Culture and the understanding of advanced heart failure: A mixed-methods systematic review

Alassoud, Bahaa; Johnston, Bridget; Hogg, Karen

doi:10.1016/j.colegn.2020.02.008

Cited by 7 publications

(6 citation statements)

References 51 publications

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“…In a systematic review, Alassoud et al. [ 27 ] confirm the current study’s findings that patients from minority ethnic groups hold different beliefs about illness and its treatment. Other research [ 33 ] describes how diverse cultural beliefs, language differences, and limited time resources influence health care providers’ perceptions of and attitudes toward migrants.…”

Section: Discussionsupporting

confidence: 80%

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A qualitative study of nurses’ experiences of self-care counseling in migrant patients with heart failure

Patel

Szkinc-Olsson

Liddawi

2021

International Journal of Nursing Sciences

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Objectives This study aims to enhance researchers’ and nurses’ understanding of how to best support migrant patients with heart failure in self-care management. Previous research on self-care in heart failure patients has highlighted its importance, particularly among migrant populations. Nurses play an important role in informing and engaging patients with chronic conditions like heart failure to support their active participation in self-care. However, nurses’ experiences of providing self-care counseling to migrant populations with heart failure have not been studied. Methods A qualitative study was conducted. Nurses working with migrant patients with HF ( n = 13) from different types of facility in Western Sweden were interviewed between October and December 2020. Data were collected using semi-structured interviews and analyzed using inductive thematic analysis. Results The main theme that emerged from the interviews was the difficulty for nurses “ to find balance” in self-care counseling . The nurses during self-care counseling had: “ to accept challenges , ” “to use creative strategies , ” faced “problems related to health literacy , ” and “ to work according to their (the nurses’) obligations.” It was evident that nurses faced several challenges in counseling migrants in self-care, including language and cultural barriers, time resource constraints, low levels of health literacy, and experienced disharmony between the law and their professional norms. They perceived building caring relationships with their patients to be crucial to fostering health-promoting self-care processes. Conclusions To increase self-care adherence, nurses must become more sensitive to cultural differences and adapt self-care counseling to patients’ health literacy. The findings of this research support and challenge nurses in providing the best counsel to migrant patients with heart failure living in Sweden’s multi-ethnic society. Policymakers in the health care organization should act to facilitate mutual cultural understanding between all involved partners for patient-safe self-care counseling.

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Section: Discussionsupporting

confidence: 80%

“…Previous research has rigorously examined self-care management in migrant HF patient populations [ 18 , 26 , 27 ]. Thus far, the literature has failed to shed light on nurses’ perspectives on intercultural self-care counseling programs for migrant patients with HF.…”

Section: Introductionmentioning

confidence: 99%

A qualitative study of nurses’ experiences of self-care counseling in migrant patients with heart failure

Patel

Szkinc-Olsson

Liddawi

2021

International Journal of Nursing Sciences

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“…Nursing students stated that they had significant problems in communication because most of them only spoke Turkish, so they always need an interpreter and Arabic-speaking friends or Turkish-speaking patients’ relatives (Yıldırım, 2019). Previous studies have stated that language differences are an important reason for ineffective communication between nurses and refugee patients (Alassoud et al, 2020; Beykmirza et al, 2022; Gerchow et al, 2021; Syed & Mobayed, 2017). Language barriers affect the nursing care process, patient safety, patient satisfaction, malpractice, delayed diagnosis period or treatment, and hospitalization duration (Arthur et al, 2015; Van Rosse et al, 2016).…”

Section: Discussionmentioning

confidence: 99%

Nurses’ Experiences as Care Providers for Syrian Refugees With Noncommunicable Diseases: A Qualitative Study

Çopur

2022

J Transcult Nurs

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Introduction: Noncommunicable diseases (NCDs) are the leading cause of disability and death in the world. In Syria, the incidence of NCDs in refugees is 45%. Cardiovascular diseases, cancers, chronic respiratory diseases, diabetes, and other NCDs are the most common causes of morbidity in Syria. Nurses have challenges caring for Syrian refugees with NCDs. The purpose of the study was to explore nurses’ experiences of caring for Syrian refugees with NCDs in Turkey. Methodology: A phenomenology design was used. Inclusion criteria were nurses working experience of more than 1 year, caring for Syrian refugees with NCDs, and willingness and ability to participate in an individual interview. The participants were 20 nurses who worked with Syrian refugees at a public hospital in Kilis Province the border with Syria. Data were collected using semistructured interviews and analyzed by the thematic analysis method of Braun and Clarke. Results: Three major themes and six subthemes were identified. Major themes included the communication experience, cultural differences, and Syrian refugees’ lack of knowledge about NCDs. Discussion: The results provide insight related to nursing care in Turkey for Syrian refugees with NCDs. The study revealed that nurses encountered challenges when caring for Syrian refugees with NCDs. Culturally competent assessment and interventions for refugees with NCDs should be encouraged considering these three themes.

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“…Responses to the lived experience of the manifold burdens of significant heart failure vary across cultures. 49 Heart failure patients are subject to multiple symptoms, the spectrum and intensity of which vary across the illness trajectory, and these symptoms are often refractory to GDMT in the advanced stages of the condition. 50 Symptom clustering involves the cooccurrence of two or more related symptoms that, while consistently associated, may or may not share a common pathophysiologic basis.…”

Section: Symptom Clusters and Impressions Of Symptom Severitymentioning

confidence: 99%

The Importance of Cultural Awareness in the Management of Heart Failure: A Narrative Review

Beattie,

Castiello,

Jaarsma

2024

VHRM

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Heart failure is a commonly encountered clinical syndrome arising from a range of etiologic cardiovascular diseases and manifests in a phenotypic spectrum of varying degrees of systolic and diastolic ventricular dysfunction. Those affected by this lifelimiting illness are subject to an array of burdensome symptoms, poor quality of life, prognostic uncertainty, and a relatively onerous and increasingly complex treatment regimen. This condition occurs in epidemic proportions worldwide, and given the demographic trend in societal ageing, the prevalence of heart failure is only likely to increase. The marked upturn in international migration has generated other demographic changes in recent years, and it is evident that we are living and working in ever more ethnically and culturally diverse communities. Professionals treating those with heart failure are now dealing with a much more culturally disparate clinical cohort. Given that the heart failure disease trajectory is unique to each individual, these clinicians need to ensure that their proposed treatment options and responses to the inevitable crises intrinsic to this condition are in keeping with the culturally determined values, preferences, and worldviews of these patients and their families. In this narrative review, we describe the importance of cultural awareness across a range of themes relevant to heart failure management and emphasize the centrality of cultural competence as the basis of appropriate care provision.

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Culture and the understanding of advanced heart failure: A mixed-methods systematic review

Cited by 7 publications

References 51 publications

A qualitative study of nurses’ experiences of self-care counseling in migrant patients with heart failure

A qualitative study of nurses’ experiences of self-care counseling in migrant patients with heart failure

Nurses’ Experiences as Care Providers for Syrian Refugees With Noncommunicable Diseases: A Qualitative Study

The Importance of Cultural Awareness in the Management of Heart Failure: A Narrative Review

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