Critical elements and outcomes of a residential family-based intervention for aphasia caregivers

Fox, Lynn; Poulsen, Susan B.; Bawden, Kelly Clark; Packard, Darren

doi:10.1080/02687030444000525

Cited by 31 publications

(25 citation statements)

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“…Stroke patients with communication impairments are frequently excluded from participation in stroke research, 57 a finding supported by the results of this review, in which only three of the 21 studies actively involved, or were specifically focused on, participants with communication impairments 28,45,46 . However, a further four reported including people with aphasia 30,44,50,53 .…”

Section: Resultsmentioning

confidence: 58%

“…Of the 21 studies, 12 used qualitative methods, i.e. phenomenology, 43 grounded theory, 11,18,44 ethnography, 45 focus groups, 46 descriptive case study, 47 a generic qualitative methodology; 13,20,30,48,49 and nine used quantitative methods, i.e. RCT, 41,42 prospective cohort study, 50,51 case–control, 52–54 cross‐sectional survey 55 and psychometric testing 28,56 …”

Section: Resultsmentioning

confidence: 99%

“…Only one study was conducted solely in an acute care setting, 52 four studies were in rehabilitation units; 11,18,48,50 four in a combination of hospital and community settings, 13,42,51,53 and 12 were conducted in community settings 20,22,28,30,41–43,45–47,54–56 . It is hypothesized that this tendency to involve patients as research participants once they are out of the acute phase may reflect the patient‐centred topic of the review.…”

Section: Resultsmentioning

confidence: 99%

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Defining and measuring patient‐centred care: an example from a mixed‐methods systematic review of the stroke literature

Lawrence

Kinn²

2011

Health Expectations

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Section: Resultsmentioning

confidence: 58%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

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Defining and measuring patient‐centred care: an example from a mixed‐methods systematic review of the stroke literature

Lawrence

Kinn²

2011

Health Expectations

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“…These programs involving family members have targeted education, emotional support, and/or communication skills training as part of their intervention [13,14]. Despite the known consequences of aphasia on family members and the importance of providing family-centred care post-stroke [15], family member participation in intervention is limited as rehabilitation programs often focus on the person with aphasia with little emphasis on the consequences of aphasia on family members [16,17].…”

Section: Implications For Rehabilitationmentioning

confidence: 98%

Third-party disability in family members of people with aphasia: a systematic review

Grawburg

Howe

Worrall

et al. 2013

Disability and Rehabilitation

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“…159,160 Interviews revealed changed interpersonal relationships, loss of autonomy, a need for respite and support, and a need to process their own grief. 6,54,[161][162][163] Given the impact aphasia has on family members, it is important to gain insight into family members' perceptions of an ICAP as well because ICAPS typically include the family member and, to some extent, address their needs too.…”

Section: Introductionmentioning

confidence: 99%

Outcomes of an Intensive Comprehensive Aphasia Program

Babbitt¹

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Intensive comprehensive aphasia programs (ICAP) have increased over the last decade in the US and abroad. The increase in the number of clinical programs has outpaced the research that is necessary to establish the efficacy and effectiveness of these specialized treatment programs. The ICAP model incorporates principles from neuroplasticity, that is, intensive treatment provides a platform for the massed practice and repetition required to change the brain. It also incorporates comprehensive treatment that addresses not only impairment-based language deficits but also personal goals related to participation.Programs which offer intensive comprehensive treatment can provide up to 120 hours of treatment over several weeks (e.g., six hours a day, five days a week for four weeks). ICAPs are different from other types of aphasia services which generally provide two to three hours of therapy a week. This thesis examined one ICAP in depth to describe the structure, process, and outcomes using Donabedian's model of health care evaluation. This thesis also described the experiences of the ICAP from the perspectives of the primary stakeholders.Study One (Chapter Two) was a retrospective quantitative study using behavioral measures from an existing database that documented the outcomes of participants with aphasia. It found that first-time participants improved significantly in impairment-and participationbased measures, demonstrating moderate to large effect sizes. Participant characteristics were examined to determine if improvements were related to age, time post-onset, or type and severity of aphasia. None of these factors had an impact on the amount of change measured. Given that some participants did not make significant gains on a primary outcome measure, the Western Aphasia Battery -Revised Aphasia Quotient (WAB-R AQ), Study Two (Chapter Three) examined whether participant characteristics at baseline could predict who would make significant gains on the WAB-R AQ. Age and months post-onset were significantly different between the responder and the non-responder groups. Those who showed most gains on average were younger and a longer time post-onset. A logistic regression was performed and results indicated that only age (younger participants) predicted who would respond to treatment. Time post-onset, type and severity of aphasia, naming, non-verbal cognition, and communication confidence did not show significance in a predictive model. Studies Three and Four were qualitative studies involving interviews with therapists (Chapter Four) and people with aphasia and their families (Chapter Five). Both studies were 3 conducted using a phenomenological approach which allowed for the interviewees to describe their experiences in a semi-structured interview. The clinicians described the intensity of the therapy, the rewards, and challenges of the program. Therapists also considered that the ICAP model of service delivery had several positive benefits for them, but acknowledged that the intensity of therapy was challe...

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Critical elements and outcomes of a residential family-based intervention for aphasia caregivers

Cited by 31 publications

References 0 publications

Defining and measuring patient‐centred care: an example from a mixed‐methods systematic review of the stroke literature

Defining and measuring patient‐centred care: an example from a mixed‐methods systematic review of the stroke literature

Third-party disability in family members of people with aphasia: a systematic review

Outcomes of an Intensive Comprehensive Aphasia Program

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