Cultural targeting and tailoring of shared decision making technology: A theoretical framework for improving the effectiveness of patient decision aids in culturally diverse groups

Alden, Dana L.; Friend, John M.; Schapira, Marilyn M.; Stiggelbout, Anne M.

doi:10.1016/j.socscimed.2014.01.002

Cited by 78 publications

(76 citation statements)

References 53 publications

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“…Mobile applications could also increase health disparities if members of vulnerable populations lack the health literacy skills to take full advantage of the risk/benefit information they offer, lack knowledge of how to use the app, or simply lack access to them [21,32]. In rural areas worldwide, only 67% of the population has mobile network coverage [33].…”

Section: Perils Of Mhealth In Shared Decision Makingmentioning

confidence: 99%

Are mobile health applications useful for supporting shared decision making in diagnostic and treatment decisions?

Rahimi¹,

Menear²,

Robitaille

2017

Global Health Action

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Mobile health (mHealth) applications intended to support shared decision making in diagnostic and treatment decisions are increasingly available. In this paper, we discuss some recent studies on mHealth applications with relevance to shared decision making. We discuss the potential advantages and disadvantages of using mHealth in shared decision making in various contexts, and suggest some directions for future research in this quickly expanding field.

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Section: Perils Of Mhealth In Shared Decision Makingmentioning

confidence: 99%

Are mobile health applications useful for supporting shared decision making in diagnostic and treatment decisions?

Rahimi¹,

Menear²,

Robitaille

2017

Global Health Action

View full text Add to dashboard Cite

show abstract

“…It is generally acknowledged that risks are social constructs, and that risk perception and risk communication therefore vary according to social circumstances, experiences, and cultural presuppositions of individuals (Adelswärd & Sachs 1998, Alden et al 2014, Collins & Street 2009). Historically, risk communication reseach focused on "the flow of information and risk evaluations back and forth between academic experts, regulatory practitioners, interest groups, and the general public" (Leiss 1996: 86).…”

Section: General Aspects Of Risk Communicationmentioning

confidence: 99%

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mentioning

confidence: 99%

“…Los autores de este ámbito están de acuerdo con que los riesgos son variables sociales que se construyen discursivamente (Ädelsward & Sachs 1998, Alden et al 2014, Collins & Street 2009). Sin embargo, en las publicaciones más importantes en este campo se hace referencia casi exclusivamente a la comunicación monolingüe y escrita.…”

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“…Özet: Sağlık işlerindeki araştırmalara göre risk iletişimi genel olarak kabul edilen bir durum ve yazarlar da bu risklerin toplumsal boyutta olmaları hakkında çoğunlukla hemfikir (Ädelsward & Sachs 1998, Alden et al 2014, Collins & Street 2009). Yine de bu alandaki önemli yayınlar (örneğin Bennett 2010) hemen hemen sadece tek dilliliğe ve yazılı olan iletişime dayanıyor.…”

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Interpreting risks. Medical complications in interpreter-mediated doctor-patient communication

Meyer

Bührig²

2014

European Journal of Applied Linguistics

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Risk communication is an established topic in health research, and authors widely agree that risks are socially constructed entities (Ädelsward & Sachs 1998, Alden et al 2014, Collins & Street 2009). However, the fact that important contributions in this field, such as Bennett (2010), almost exclusively refer to monolingual and written communication shows that there is still work to do. If risks are socially and discursively constructed, then cultural and linguistic barriers must have an impact on how risk information is presented to, and processed by a culturally and linguistically diverse clientele.In this paper, we investigate how doctors and ad hoc-interpreters communicate risk information in monolingual and multilingual briefings for informed consent, and, more specifically, how the seriousness and frequency of risks is constructed. The results show that medical doctors are often not concerned with the stochastic and legal aspects of risk information. Rather, risk information is often communicated as being an obligation that has minor importance for the decision-making of the patient. Ad hoc-interpreters struggle with modal expressions as well as with the embedding of risk information into the briefing.

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Transforming Atrial Fibrillation Research to Integrate Social Determinants of Health

Benjamin

Thomas

et al. 2023

JAMA Cardiol

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ImportanceOnly modest attention has been paid to the contributions of social determinants of health to atrial fibrillation (AF) risk factors, diagnosis, symptoms, management, and outcomes. The diagnosis of AF provides unique challenges exacerbated by the arrhythmia’s often paroxysmal nature and individuals’ disparate access to health care and technologies that facilitate detection. Social determinants of health affect access to care and management decisions for AF, increasing the likelihood of adverse outcomes among individuals who experience systemic disadvantages. Developing effective approaches to address modifiable social determinants of health requires research to eliminate the substantive inequities in health care delivery and outcomes in AF.ObservationsThe National Heart, Lung, and Blood Institute convened an expert panel to identify major knowledge gaps and research opportunities in the field of social determinants of AF. The workshop addressed the following social determinants: (1) socioeconomic status and access to care; (2) health literacy; (3) race, ethnicity, and racism; (4) sex and gender; (5) shared decision-making in systemically disadvantaged populations; and (6) place, including rurality, neighborhood, and community. Many individuals with AF have multiple adverse social determinants, which may cluster in the individual and in systemically disadvantaged places (eg, rural locations, urban neighborhoods). Cumulative disadvantages may accumulate over the life course and contribute to inequities in the diagnosis, management, and outcomes in AF.Conclusions and RelevanceWorkshop participants identified multiple critical research questions and approaches to catalyze social determinants of health research that address the distinctive aspects of AF. The long-term aspiration of this work is to eradicate the substantive inequities in AF diagnosis, management, and outcomes across populations.

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Cultural targeting and tailoring of shared decision making technology: A theoretical framework for improving the effectiveness of patient decision aids in culturally diverse groups

Cited by 78 publications

References 53 publications

Are mobile health applications useful for supporting shared decision making in diagnostic and treatment decisions?

Are mobile health applications useful for supporting shared decision making in diagnostic and treatment decisions?

Interpreting risks. Medical complications in interpreter-mediated doctor-patient communication

Transforming Atrial Fibrillation Research to Integrate Social Determinants of Health

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