Culture-broker and medical decoder: contributions of caregivers in American Indian cancer trajectories

Hodge, Felicia Schanche; Cadogan, Mary; Itty, Tracy Line; Williams, A. Paul; Finney, Arneta

doi:10.12788/jcso.0254

Cited by 6 publications

(5 citation statements)

References 7 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…For example, participants in the current study identified the need for carers to advocate for the cultural needs of the patient. This role of 'cultural broker' has also been reported in other studies of Indigenous carers, with carers being responsible for facilitating communication between the cancer survivor and health professionals [37]. Similar to our findings, advocating for the patients' cultural needs has previously been reported as especially important for end-of-life care and maintaining strong connections to Country [38].…”

Section: Discussionsupporting

confidence: 89%

“We Have to Be Strong Ourselves”: Exploring the Support Needs of Informal Carers of Aboriginal and Torres Strait Islander People with Cancer

Bell

Anderson

Girgis

et al. 2021

IJERPH

View full text Add to dashboard Cite

Informal carers provide an important role in supporting people with cancer. Aboriginal and Torres Strait Islander peoples experience higher cancer mortality than other Australians. To date, very little is known about the support needs of carers of Aboriginal and Torres Strait Islander adults with cancer. This article explored these needs through a qualitative study. Twenty-two semi-structured qualitative interviews and one focus group were conducted with carers of Aboriginal and Torres Strait Islander adults with cancer (n = 12) and Aboriginal and Torres Strait Islander cancer survivors (n = 15) from Queensland, Australia. Half of the carers interviewed were Aboriginal or Torres Strait Islander Australians. Interviews were transcribed, coded and thematically analysed following an interpretive phenomenological approach. Thematic analysis of carer and survivor interviews revealed four key themes relating to carers’ needs: managing multiple responsibilities; maintaining the carer’s own health and wellbeing; accessing practical support and information; and engaging with the health system. Within these overarching themes, multiple needs were identified including specific needs relevant for carers of Aboriginal and Torres Strait Islander peoples, such as advocating for the patient; accessing Indigenous support services and health workers; and ensuring that the cultural needs of the person are recognised and respected. Identifying the needs of informal carers of Aboriginal and Torres Strait Islander cancer patients will enable greater understanding of the support that carers require and inform the development of strategies to meet these areas of need.

show abstract

Section: Discussionsupporting

confidence: 89%

“We Have to Be Strong Ourselves”: Exploring the Support Needs of Informal Carers of Aboriginal and Torres Strait Islander People with Cancer

Bell

Anderson

Girgis

et al. 2021

IJERPH

View full text Add to dashboard Cite

show abstract

“…While training caregivers is not a new concept in the task sharing literature (Rahman et al, 2016 ), collaboration needs to move beyond caregiver training and empowerment and towards acknowledging a family’s role as ‘cultural brokers’. Cultural brokerage is the intentional use of culturally competent strategies to bridge or mediate between the patient’s culture and the biomedical healthcare system (Hodge et al, 2016 ; Kinnaird, 2007 ; Pang et al, 2019 ). Caregivers can act as a bridge between their children and service providers.…”

Section: Discussionmentioning

confidence: 99%

“…This finding is congruent with previous South African service delivery research where caregivers of children with autism preferred home-based early intervention because of the challenges in accessing clinic-based services (Guler et al, 2018;Moolman-Smook et al, 2008) (Rahman et al, 2016), collaboration needs to move beyond caregiver training and empowerment and towards acknowledging a family's role as 'cultural brokers'. Cultural brokerage is the intentional use of culturally competent strategies to bridge or mediate between the patient's culture and the biomedical healthcare system (Hodge et al, 2016;Kinnaird, 2007;Pang et al, 2019). Caregivers can act as a bridge between their children and service providers.…”

Section: Discussionmentioning

confidence: 99%

Enhanced Milieu Teaching in resource-constrained settings: Stakeholder-informed adaptation guidelines

du Plessis,

Hampton,

Harty

2024

South African Journal of Communication Disorders

View full text Add to dashboard Cite

Background: Enhanced Milieu Teaching (EMT) is an evidence-based naturalistic developmental behavioural intervention (NDBI) for children with developmental disabilities. Little is known about the EMT’s fit or what adaptations might be needed to improve its applicability within a resource-constrained setting.Objectives: To explore stakeholders’ perceptions of the contextual fit of EMT for young children with developmental disabilities in a resource-constrained context and to identify adaptations to improve EMT’s contextual fit.Method: We conducted a descriptive qualitative study using semi-structured interviews and focus groups. Participants included 5 speech and language therapists and 11 caregivers of children with developmental disabilities who speak English and Afrikaans or isiXhosa. Using thematic analysis, data were coded into 10 subthemes and grouped according to the Adaptome framework components.Results: Overall, stakeholders view EMT as an appropriate intervention in the South African context. They indicated that certain intervention components may need to be modified. Specifically, clinicians may need to adapt intervention materials and activities to be sensitive to families’ available resources, preferred activity routines and priorities. From these data, we provide guidelines to improve the fit of EMT in South Africa.Conclusion: Enhanced Milieu Teaching is an appropriate intervention in the South African context, although some adaptations can enhance its fit.Contribution: This article highlights the importance of engaging with stakeholders to determine the fit of NDBIs, like EMT, as they are implemented in new contexts. Based on these insights, stakeholder-informed adaptation guidelines are provided for improving the contextual fit of EMT in resource-constrained settings.

show abstract

“…These individuals have extensive knowledge of culturally specific views on illness and health, traditional customs and fears. In a best-case scenario, this care navigator is from the same culture as the affected person of migrant origin, but when this is not feasible, it is important that the care navigator has a thorough knowledge and understanding of different cultures (Hodge, Cadogan, Itty, Williams, & Finney, 2016; Lindsay, Tétrault, Desmaris, King, & Piéart, 2014; Monsees et al, 2020). Ensuring that care providers have time and flexibility to interact with patients could give them a better chance to get to know people of migrant origin with dementia and their families and help them create individualised approaches for each patient, since people of migrant origin with dementia are not one large homogenous group in which everyone can be treated the same way.…”

Section: Discussionmentioning

confidence: 99%

Intercultural care for people of migrant origin with dementia – A literature analysis

Schmachtenberg

Thyrian

2022

Dementia

View full text Add to dashboard Cite

Background Close to 12 million people of migrant origin who are 65 years or older live in different European countries. In the European Union (EU) and the European Free Trade Association (EFTA) countries, approximately half a million are estimated to have dementia. This rate is expected to increase in the coming decades. People of migrant origin who develop dementia and their families face challenges people without migration backgrounds do, but due to cultural differences, additional challenges may arise. There is an increasing need for interculturally sensitive care. There is research on certain aspects of intercultural care and this study will be a comprehensive summary of current topics in intercultural care. Research question What factors of intercultural care for people of migrant origin with dementia can be identified? What requirements and aspects are necessary to ensure intercultural care? Method A systematic literature analysis in the databases PubMed, PsycInfo and Psychology and Behavioural Sciences Collection was conducted. Findings Thirty-nine articles were eligible for analysis. Enhancement in the areas diagnostics, education and information, healthcare services and healthcare professionals to ensure intercultural care is needed. Discussion Current evidence supports the need for (a) thorough education of people of migrant origin with dementia, their families and healthcare professionals, (b) collaborations among everyone involved, (c) embracing different cultures in healthcare services, (d) the implementation of a care navigator functioning as a contact person and connecting all relevant parties with one another and (e) dementia testing suitable to the target group to ensure culturally sensitive and appropriate care for people of migrant origin with dementia and their families.

show abstract

Culture-broker and medical decoder: contributions of caregivers in American Indian cancer trajectories

Abstract: Caregivers are "cultural brokers" who inform providers of the cultural nuances associated with American Indian patient care. However, caregivers voiced that cultural restriction for not discussing illness openly was a sanction and an important barrier.

Cited by 6 publications

References 7 publications

“We Have to Be Strong Ourselves”: Exploring the Support Needs of Informal Carers of Aboriginal and Torres Strait Islander People with Cancer

“We Have to Be Strong Ourselves”: Exploring the Support Needs of Informal Carers of Aboriginal and Torres Strait Islander People with Cancer

Enhanced Milieu Teaching in resource-constrained settings: Stakeholder-informed adaptation guidelines

Intercultural care for people of migrant origin with dementia – A literature analysis

Contact Info

Product

Resources

About