Creating Patient and Family Education Web Sites

Fitzgerald, Sharon; Yadrich, Donna Macan; Werkowitch, Marilyn; Piamjariyakul, Ubolrat; Smith, Carol E.

doi:10.1097/ncn.0b013e31822bef7a

Cited by 9 publications

(3 citation statements)

References 39 publications

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“…The IVhomeCare intervention website provides: evidence-based symptom monitoring algorithms; IVhomeCare illustrations and step-by-step support for independent homecare management; and problem-solving partnership guides with healthcare professionals [43]. …”

Section: Methodsmentioning

confidence: 99%

“…These telehealth technologies can be used to engage families in evidence-based interventions for IV catheter care, thus reducing care burden in home settings [33-35]. Our IVhomeCare interventions both provide peer support and address families who lack access to healthcare professional guidance and information about serious but preventable IV problems at home [36]. …”

Section: Related Workmentioning

confidence: 99%

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A Clinical Trail of Translation of Evidence Based Interventions to Mobile Tablets and Illness Specific Internet Sites

Smith

Piamjariyakul

Werkowitch

et al. 2015

Sensor Netw Data Commun

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This article describes a method to translate an evidence based health care intervention to the mobile environment. This translation assisted patient participants to: avoid life threatening infections; monitor emotions and fatigue; keep involved in healthy activities. The mobile technology also decreased costs by reducing for example travel to visit health care providers. Testing of this translation method and its use by comparison groups of patients adds to the knowledge base for assessing technology for its impact on health outcome measures. The challenges and workflow of designing materials for the mobile format are described. Transitioning clinical trial verified interventions, previously provided in person to patients, onto tablet and internet platforms is an important process that must be evaluated. In this study, our evidence based guide’s intravenous (IV) homeCare interventions (IVhomeCare) were delivered via Apple iPad mini™ tablet audiovisual instruction / discussion sessions and on a website. Each iPad audiovisual session (n = 41), included three to five families, a mental health specialist, and healthcare professionals. Patients and their family caregivers readily learned to use the wireless mobile tablets, and the IVhomeCare interventions, as described here, were successfully translated onto these mobile technology platforms. Using Likert scale responses on a questionnaire (1 = not helpful and 5 = very helpful) participants indicated that they gained problem solving skills for home care through iPad group discussion (M = 4.60, SD = 0.60). The firewall protected videoconferencing in real time with multiple healthcare professionals effectively allowed health history taking and visual inspection of the patient’s IV insertion site for signs of infection. Supportive interactions with peer families on videoconferencing were documented during discussions. Discussion topics included low moods, fatigue, infection worry, how to maintain independence, and need for support from others with their same lifelong IV experiences. The visual family interactions, discussions with professionals, and the iPad internet links were highly rated. Mobile distance care delivery can result in saved time and money for both healthcare professionals and families.

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Section: Methodsmentioning

confidence: 99%

Section: Related Workmentioning

confidence: 99%

A Clinical Trail of Translation of Evidence Based Interventions to Mobile Tablets and Illness Specific Internet Sites

Smith

Piamjariyakul

Werkowitch

et al. 2015

Sensor Netw Data Commun

Self Cite

View full text Add to dashboard Cite

show abstract

“…Web destekli eğitim, öğrenenlerin zaman ve mekân sınırlaması olmaksızın öğrenme faaliyetlerini gerçekleştirmesine olanak sağlamaktadır. Geniş sayıda bireylerin oluşturduğu toplumlar, mesafeler arası hareket yoğunluğu, hızlı değişim, bilimsel çalışma olanaklarının ileri teknoloji ile desteklendiği sistemler günümüzün öne çıkan özellikler arasındadır (3). Eğitimdeki tüm bu yeniliklerdeki amaç daha etkili bir eğitim sağlayabilmektir.…”

Section: Introductionunclassified

Halk Sağlığı Alanında Web Tabanlı Çalışmalar: Bir Anabilim Dalı Web Sayfası Deneyimi

Aslan¹,

Metin²,

Pişkin³

et al. 2016

Tıp Eğitimi Dünyası

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Bu çalışmada, Hacettepe Üniversitesi Tıp Fakültesi Halk Sağlığı Anabilim Dalı'na ait http://www.halksagligi.hacettepe.edu.tr/ adresini özellikle öğrenci eğitimlerinde daha aktif ve etkili kullanabilmek, önemli halk sağlığı konuları hakkında tıp öğrencilerine ve topluma ulaşabilecek bilgilendirmeler yapabilmek amaçlanmıştır. Gereç ve Yöntem: Web tasarımı amacıyla Adobe Dreamweaver CS6 yazılımı kullanılmıştır. Site arayüzü güncellenmiş, öğrenci eğitimleri, bilimsel etkinlikler ve topluma yönelik güncel sağlık bilgileri eklenerek, web sitesinin içeriği zenginleştirilmiştir. Bulgular: Bir yıllık izlem sonucunda, toplam ziyaretçi sayısı başlangıçla kıyaslandığında yaklaşık üç katına çıkmıştır. Siteyi ziyaret eden kişilerin %39,7'si 25-34 yaş grubunda, yaklaşık %23'ü ise 35-44 yaş grubundadır. İki aylık izlem süresi içinde toplamda 1696 ziyaretçi, 3726 oturumda 20496 sayfa görüntülemiştir. Ziyaretçilerin %44'ü ilk defa Anabilim Dalı İnternet sitesine erişmişken, %56 tekrar gelen ziyaretçilerdir. Sonuç: Web sayfasına ziyaret sayısı artmaktadır. Sitenin kategorileri de gereksinimlere göre geliştirilmektedir. Çalışmaların ileriye dönük sürdürülmesi planlanmaktadır.

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Sleep and home parenteral nutrition in adults: A narrative review

Dashti

2024

Nut in Clin Prac

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Infusions of home parenteral nutrition (HPN) are often cycled at night coinciding with sleep episodes. Adult consumers of HPN are known to experience poor sleep attributed to frequent awakenings and long durations of wakefulness after falling asleep. Consequently, most consumers do not meet recommendations for sleep duration and quality or daytime napping. The primary underlying pathophysiology resulting in sleep problems is nocturia; however, other factors also exist, including disruptions caused by medical equipment (ie, pump alarms), comorbid conditions, dysglycemia, and medication use. Early guidance on sleep is imperative because of the central role of sleep in physical health and wellbeing, including mitigating complications, such as infection risk, gastrointestinal problems, pain sensitivity, and fatigue. Clinicians should routinely inquire about the sleep of their patients and address factors known to perturb sleep. Nonpharmacologic opportunities to mitigate sleep problems include education on healthy sleep practices (ie, sleep hygiene); changes in infusion schedules, volumes, rates, and equipment; and, possibly, behavioral interventions, which have yet to be examined in this population. Addressing comorbid conditions, such as mood disorders, and nutrition deficiencies may also help. Pharmacologic interventions and technological advancement in HPN delivery are also needed. Research on sleep in this population is considered a priority, yet it remains limited at this time.

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Creating Patient and Family Education Web Sites

Cited by 9 publications

References 39 publications

A Clinical Trail of Translation of Evidence Based Interventions to Mobile Tablets and Illness Specific Internet Sites

A Clinical Trail of Translation of Evidence Based Interventions to Mobile Tablets and Illness Specific Internet Sites

Halk Sağlığı Alanında Web Tabanlı Çalışmalar: Bir Anabilim Dalı Web Sayfası Deneyimi

Sleep and home parenteral nutrition in adults: A narrative review

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