Craving, creating, and constructing comfort

Ferguson, Robert; Massimi, Michael; Crist, Emily; Moffatt, Karyn

doi:10.1145/2531602.2531631

Cited by 16 publications

(2 citation statements)

References 46 publications

(26 reference statements)

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“…The purpose of the study was to explore instances of intergenerational communication with the aim of eliciting design principles for information communication technologies that enhance presence, communication, and comfort among intimate groups near the end-of-life. The data was coded inductively to identify recurring topics, which were then clustered into key themes (not presented in this paper but see [5].…”

Section: Methodsmentioning

confidence: 99%

CHI '14 Extended Abstracts on Human Factors in Computing Systems

Tremaine

2014

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This position paper examines excerpts of interview transcripts that explore empathetic communication among family and friends during end-of-life hospice care. Examples show how empathy can be expressed 1) outwardly as a desire to understand "the other", 2) inwardly, or as a desire to be understood by others, 3) self-reflexively, in which a new understanding of the self in the present or future is enable by a detour of empathizing for the other, 4) or dialectically, in which symmetrical empathy and self-reflexivity can result in the co-construction of a new shared meaning of the past or present. This paper hypothesizes that limitations to ability to empathize might be overcome through a reversal of the directional flow of empathy, in which a better understanding of the self might result in a better understanding of the other, or vise versa. Therefore, empathy sensitive designs need to account for overlapping and multi-direction flows of empathy, including a critical look at the self.

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Section: Methodsmentioning

confidence: 99%

CHI '14 Extended Abstracts on Human Factors in Computing Systems

Tremaine

2014

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“…Theoretical contributions have argued for the adoption of "thanatosensitive" [32] and "life-span oriented" design [33]. Design and user research has been conducted focusing on the construction of memorials [15,16,47], online bereavement support systems [31], digital heirlooms [25,38], personal and family archives [24,26,39], and hospice [14].…”

Section: Designing For Grief and Memorializationmentioning

confidence: 99%

Orienting to Networked Grief

Brubaker

Hayes

Mazmanian

2019

Proc. ACM Hum.-Comput. Interact.

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Contemporary American experiences of death and mourning increasingly extend onto social network sites, where friends gather to memorialize the deceased. That "everyone grieves in their own way" may be true, but it forecloses important questions about how people evaluate these expressions, their relationship to others who are grieving, and impacts on their own experiences of grief. Drawing from mixed-methods research conducted over five years, we describe how individuals position themselves within and evaluate expressions of networked grief. We start by identifying five orientations -reinforcing, supporting, transferring, objecting, and isolating -that describe how individuals evaluate actions of grievers, position themselves relative to the network, and act when they encounter grief. We then describe factors and tensions that influence how individuals arrive at these orientations. Based on our findings, we argue that the design of social media can be sensitized to diverse needs by adopting a situated perspective within a dynamic post-mortem network.CCS Concepts: • Human-centered computing → Social media; Social networks; Empirical studies in collaborative and social computing; • Social and professional topics → User characteristics.

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