COVID-19 Sürecinde Çoklu Yetersizliği Olan Çocukların Ailelerine Sunulan Destekler: Bir Durum Çalışması

Abstract

Çoklu yetersizliği olan çocukların ailelerine sosyal, eğitim ve sağlık alanlarında destek sunulması ailelerin yaşam kaliteleri üzerinde etkili olan faktörlerden biridir. COVID-19 salgını süresince birçok insanın sosyal izolasyonda olması ve birçok kurum ve kuruluşun farklı çalışma sistemine geçmesi ile birlikte ailelere sunulan destek hizmetlerinin belirlenmesi önemlidir. Bu çalışmanın amacı, COVID-19 sürecinde çoklu yetersizliği olan çocuğa sahip ailelere sunulan sosyal, eğitim ve sağlık desteklerinin belirlenmesidir. Araştırma, nitel araştırma yöntemlerinden durum çalışması olarak desenlenmiştir. Araştırmada veri toplama yöntemi olarak yarı yapılandırılmış görüşme tekniği kullanılmış ve görüşmeler çevrim içi yapılıp kaydedilmiş ardından betimsel analiz tekniği ile analiz edilmiştir. Çocukları çoklu yetersizliği olan 14 aile araştırmaya katılmıştır. Çalışma grubunun seçiminde ölçüt örnekleme ve kolay ulaşılabilir örnekleme yöntemleri beraber kullanılmıştır. Araştırma bulgularına göre, COVID-19 sürecinin çoklu yetersizliği olan çocukları ve ailelerini olumsuz etkilediği ve bu süreçte ailelere sosyal, eğitim ve sağlık alanlarında gerekli olan desteklerin sunulmadığı ortaya çıkmıştır.

Children With Disabilities and Their Mothers During the COVID-19 Pandemic Difficulties Experienced

“…However, the mothers stated that they could not get support from a specialist or a teacher during this process and demanded that a teacher or specialist come to their home for the education of their children. 19 The results of the studies in the literature showed parallelism with our study and showed that children with disabilities had difficulties in getting education during the pandemic process, could not benefit from distance education and mothers were not enough to provide education. 17 , 18 , 20 , 31 , 33 , 47 - 49 However, in some studies, it has been stated that mothers do not know how to get their children to do activities and it is important for mothers to be educated on this issue.…”

“…Studies in the literature support our research findings and show that disabled children have problems in benefiting from health services during the pandemic process. 17 , 19 , 32 , 36 Apart from these, in some studies, mothers have stated that staying at home constantly reduces the physical activity level of children and that they cannot provide weight control due to this. 29 , 31 Therefore, children become vulnerable to obesity and related diseases.…”

“… 50 - 53 Another problem is that children with disabilities cannot benefit from distance education due to social inequalities, and there are studies supporting this result. 9 , 19 , 54 Krishnan et al 16 concluded in their study with disabled adolescents that because the online lessons do not cover all disability groups, the disabled people who use hearing aids cannot adapt to online lessons and cannot develop social skills. While it is important for children with disabilities to receive support from a specialist at home during the pandemic process, it has been reported that children cannot receive support from a specialist at home, similar to our study.…”

“… 52 , 55 - 57 It has been supported by studies that children who are bored of staying at home increase the time they spend in front of the screen. 17 , 19 , 20 , 29 , 31 As a result of all these, it has been reported in many studies that mothers could not cope with the behavioral problems of their children. 9 , 20 , 47 , 58 It is seen that our study result is compatible with the literature, and it is thought that it will be important to support mothers to cope with the behavioral problems of their children.…”

Children's Rights in The Perspective of Primary School Teachers in The Period COVID-19 Epidemic

“…Westrupp et al (2021), in the research of low-income families; It was found that while working from home, they had difficulties in providing care to children due to financial insufficiency. Wanyana, Wong and Hakizimana (2021) due to the COVID-19 pandemic, families cannot benefit from health services adequately due to fear of getting the virus, economic and social reasons, and children with special needs (Rogers et al, 2021;Sardohan-Yıldırım & Bozak, 2021) has been reached. Children who are financially and morally supported (for example, parents who can work from home, who live in a safe place, who are given care for their children, have access to the internet, and have the opportunity to shop online) benefit more from the fundamental right to life (Palkovitz & Fagan, 2021).…”