Cross sectional survey of patients' satisfaction with information about cancer

Jones, Rob; Pearson, Janne; McGregor, Sandra; Wh, Gilmour; Jm, Atkinson; Barrett, Ann; Aj, Cawsey; McEwen, James

doi:10.1136/bmj.319.7219.1247

Cited by 96 publications

(83 citation statements)

References 5 publications

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“…In one study, 48% of persons with cancer reported that they had insufficient information; 76 in another survey, 20% were not satisfied with the information given. 77 Two surveys reported that 87% of patients stated that they want as much information as possible, 4,78 and almost 54% of these patients did not feel that their physicians and other health care workers provided them with adequate information. 4 In another study, 39% of persons with breast cancer indicated that they "wished that they had help with knowing what questions to ask."…”

Section: Why Are Patients Turning To Web Information?mentioning

confidence: 99%

The Impact of the Internet on Cancer Outcomes

Eysenbach

2003

CA: A Cancer Journal for Clinicians

508

447

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Each day, more than 12.5 million health-related computer searches are conducted on the World Wide Web. Based on a meta-analysis of 24 published surveys, the author estimates that in the developed world, about 39% of persons with cancer are using the Internet, and approximately 2.3 million persons living with cancer worldwide are online. In addition, 15%to 20% of persons with cancer use the Internet "indirectly" through family and friends. Based on a comprehensive review of the literature, the available evidence on how persons with cancer are using the Internet and the effect of Internet use on persons with cancer is summarized. The author distinguishes four areas of Internet use: communication (electronic mail), community (virtual support groups), content (health information on the World Wide Web), and e-commerce. A conceptual framework summarizing the factors involved in a possible link between Internet use and cancer outcomes is presented, and future areas for research are highlighted. (CA Cancer J Clin 2003;53:356 -371.)

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Section: Why Are Patients Turning To Web Information?mentioning

confidence: 99%

The Impact of the Internet on Cancer Outcomes

Eysenbach

2003

CA: A Cancer Journal for Clinicians

508

447

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“…This is evidenced by the growing interest in and implications of patient satisfaction and also by the increase in malpractice suits. [6][7][8] The aim of this study is to describe the basic sociodemographic and clinical characteristics of this specific subgroup of patients and to explore their motives for second-opinion seeking as related to the following patient variables: (1) anxiety disposition, (2) (dis)satisfaction with the first specialist, (3) preference for decision participation, (4) need for more information, and (5) hope for and expectation of the second opinion being different from the first opinion.…”

mentioning

confidence: 99%

Cancer Patients Seeking a Second Surgical Opinion: Results of a Study on Motives, Needs, and Expectations

Mellink

Dulmen

Wiggers

et al. 2003

JCO

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Purpose: To explore the sociodemographic and clinical characteristics of cancer patients seeking a second-opinion consultation and to analyze their second opinion-related motives, needs, and expectations.Patients and Methods: In 212 consecutive patients seeking a second opinion at the Surgical Oncology Outpatient Clinic, satisfaction with the first specialist, motivation for the second opinion, need for information, preference for decision participation, and hope for and expectation of a different second opinion were assessed with a questionnaire.Results: The mean age was 53 years. Most patients were women (82%), of whom 76% were diagnosed with breast cancer. Half of the patients (51%) had a low educational level. The majority of patients (62%) only had internal motives for second-opinion seeking associated with the need for reassurance and more certainty, whereas a substantial minority of patients (38%) also had external motives related to negative experiences or unfulfilled needs. The externally motivated patients had a higher anxiety disposition, were less satisfied with their first specialist, preferred a more active role in medical decision making, and more often hoped for and expected a different second opinion.Conclusion: Motives for second-opinion consultations differ greatly. Understanding the difference between internal and external motivation is necessary to develop strategies to prevent unnecessary second-opinion seeking. Additional studies are warranted to evaluate the objective and subjective outcomes of second-opinion consultations.

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“…However, study findings consistently suggest that clinicians often underestimate patients' information needs [8,[66][67][68][69]. A recent study of the use of information technology found that only 15 % of the UK population of older people (i.e.…”

Section: Preferences For Format and Media Of Informationmentioning

confidence: 99%

Information Needs of Older Women Faced with a Choice of Primary Endocrine Therapy or Surgery for Early-Stage Breast Cancer: A Literature Review

Burton

Collins

Caldon

et al. 2014

Curr Breast Cancer Rep

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W. R. (2014). Information needs of older women faced with a choice of primary endocrine therapy or surgery for early-stage breast cancer : a literature review. Current Breast Cancer Reports, 6 (3), 235-244. Abstract Primary endocrine therapy (PET) as an alternative to surgery is widely used in the UK for the treatment of older women with operable breast cancer. For women over 70 it has equivalent overall survival to surgery, although local control rates may be inferior. There are trade-offs to be made in deciding between surgery and PET. There has been little research to investigate the information needs of older women or the involvement in decision making they wish to have when faced with this breast-cancer treatment decision. This review examines the information needs of older women (>65 years) regarding the use of surgery or PET for treating operable primary breast cancer, and identifies their preferred format and media for the presentation of this information. The preference for involvement in treatment decision-making among this group will also be considered. Copyright and re-use policy

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Cross sectional survey of patients' satisfaction with information about cancer

Cited by 96 publications

References 5 publications

The Impact of the Internet on Cancer Outcomes

The Impact of the Internet on Cancer Outcomes

Cancer Patients Seeking a Second Surgical Opinion: Results of a Study on Motives, Needs, and Expectations

Information Needs of Older Women Faced with a Choice of Primary Endocrine Therapy or Surgery for Early-Stage Breast Cancer: A Literature Review

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