Critical analysis of everyday self‐care decision making in chronic illness

Paterson, Barbara; Russell, Cynthia; Thorne, Sally

doi:10.1046/j.1365-2648.2001.01850.x

Cited by 84 publications

(98 citation statements)

References 44 publications

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“…Despite clear treatment recommendations and participant access to health professionals well versed in medication therapy, only 25% of participants tried acetaminophen therapy during the followup period, while 50% tried NSAIDs. Furthermore, the decision to try analgesic therapy was often made on their own or on the advice of family or friends, suggesting that many may choose to disregard the advice of health professionals in favor of their own preferences or well-being (20). This is further evidenced by the large number of participants who started glucosamine, despite evidence of limited efficacy (21).…”

Section: Discussionmentioning

confidence: 99%

After patients are diagnosed with knee osteoarthritis, what do they do?

Grindrod

Marra

Colley

et al. 2010

Arthritis Care & Research

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Objective. To learn more about the health services and products that patients use after receiving a diagnosis of knee osteoarthritis (OA), as well as the trajectory of their health-related quality of life (HRQOL). Methods. Using a simple screening survey, community pharmacists identified 194 participants with previously undiagnosed knee OA. Of these participants, 190 were confirmed to have OA on further investigation. At baseline and 1, 3, and 6 months after diagnosis, a survey was administered to assess health services, product use, and HRQOL, including the Western Ontario and McMaster Universities Osteoarthritis Index (WOMAC), the Medical Outcomes Study Short Form 36 (SF-36) health survey, the Paper Adaptive Test (PAT-5D-QOL), and the Health Utilities Index Mark 3. Results. With a mean age of 63 years, participants were mostly women, white, and overweight. By 6 months, more than 90% of the participants had visited their family physician to discuss their OA, and more than 50% of participants took either prescription or nonprescription analgesics. In addition, three-quarters of the participants started exercising, one-third initiated activity aids, and one-third had started natural medicine products. At 6 months compared with baseline, significant improvements were seen in the SF-36 physical component summary (P ‫؍‬ 0.001) and bodily pain domain scores (P ‫؍‬ 0.02), the PAT-5D-QOL overall, pain, and usual daily activities scores (P < 0.001 for all), and the WOMAC total, pain, and function scores (P < 0.001 for all). Conclusion. Within 6 months of receiving a diagnosis of knee OA, participants made several lifestyle interventions, often without the advice of a health professional, and saw improvements in their pain and function.

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Section: Discussionmentioning

confidence: 99%

After patients are diagnosed with knee osteoarthritis, what do they do?

Grindrod

Marra

Colley

et al. 2010

Arthritis Care & Research

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“…L'observance du traitement situe le professionnel de la santé comme l'expert disposant du savoir nécessaire à l'expérience de santé (Glasgow, Davis, Funnell et Beck, 2003;Paterson, 2001;Paterson, Russell et Thorne, 2001;Payle et Keeley, 1998;Sofaer, 1999). Ce savoir est considéré et évalué à l'extérieur de la personne (Thorne et Paterson, 1998).…”

Section: Observance Du Traitementunclassified

“…Les soins demeurent autogérés ou, tout au moins, restent sous le contrôle de la personne soignée qu'ils soient, ou non, directement prodigués par elle. La perspective est orientée vers la personne qui est considérée comme l'experte de sa santé (Bournes, 2000;Michaud, 2000;Paterson, Russell et Thorne, 2001). La personne est en mesure de prendre elle-même des décisions pour la gestion de sa santé en s'appuyant sur ce qu'elle considère comme étant le mieux pour elle, compte tenu de sa situation de santé et de vie.…”

Section: Définition De L'autogestion De La Santéunclassified

“…Au cours du processus décisionnel, elle tient compte de ses divers objectifs et attentes souvent contradictoires. Elle intègre aussi ses représentations ainsi que l'influence de son contexte socioculturel et de processus psychologiques complexes qui déterminent la façon dont elle construit la signification de sa prise de décision (Garro, cité par Paterson et al, 2001;Loignon, 2006). De plus, la prise de décision est un processus impérieux, fréquemment renouvelé, qui s'appuie sur une connaissance qui se développe avec l'expérience de la maladie chronique , expérience dont les dimensions sociales sont incontournables (Loignon, 2006).…”

Section: Définition De L'autogestion De La Santéunclassified

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Autogestion de la santé et humanisme en sciences infirmières

Loiselle

Michaud

2010

rum

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La maladie chronique fait partie de la vie de nombreux Canadiens. Ceux-ci doivent composer avec les exigences que comporte la gestion de leurs problèmes de santé tout en pratiquant leurs activités de la vie quotidienne. Plus particulièrement, la personne qui souffre d’insuffisance rénale terminale doit s’astreindre à un régime thérapeutique exigeant à cause de la capacité limitée de l’hémodialyse à remplacer le rein. Elle doit prendre des décisions et poser des actions en lien avec son alimentation, sa médication, ses activités sociales ou familiales ainsi que sur la surveillance de son état de santé. Pour intervenir auprès de cette clientèle, nous proposons de délaisser les perspectives d’observance ou d’adhésion aux traitements ainsi que d’autogestion de la maladie chronique pour adopter une perspective d’autogestion de la santé qui est plus cohérente avec une vision humaniste des soins. Cette proposition s’appuie sur des bases philosophique, empirique et clinique, en prenant des exemples tirés des soins des personnes souffrant d’insuffisance rénale chronique terminale. Elle aura pour conséquence le mieux-être des personnes soignées et des personnes soignantes.Living with chronic illness is part of everyday life for many Canadians. They must manage their health problems while continuing their normal activities of daily living. This is especially true for individuals living with end-stage kidney disease because the therapeutic regimen is demanding due to the limited capacity of haemodialysis to replace kidney function. Those individuals must make decisions about diet, medication, family and social activities while also monitoring their health status. In order to work with this clientele, we suggest a different focus away from observance or compliance with treatment and self management of chronic illness. We propose a model of self management of health which will be more in tune with a humanistic perspective on care. This model is based on philosophical, empirical and clinical evidence drawn from care experiences with people living with chronic end-stage kidney disease. It should improve the well-being of the clientele as well as that of the caregivers, including the nurses

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“…Importantly, McKivergin et al (1996) acknowledge the value and necessity of creating an environment that supports self-care, while other authors contend that self-care involves effective decision making (Bickley 1998;Paterson et al 2001). Steeped in self-affirming and self-loving actions, self-care is integral to self-transcendence.…”

Section: Healingmentioning

confidence: 99%

A Transpersonal Theory of Healing Following Youth Suicide

Kalischuk

Nixon

2009

Int J Ment Health Addiction

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Youth suicide is a complex and perplexing public health problem. This article presents a brief overview of related literature, describes a transpersonal theory of healing following youth suicide, and provides practice implications. Individual healing is conceptually described as a transpersonal journey characterized by the inter-relationships among three healing patterns: Self-reflection (thinking), Self-care (acting), and Selftranscendence (being). During our interactions with survivors, as professionals, we need to be mindful that we do not inadvertently and prematurely abort the self-transcendent healing pattern. One way of facilitating healing is to be fully present with survivors in each and every moment.

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Critical analysis of everyday self‐care decision making in chronic illness

Abstract: The paper concludes with a call for a new conceptualization of self-care decision making in chronic illness which sufficiently addresses the unique and complex nature of such decisions.

Cited by 84 publications

References 44 publications

After patients are diagnosed with knee osteoarthritis, what do they do?

After patients are diagnosed with knee osteoarthritis, what do they do?

Autogestion de la santé et humanisme en sciences infirmières

A Transpersonal Theory of Healing Following Youth Suicide

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