Cross-sectional survey of complementary and alternative medicine used in Oregon and Southwest Washington to treat multiple sclerosis: A 17-Year update

Silbermann, Elizabeth; Senders, Angela; Wooliscroft, Lindsey; Rice, Jessica; Cameron, Michelle; Waslo, Carin S.; Orban, Anna; Chase, Emma; Yadav, Vijayshree; Bourdette, Dennis; Spain, Rebecca

doi:10.1016/j.msard.2020.102041

Cited by 13 publications

(10 citation statements)

References 32 publications

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“…Long-term maintenance of behaviours was restricted to most dietary modifications: Omega-3 and vitamin D supplement use and dairy consumption. These findings align with studies showing 67-81% of pwMS use dietary supplements and 37-41% follow specific diets [40]. The maintenance of behaviours that utilised a physical component-seeking sun to increase vitamin D, meditation practice, and physical activity-were not associated with health information engagement.…”

Section: Discussionsupporting

confidence: 83%

Greater Engagement with Health Information Is Associated with Adoption and Maintenance of Healthy Lifestyle Behaviours in People with MS

Lin

Jelinek

et al. 2020

IJERPH

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Health communication offers an important means for patients to make informed decisions for illness self-management. We assessed how the level of engagement with selected health information at baseline is associated with the adoption and maintenance of lifestyle behaviours at a 5-year follow-up in people with multiple sclerosis (MS). Non-engagers were compared to engagers of information delivered online and print (medium), and with engagers who additionally attended a live-in workshop (high). Engagement was assessed against lifestyle behaviours by log-binomial regression. Information engagers had higher education, and were less likely to have severe disability, clinically significant fatigue, or obesity. Medium and high baseline engagement was associated with adopting healthy behaviours for omega 3 supplementation (RR = 1.70; 95%CI: 1.02–2.84), physical activity (RR = 2.16; 95%CI: 1.03–4.55), and dairy non-consumption (RR = 3.98; 95%CI: 1.85–8.56) at 5 years; associations were stronger among high engagers. Only high baseline engagement was associated with maintaining behaviours from baseline to 5 years, specifically for omega-3 (RR = 1.26; 95%CI: 1.06–1.49) and vitamin D supplementation (RR = 1.26; 95%CI: 1.04–1.54) and dairy non-consumption (RR = 1.47; 95%CI: 1.03–2.10). Health communication that includes face-to-face information delivery and practical tools for implementation in daily living may be optimal for adopting and maintaining lifestyle behaviours in people with MS.

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Section: Discussionsupporting

confidence: 83%

Greater Engagement with Health Information Is Associated with Adoption and Maintenance of Healthy Lifestyle Behaviours in People with MS

Lin

Jelinek

et al. 2020

IJERPH

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“…Up to 30% of the general adult and 80% of autoimmune disease populations take over-the-counter supplements, 22 the adverse events of which may not surface without the scrutiny of trials requiring US Food and Drug Administration oversight and careful monitoring, as occurred herein. LA use should be interrogated in patients with new-onset proteinuria and/or biopsy-proven NELL1-MN, regardless of malignancy status; if present, our observations suggest that LA discontinuation and supportive care lead to disease remission.…”

Section: Discussionmentioning

confidence: 95%

Lipoic acid supplementation associated with neural epidermal growth factor-like 1 (NELL1)–associated membranous nephropathy

Spain

Andeen

Gibson

et al. 2021

Kidney International

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“…Use of nonprescription dietary supplements is reported in up to 80% of patients with MS for management of MS and MS-related symptoms. 79 Dietary ingredients are defined by the FDA as "a vitamin; mineral; herb or other botanical; amino acid; dietary substance …. [to increase] total daily intake; or a concentrate, metabolite, constituent, extract, or combinations of [these]."…”

Section: Dietary Supplements Are Popular But Have Low Evidence and Li...mentioning

confidence: 99%

Approach to Symptom Management in Multiple Sclerosis With a Focus on Wellness

Spain¹

2022

CONTINUUM: Lifelong Learning in Neurology

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PURPOSE OF REVIEW: This article describes an approach to symptom management in people with multiple sclerosis (MS), emphasizing healthy lifestyles and evidence-based treatments.RECENT FINDINGS: Growing evidence supports healthy nutrition, exercise, and emotional well-being (wellness) as foundational for MS symptom management. A stepped approach starts with healthy lifestyle practices and adds nonpharmacologic, pharmacologic, and procedural-based therapies balancing levels of evidence, risks, and potential benefits. The growing availability of cannabis and widespread use of dietary supplements in self-management of MS symptoms raise both therapeutic promises and challenges. SUMMARY: Wellness approaches for MS symptom management foster self-reliance and should be reinforced early and often. Recognition of symptom clusters and medical comorbidities helps limit polypharmacy.

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Cross-sectional survey of complementary and alternative medicine used in Oregon and Southwest Washington to treat multiple sclerosis: A 17-Year update

Cited by 13 publications

References 32 publications

Greater Engagement with Health Information Is Associated with Adoption and Maintenance of Healthy Lifestyle Behaviours in People with MS

Greater Engagement with Health Information Is Associated with Adoption and Maintenance of Healthy Lifestyle Behaviours in People with MS

Lipoic acid supplementation associated with neural epidermal growth factor-like 1 (NELL1)–associated membranous nephropathy

Approach to Symptom Management in Multiple Sclerosis With a Focus on Wellness

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