Couples with diabetes and health‐care providers: a grounded theory of preferential relating

Falke, Stephanie I.; Lawson, Lindsey

doi:10.1111/hex.12302

Cited by 8 publications

(9 citation statements)

References 36 publications

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“…The cluster analysis has enabled us to identify and begin to describe the relationship between shared decision making, patient-physician interactions, and disease severity. Although this relationship seems intuitive, the research confirms that shared decision making for a chronic condition such as IBD is likely easier and more effective among patients who have a strong positive relationship with their physician [15,16]. The satisfied cluster of patients in this study illustrates one end of a spectrum featuring a patient group with a high level of trust in their physician and less severe or better-managed IBD.…”

Section: Discussionsupporting

confidence: 54%

Novel Statistical Approach to Determine Inflammatory Bowel Disease: Patients’ Perspectives on Shared Decision Making

Siegel

Lofland

Naim

et al. 2015

Patient

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Section: Discussionsupporting

confidence: 54%

Novel Statistical Approach to Determine Inflammatory Bowel Disease: Patients’ Perspectives on Shared Decision Making

Siegel

Lofland

Naim

et al. 2015

Patient

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“…10,22,23,29,35 The remaining were qualitative studies using in-depth interviews and focus group discussions ( Table 2). [36][37][38][39][40][41] More than half of the English language studies were conducted in United States. 4,9,10,23,25,26,29,[36][37][38] The main aims of the cross-sectional surveys were determining the patients' evaluation of their provider communication style and the association between patients' perceptions of communication quality and patient-reported outcomes.…”

Section: Resultsmentioning

confidence: 99%

“…4,22,25,26,28,29,36,[39][40][41] On the other hand, empathy, emotional support, compassionate care, sensitivity to patients' cultural background, matters of trust and confidence, nonjudgmental acceptance, open and honest communication, explanation of conditions, a continuing relationship with a certain provider, privacy during medical encounters, encouragement, and participatory decision-making style were rated as important factors for enhancing the communication from the point of view of the patients with T2DM. 23,[25][26][27]29,36,37,[39][40][41] Results showed that Interpersonal Processes of Care scale was the most commonly used questionnaire for assessing patientprovider communication. 9,10,25,26,[28][29][30] Five out of the 22 reviewed papers were in Persian language and none was qualitative study.…”

Section: Resultsmentioning

confidence: 99%

“…4,[29][30][31] Regarding the qualitative studies, the major weakness was failure to present a reflexive account of the researchers' influence and the researchers' cultural and theoretical orientation. [36][37][38][39][40][41] Two studies did not clearly state the theoretical premises on which the study is based. 36,41 Tree studies did not include a statement on the ethical approval process followed.…”

Section: Resultsmentioning

confidence: 99%

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Patients’ perceptions of patient–provider communication and diabetes care: A systematic review of quantitative and qualitative studies

2018

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Objectives To explore the association between patients' perceptions of communication quality with their provider and a range of patients' outcomes in T2DM. Also, to identify barriers and facilitators to effective communication from the patients' perspective. Methods English and Persian papers published from 2000 to 2017 were searched in Web of Science, Pubmed, Scopus, Embase and SID, IranMedex, and MAGIRAN databases using appropriate search terms. Twenty-two studies complied the inclusion criteria. Each study was assessed for the focus of the study, study design (cross-sectional or qualitative study), population, outcome measures, patients' outcomes, and methodological quality. Results The quality of most studies was moderate to high based on the JBI Critical Appraisal Checklists. Higher perceived quality of provider-patient communication in patients with T2DM was associated with improved self-management, adherence to diabetes care and greater well-being, perceived personal control, self-efficacy, and less diabetes distress. Factors that patients with T2DM perceived as important factors in facilitating or hampering effective communication were more related to the provision of emotional support. Discussion The limited evidence shows patient-perceived communication quality is a significant modifiable approach for improving a range of outcomes in patients with T2DM. Due to socio-cultural differences, further high-quality research is needed for deciding the best communication style in various societies.

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“…People with diabetes and diabetes HCPs recognize the importance of a positive patient-provider relationship in enhancing self-care autonomy and having sufficient time during appointments to discuss self-care [17]. The qualitative work by Falke and Lawson [18] also captures the importance of tailoring patient-provider relationships to suit the unique needs and preferences of people with diabetes and their partners [18].…”

Section: Introductionmentioning

confidence: 99%

Exploring the perceptions of emotional distress among couples living with Type 2 diabetes and among diabetes healthcare providers, and consideration of support needs

2019

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Aims To compare the emotional distress experienced by people with Type 2 diabetes with the perceptions of their partners, and to explore the perceptions of healthcare providers and how these differ from the perceptions and experiences of couples living with Type 2 diabetes regarding their support needs. Methods A purposive sample of people with Type 2 diabetes and their partners was recruited through Diabetes UK media outlets and support groups, while healthcare providers were recruited through hospital and diabetes education teams. Inductive thematic analysis was conducted. Results Seven people with Type 2 diabetes and six partners took part in separate semi‐structured interviews and seven healthcare providers took part in focus groups. Themes emerged regarding unique psychological struggles for people with Type 2 diabetes: ‘sense of restriction’; ‘disempowerment’; and ‘acceptance of diabetes’. For partners the themes of ‘feeling responsible’ and ‘need for greater involvement’ emerged. Common themes arising from people with Type 2 diabetes, partners and healthcare providers highlighted diabetes‐related stresses: ‘self‐care struggles’ and ‘perceived need for appropriate psychological support’. A key theme drawn from healthcare providers was ‘perceived professional barriers to psychological support’, which captures concerns related to providing emotional support in clinical practice. Conclusions People with Type 2 diabetes, partners, and healthcare providers share a common understanding of the emotional stresses of living with Type 2 diabetes, but also experience diabetes differently depending on their role and responsibilities. All face barriers that need to be considered to ensure that emotional support in diabetes is meaningful and feasible in routine practice.

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Couples with diabetes and health‐care providers: a grounded theory of preferential relating

Abstract: Background A collaborative health-care relationship is considered critical in managing chronic illness like diabetes. Poorly controlled diabetes can greatly diminish one's quality of life and lead to severe complications or even death.

Cited by 8 publications

References 36 publications

Novel Statistical Approach to Determine Inflammatory Bowel Disease: Patients’ Perspectives on Shared Decision Making

Novel Statistical Approach to Determine Inflammatory Bowel Disease: Patients’ Perspectives on Shared Decision Making

Patients’ perceptions of patient–provider communication and diabetes care: A systematic review of quantitative and qualitative studies

Exploring the perceptions of emotional distress among couples living with Type 2 diabetes and among diabetes healthcare providers, and consideration of support needs

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