

Heaney¹,

Tomlinson

Aventin³

2022

BMC Pregnancy Childbirth

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“…Dolan et al (2022) studied that mindfulness/acceptance is as effective as other psychological therapy in reducing perinatal loss and perinatal grief. Erica (Goldblatt & Erica, 2019) used the ACCEPT (acknowledging grief, connecting emotions to the loss, continuing bonds, exploring distortions, practicing new skills and telling the story) model for a woman experiencing TOPFA. Both works showed positive results to some extent.…”

Section: Backg Rou N Dmentioning

confidence: 99%

Psychosocial intervention programme based on the needs of women undergoing termination of pregnancy for foetal anomalies: A modified Delphi study

Wang,

Huang,

Xie

et al. 2024

Nursing Open

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AimTo construct a psychosocial intervention programme for women diagnosed with foetal anomalies based on their needs in China.DesignA three round‐modified Delphi survey from September to November 2020.MethodsIn Round 1, based on literature review and qualitative interviews, a face‐to‐face meeting with eight taskforce members was conducted to generate the initial intervention indicators. In Round 2 and 3, 15 experts and three stakeholders (women undergoing termination of pregnancy for foetal anomalies) were invited by email to evaluate the importance of the indicators and built the final psychosocial intervention programme.ResultsThe response rate for both two rounds is 100%. The experts' authority coefficient was 0.86. The Kendall W value of the two rounds ranged between 0.191 and 0.339. A needs‐based psychosocial intervention programme was established, including four periods (denial, confirmation, decision‐making and recovery), three needs‐based supports (information, social and acceptance commitment therapy) and 27 intervention indicators. The mean value of the importance of each index was 4.00–5.00. Further research is required to evaluate whether this programme is realistic and effective for the target audiences.

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“…The search strategy was developed by reviewing and extracting search terms from existing relevant reviews (Jones et al, 2017;Lafarge et al, 2014) or published studies with a similar sample Hanschmidt et al, 2018a, b;Hyatt, 2019). A combination of Medical Subject Headings (MeSH) and keyword search terms were employed, following consultation with a search specialist.…”

Section: Search Strategy and Sourcesmentioning

confidence: 99%

Termination of Pregnancy for Fetal Anomaly: A Systematic Review of the Healthcare Experiences and Needs of Parents

Heaney

Tomlinson

Aventin

2021

Preprint

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BackgroundImproved technology and advances in clinical testing have resulted in increased detection rates of congenital anomalies during pregnancy, resulting in more parents being confronted with the possibility of terminating a pregnancy for this reason. There is a large body of research on the psychological experience and impact of terminating a pregnancy for fetal anomaly. However, there remains a lack of evidence on the holistic healthcare experience of parents in this situation. To develop a comprehensive understanding of the healthcare experience and needs of parents, this systematic review sought to summarise and appraise the literature on parents’ experiences following a termination of pregnancy for fetal anomaly.Review Question:What are the healthcare experiences and needs of parents who undergo a termination of pregnancy following an antenatal diagnosis of a fetal anomaly?MethodsA systematic review was undertaken with searches completed across six multi-disciplinary electronic databases (Medline, Embase, PsycINFO, CINAHL, Web of Science, and Cochrane). Eligible records were qualitative, quantitative or mixed methods studies, published between January 2010 and August 2021, reporting the results of primary data on the healthcare experiences or healthcare needs in relation to termination of pregnancy for fetal anomaly for either or both parents. Findings were synthesised using Thematic Analysis.ResultsA total of 30 records were selected for inclusion in this review of which 24 were qualitative, five quantitative and one mixed-methods. Five overarching themes emerged from the synthesis of findings: (1) Context of Care, (2) Person-centred Care, (3) Compassionate Care, (4) Co-ordinated Care, and (5) Inclusive Care.ConclusionCompassionate healthcare professionals who provide non-judgemental and sensitive care can impact positively on parents’ satisfaction with the care they receive. A well organised and co-ordinated healthcare system is needed to provide an effective and high-quality service.Registration:PROSPERO registration number: CRD42020175970

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Counseling Women Who Have Terminated a Pregnancy Due to Fetal Anomaly (TOPFA): The ACCEPT Model

Cited by 8 publications

References 58 publications

Termination of pregnancy for fetal anomaly: a systematic review of the healthcare experiences and needs of parents

Termination of pregnancy for fetal anomaly: a systematic review of the healthcare experiences and needs of parents

Psychosocial intervention programme based on the needs of women undergoing termination of pregnancy for foetal anomalies: A modified Delphi study

Termination of Pregnancy for Fetal Anomaly: A Systematic Review of the Healthcare Experiences and Needs of Parents

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