Creating a sense of security in palliative home care: Interviews with public health nurses

Josefsson, Karin; Bomberg, Madeleine; Krans, Madelene

doi:10.15761/npc.1000178

Cited by 6 publications

(15 citation statements)

References 11 publications

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“…The results show that the availability of professional palliative care was of great importance for feeling secure in the home, which is in line with previous research demonstrating that availability was sometimes crucial when a patient chose to be cared for at home [11]. Availability can also create a sense of security for relatives, which can, in turn, enhance a sense of security for the patient.…”

Section: Should Know When Help Is Coming and Be Included When Decisions Are Madesupporting

confidence: 89%

“…In the home, they experienced greater opportunities for participation and maintaining of everyday routines as compared to being in a care facility. This result is in line with research describing how home creates feelings of security and that home care provides an increased sense of independence [11,16]. At the same time, a sanctuary is a personal place where the individual is at home in an existential sense.…”

Section: The Home Should Be My Home Where I Know Who Is Coming Through the Doorsupporting

confidence: 87%

“…Yet it was also impossible to get to know all the caregivers and having to always watch that everything was done right made patients feel insecure. Previous research has also shown that more caregivers can lead to a reduced feeling of security, and patients appreciate having one caregiver whom they know well [11]. Patients were more open and felt more secure with caregivers who knew them more personally.…”

Section: The Home Should Be My Home Where I Know Who Is Coming Through the Doormentioning

confidence: 90%

“…The results revealed the importance of flexibility and consensus among all caregivers with regard to patients' participation in their care. Previous research has shown that patients experienced security when seeing collaboration and cooperation among all the concerned caregivers [11,20].…”

Section: Should Know When Help Is Coming and Be Included When Decisions Are Madementioning

confidence: 99%

“…Most of those receiving palliative care wish to be cared for at home [10]. However, the desire to die at home often wanes as the course of the disease lengthens, and the last stage in life is often characterized by alternating between feelings of security and insecurity [10,11].…”

Section: Introductionmentioning

confidence: 99%

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Life situation and participation as experienced by adult patients in palliative home care

Jonasson¹,

Lindö²,

Lindh³

et al. 2019

Nurs Palliat Care

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Background: Many patients are currently cared for at the end-of-life stage at home, and the number is expected to increase. The patient's participation is a prerequisite for good care, which also relates to ethical principles and evidence-based action.Aim: To describe adult patients' experiences of their life situation and their participation in palliative home care.Method: A reflective lifeworld approach and a phenomenological meaning analysis were conducted. Six adult patients in palliative home care were interviewed in Sweden during 2018.Results: One essential meaning and five elements of that meaning describe adult patients' life situations and participation in their palliative home care. The essential meaning referred to needing and endeavouring to live as usual and taking responsibility for life. The five essential elements were: The home should be my home, where I know who is coming through the door; I should know when help is coming and be included when decisions are made; routines should be maintained, but without booking up tomorrow; accept death, feel hope, and plan for relatives after my death; and be aware that death is imminent, but not know when it will come. Conclusions:Participation in palliative home care can be maintained and improved by caregivers behaving as guests in the patient's home, building up the patient's trust, showing consideration for patients and their relatives, promoting patients living everyday life as they previously had, asking about the patient's habits, and giving patients time and continuity in the caregiving relationship. Education should focus on how to have supportive conversations with a patient who is dying and preparing for death.

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Section: Should Know When Help Is Coming and Be Included When Decisions Are Madesupporting

confidence: 89%

Section: The Home Should Be My Home Where I Know Who Is Coming Through the Doorsupporting

confidence: 87%

Section: The Home Should Be My Home Where I Know Who Is Coming Through the Doormentioning

confidence: 90%

Section: Should Know When Help Is Coming and Be Included When Decisions Are Madementioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 3 more Smart Citations

Life situation and participation as experienced by adult patients in palliative home care

Jonasson¹,

Lindö²,

Lindh³

et al. 2019

Nurs Palliat Care

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Nurses’ challenges when supporting the family of patients with ALS in specialized palliative home care: A qualitative study

Beyermann

Asp

Godskesen

et al. 2023

International Journal of Qualitative Studies on Health and Well

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Purpose Being a family member to someone who has amyotrophic lateral sclerosis (ALS) is demanding and often requires sacrificing a lot. Family members can experience fatigue, anxiety, guilt and need support. The aim was to explore registered nurses’ (RNs’) experiences of providing support to the families of patients with ALS within specialized palliative home care (SPHC). Methods A qualitative explorative design. Interviews were conducted with RNs ( n = 11) from five SPHCs in Sweden and analysed using qualitative content analysis. Results The results emerged in the following categories:”To support in an increasingly difficult everyday life”, based on the sub-categories: “Creating a trusting relationship”, “Balancing between the needs of patients and their families”, and “Sharing knowledge about dying to the families”;”To support in emotionally challenging situations”, based on the sub-categories: “Harbouring family members’ difficult feelings”, “Providing support even though the situation is unpleasant” and “Being able to give support by receiving confirmation and support from others”. Conclusions RNs working in SPHC have an important role in providing support in several ways to the families of patients with ALS, through facilitating their everyday life and giving emotional support when needed, based on the needs of both patients and the families.

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The Relationship between Perception of Care, Sense of Security, and Subjective Psychological Well-Being among Older Adults Living in Sheltered Housing vs. Independent Housing in Israel

Alon

Bareket‐Bojmel

Shuv-Ami

2021

Journal of Aging and Environment

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Creating a sense of security in palliative home care: Interviews with public health nurses

Cited by 6 publications

References 11 publications

Life situation and participation as experienced by adult patients in palliative home care

Life situation and participation as experienced by adult patients in palliative home care

Nurses’ challenges when supporting the family of patients with ALS in specialized palliative home care: A qualitative study

The Relationship between Perception of Care, Sense of Security, and Subjective Psychological Well-Being among Older Adults Living in Sheltered Housing vs. Independent Housing in Israel

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