Cultural adaptation and evaluation of Namaste Care program for home-dwelling persons with dementia and their caregivers in China: a mixed-methods study protocol

Abstract

Background: The Namaste Care program is an evidence-based intervention proven effective for individuals with moderate to advanced dementia and their caregivers. To enhance its efficacy, the program will be adapted to align with Chinese culture. Methods: A multi-stage, mixed-methods design comprising three stages and eleven steps will be implemented, incorporating comprehensive process evaluations. Outcome measures will include the quality of life and self-perceived burden for persons with dementia, as well as the quality of life, caregiving burden, caregiving capacity, attitudes towards caregiving, and positive perceptions of dementia for caregivers. These outcomes will be evaluated through a combination of qualitative feedback and specific quantitative measures collected at baseline (T0), immediately post-intervention(T1), and three-month post-intervention (T2). Linear mixed effects models will be employed to analyze the effects of intervention. Qualitative interviews will explore caregivers’ experiences, and thematic analysis will assess the acceptability of the intervention. Discussion: A culturally adapted Namaste Care program is essential for implementing practical adjustments that accommodate local communities and cultural contexts.The expected outcomes will enhance the knowledge of non-pharmacological interventions for dementia care within the home setting. Trial registration: This study was registered on 29 August 2023 at https://www.chictr.org.cn (identifier: ChiCTR2300075195).