Cross‐sectional survey of the replacement of the Japanese term for dementia: Did it reduce discomfort in family members?

Yamanaka, Katsuo; Todo, Naoya; Yoshizawa, Mutsumi; Uchida, Tatsuji

doi:10.1002/brb3.2012

Cited by 3 publications

(4 citation statements)

References 16 publications

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“…It does appear that the present Japanese term "Ninchi-sho" (neurocognitive disorder) does at least make family members of people with dementia feel less discomfort than that the previous term "Chiho" (silly or idiot). 29 Certainly, the small minority of our sample who adopted terms related to being crazy or stupid is concerning.…”

Section: Discussionmentioning

confidence: 89%

Awareness, attitudes, and beliefs of dementia in Indonesia

Farina,

Hassan,

Theresia

et al. 2024

Alz & Dem Diag Ass & Dis Mo

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INTRODUCTIONTackling dementia stigma is a policy priority. In Indonesia, we have little insight into the general public's knowledge and attitudes about dementia.METHODSCross‐sectional study of 4430 Indonesian adults recruited from Jakarta and North Sumatra, Indonesia. Measures included dementia knowledge and attitudes.RESULTSA total of 86.3% (n = 3,803) of adults had not heard of the terms dementia or Alzheimer's disease, and commonly viewed dementia as a normal part of aging. Being older, incorrect knowledge about etiology, not having heard of the terms dementia and/or Alzheimer's disease, having less than primary education, and being from North Sumatra were associated with more negative attitudes (p‐values < 0.05).DISCUSSIONMisconceptions and lack of awareness about dementia are common in Indonesia. Attitudes tended not to be negative, but our research highlights factors associated with dementia attitudes. Future research should use this information to better tailor and target potential anti‐stigma strategies.Highlights Most Indonesians had not heard of the terms dementia and/or Alzheimer's disease and thought it was caused by normal aging. The majority of participants held mixed or positive attitudes towards dementia. A series of demographic factors alongside poor awareness were associated with negative attitudes towards dementia.

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Section: Discussionmentioning

confidence: 89%

Awareness, attitudes, and beliefs of dementia in Indonesia

Farina,

Hassan,

Theresia

et al. 2024

Alz & Dem Diag Ass & Dis Mo

View full text Add to dashboard Cite

show abstract

“…We selected these stakeholders because they have experience and familiarity with the condition and may be particularly sensitive and attentive to the use and consequences of stigmatizing language. 13 We did not conduct a linguistic analysis but sought to identify and discuss the use of stigmatizing language.…”

Section: Stigmatizing Language and Dementiamentioning

confidence: 99%

“…This change was followed by several East-Asian countries replacing the local terms for dementia. In China, “chi dai zheng,” meaning insane and idiotic, was replaced by “ren zhi zhang ai zheng,” meaning cognitive disorder, 12 and in Japan the term “chiho,” meaning dull, was replaced by “ninch-sho,” meaning neurocognitive disorder 13 . Following criticism of the use of stigmatizing language when talking about dementia, 14 and adhering to the initiative of using person-first language in other medical conditions, several countries, including Australia, Canada, Ireland, and the United States, 15 developed guidelines suggesting the discontinuation of derogatory and offensive language for dementia.…”

Section: Stigmatizing Languagementioning

confidence: 99%

“…To answer this question, we examined the language used by 3 groups: people in a pre-stage of dementia with a diagnosis of mild neurocognitive disorder (MND), their family members, and family caregivers of people with AD. We selected these stakeholders because they have experience and familiarity with the condition and may be particularly sensitive and attentive to the use and consequences of stigmatizing language 13 . We did not conduct a linguistic analysis but sought to identify and discuss the use of stigmatizing language.…”

Section: Stigmatizing Languagementioning

confidence: 99%

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Identifying Stigmatizing Language Used by Israelis and Germans With a Mild Neurocognitive Disorder, Their Relatives, and Caregivers of People With Alzheimer’s Disease

Werner,

Ulitsa,

Alpinar-Sencan

et al. 2024

Alzheimer Disease &Amp; Associated Disorders

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Objectives: The purpose of the study was to examine and compare the dementia-related discourse and language used by people with mild neurocognitive disorder (MND), their family members, and family caregivers of people with Alzheimer’s disease in Israel and Germany. Design: This secondary qualitative analysis included focus groups and semistructured interviews. Thematic analysis was used to reveal the main discourses and stigmatic language used regarding dementia and people with dementia. Setting: Israeli and German stakeholders. Participants: Forty-four Israeli and 44 German participants: 28 people with MND, 20 family members of people with MND, and 40 family caregivers of people with Alzheimer’s disease. Results: Two main discourses were identified: the tragedy and the biomedical discourse. The tragedy discourse included several subthemes: “Dementia as the worst-case scenario,” “Nothing can be done about dementia,” and “People with dementia are not human.” The biomedical discourse stressed pathologic aspects of the condition. Similarities and differences were found between Israeli and German participants. Conclusions: The study indicates that, despite culture and language differences, the use of stigmatic discourse and stigmatizing language is common among people with close exposure to dementia in Israel and Germany. Efforts should be increased to develop a person-centered and dementia-friendly language.

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Demystifying the Dementia Divide

Ione

2024

Dementia Grief Therapy

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Cross‐sectional survey of the replacement of the Japanese term for dementia: Did it reduce discomfort in family members?

Abstract: This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.

Cited by 3 publications

References 16 publications

Awareness, attitudes, and beliefs of dementia in Indonesia

Awareness, attitudes, and beliefs of dementia in Indonesia

Identifying Stigmatizing Language Used by Israelis and Germans With a Mild Neurocognitive Disorder, Their Relatives, and Caregivers of People With Alzheimer’s Disease

Demystifying the Dementia Divide

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