Current Grief Support in Pediatric Palliative Care

Schuelke, Taryn; Crawford, Claire; Kentor, Rachel; Eppelheimer, Heather; Chipriano, Cristina; Springmeyer, Kirstin; Shukraft, Allison; Hill, Malinda Ann

doi:10.3390/children8040278

Cited by 25 publications

(31 citation statements)

References 110 publications

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“…In the presence of advancing illness, the healthcare team should prepare parents for the possibility that their children may die, and attention should be focused on eliminating discomfort as perceived by the healthcare team and family members. When medically possible, parents should be able to choose their child's location of death, as where a child dies can affect families for years after their loss [8,9] Healthcare providers should reduce familial distress during the end of life period by providing anticipatory recommendations for the best known management of distressful symptoms to support the best possible death.…”

Section: Recommendation #6: To Facilitate Care Coordinationmentioning

confidence: 99%

Leveraging Grief: Involving Bereaved Parents in Pediatric Palliative Oncology Program Planning and Development

et al. 2021

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As pediatric palliative care (PPC) became a recognized medical specialty, our developing clinical PPC team longitudinally partnered with bereaved parents to understand the care that their children received as they transitioned towards end of life. Families developed Eight Priorities, shared within, to improve care for children with a poor chance of survival based on their experience of losing a child to cancer. In this paper, we delineate the top eight PPC needs from a parent perspective to offer multi-layered, individually tailored resources for patients and families. One of these Eight Priorities noted that bereavement care for the remaining family members is vital for healing after the death of a child to promote meaning making and resilience in bereaved families. Here, we outline the creation of a bereaved parent-designed bereavement support program as one example of how we have partnered with parents to fulfill their Eight Priorities for quality care.

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Section: Recommendation #6: To Facilitate Care Coordinationmentioning

confidence: 99%

Leveraging Grief: Involving Bereaved Parents in Pediatric Palliative Oncology Program Planning and Development

et al. 2021

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“…For instance, COVID-19 lockdown procedures, which prevent families from seeing loved ones in palliative care, have led to an increase in anticipatory, disenfranchised, and complicated grief for individuals, families, and medical providers [ 72 ]. Families taking care of children that are in Pediatric Palliative Care (PPC) experience anticipatory grief, grief around the time of death, and grief after death [ 73 ]. Patients may have lost their spouse before or during palliative care, leading to feelings of numbness, shock, fear, anger, and survivor guilt [ 74 ].…”

Section: Recent Research On Existential Anxieties and Wellbeing In Palliative Patientsmentioning

confidence: 99%

Existential Suffering in Palliative Care: An Existential Positive Psychology Perspective

Wong

2021

Medicina

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The COVID-19 pandemic has exposed the inadequacies of the current healthcare system and needs a paradigm change to one that is holistic and community based, illustrated by the healing wheel. The present paper proposes that existential positive psychology (PP 2.0) represents a promising approach to meet the rising needs in palliative care. This framework has a twofold emphasis on (a) how to transcend and transform suffering as the foundation for wellbeing and (b) how to cultivate our spiritual and existential capabilities to achieve personal growth and flourishing. We propose that these objectives can be achieved simultaneously through dialectical palliative counselling, as illustrated by Wong’s integrative meaning therapy and the Conceptual Model of CALM Therapy in palliative care. We then outline the treatment objectives and the intervention strategies of IMT in providing palliative counselling for palliative care and hospice patients. Based on our review of recent literature, as well as our own research and practice, we discover that existential suffering in general and at the last stage of life in particular is indeed the foundation for healing and wellbeing as hypothesized by PP 2.0. We can also conclude that best palliative care is holistic—in addition to cultivating the inner spiritual resources of patients, it needs to be supported by the family, staff, and community, as symbolized by the healing wheel.

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“…For instance, COVID-19 lockdown procedures, which prevents families from seeing loved ones in palliative care, has led to an increase of anticipatory, disenfranchised, and complicated grief for individuals, families, and medical providers (Wallace et al, 2020). Families taking care of children that are in Pediatric Palliative Care (PPC) experience anticipatory grief, grief around the time of death, and grief after death (Schuelke et al, 2021). Patients may have lost their spouse before or during palliative care, leading to feelings of numbness, shock, fear, anger, and survivor guilt (National Institute on Aging, n.d.).…”

Section: Griefmentioning

confidence: 99%

Existential Suffering in Palliative Care: An Existential Positive Psychology Perspective

Wong¹,

Yu²

2021

Preprint

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The COVID-19 pandemic has exposed the inadequacies of the current healthcare system and needs a paradigm change, which is holistic, and community based illustrated by the healing wheel. The present paper proposes that existential positive psychology (PP 2.0) represents a promising approach to meet the rising needs in palliative care. This framework has a twofold emphasis on (a) How to transcend and transform suffering as the foundation for wellbeing, and (b) how to cultivate our spiritual and existential capabilities to achieve personal growth and flourishing. We propose that these objectives can be achieved simultaneously through dialectical palliative counselling, as illustrated by Wong’s integrative meaning therapy (Wong, 2020) and Lo’s Conceptual Model of CALM Therapy in palliative care (Lo et al., 2014). We then discuss existential suffering in general and at the last stage of life in particular; we also review recent research and interventions on existential suffering in palliative patients. Finally, we outline the objectives and the strategies of IMT in providing palliative counselling for palliative care and hospice patients.

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Current Grief Support in Pediatric Palliative Care

Cited by 25 publications

References 110 publications

Leveraging Grief: Involving Bereaved Parents in Pediatric Palliative Oncology Program Planning and Development

Leveraging Grief: Involving Bereaved Parents in Pediatric Palliative Oncology Program Planning and Development

Existential Suffering in Palliative Care: An Existential Positive Psychology Perspective

Existential Suffering in Palliative Care: An Existential Positive Psychology Perspective

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