Cultural adaptation of meaning-centered psychotherapy for latino families: a protocol

Abstract

IntroductionLiterature suggests couple-based interventions that target quality of life and communication can lead to positive outcomes for patients with cancer and their partners. Nevertheless, to date, an intervention to address the needs of Latino families coping with advanced cancer has not been developed. Meta-analytic evidence suggests that culturally adapted evidenced-based intervention targeting a specific cultural group is four times more effective. Our goal is to culturally adapt a novel psychosocial intervention protocol entitled ‘Caregivers-Patients Support to Latinx coping advanced-cancer’ (CASA). We hypothesised that combine two evidence-based interventions and adapting them, we will sustain a sense of meaning and improving communication as patients approach the end of life among the patient–caregiver dyad.Methods and analysisTo culturally adapt CASA, we will follow an innovative hybrid research framework that combines elements of an efficacy model and best practices from the ecological validity model, adaptation process model and intervention mapping. As a first step, we adapt a novel psychosocial intervention protocol entitled protocol entitled ‘Caregivers-Patients Support to Latinx coping advanced-cancer’ (CASA). The initial CASA protocol integrates two empirically based interventions, meaning-centred psychotherapy and couple communication skills training. This is an exploratory and prepilot study, and it is not necessary for a size calculation. However, based on recommendations for exploratory studies of this nature, a priori size of 114 is selected. We will receive CASA protocol feedback (phase 1b: refine) by conducting 114 questionnaires and 15 semistructured interviews with patients with advanced cancer and their caregivers. The primary outcomes of this study will be identifying the foundational information needed to further the develop the CASA (phase IIa: proof-of-concept and phase IIb: pilot study).Ethics and disseminationThe Institutional Review Board of Ponce Research Institute approved the study protocol #1907017527A002. Results will be disseminated through peer-reviewed publications.

Psychosocial Intervention Cultural Adaptation for Latinx Patients and Caregivers Coping with Advanced Cancer

“…The text was independently reviewed, followed by consensus meetings to discuss every intervention session, provide feedback, and discuss further modifications until a consensus was reached. The most accepted content of Caregivers-Patients Support to Latinx coping advanced-cancer (CASA) was included [ 17 ]. The cultural expert (NTB) and collaborators (CP, LR, and KS) conducted the integration of the qualitative findings to develop the CASA fixed in Table 5 .…”

“…The semi-structured interview analyses, integration, and interpretation were completed in Spanish. A coding dictionary was developed and defined a priori, following standard deductive analysis procedures [ 5 , 6 , 16 , 17 ], which included developing a structured coding matrix with categories, codes, and definitions [ 5 , 6 , 16 , 17 ]. The qualitative codes used for the interviews included high, moderate, low, and neutral acceptance.…”

“…Using the report and query functions of ATLAS.ti, the qualitative analysts (CP, LR, and KS) independently coded the transcripts and discussed divergence and convergence points [ 5 , 6 , 16 , 17 ]. The qualitative coders then coded the remaining transcriptions using the coding dictionary, and meetings were held to reach a consensus about the applied codes.…”

“…Reliability was conducted through team-based consensus building. The team’s previous publications include more details about the methodology [ 15 , 16 , 17 , 18 ]. All investigators had expertise in qualitative analysis, and the last author moderated these discussions [ 15 , 16 , 17 , 18 ].…”

“…The team’s previous publications include more details about the methodology [ 15 , 16 , 17 , 18 ]. All investigators had expertise in qualitative analysis, and the last author moderated these discussions [ 15 , 16 , 17 , 18 ].…”