Current knowledge and future directions about the disclosure of dementia: A systematic review of the first decade of the 21st century

Werner, Perla; Karnieli‐Miller, Orit; Eidelman, Shmuel

doi:10.1016/j.jalz.2012.02.006

Cited by 74 publications

(89 citation statements)

References 97 publications

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“…Alzheimer disease is generally accompanied by depression and cardiovascular diseases. 24,25 Moreover, the incidence rates for cancer and type 2 diabetes mellitus increase as age increases. 26 Eventually, the extension of life shows that a larger share of government expenditures must be allocated to health care.…”

Section: Low Fertility and Aging Population In The Oecd Countriesmentioning

confidence: 99%

Challenges of Multimorbidities in the Era of an Aging Population

Jung

2016

The Health Care Manager

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The health care system introduced a reimbursement system based on the existing care when the prevalence rate of acute diseases was still. However, the types of diseases in developed countries are mostly noncommunicable diseases such as cancer or vascular disease, and thus, it impossible to fully recover from these chronic diseases. The increase in noncommunicable diseases is related to unhealthy lifestyle habits such as smoking, heavy drinking, and lack of exercise. Thus, the health care system is changing by improving the prevention of diseases and promoting healthy lifestyles. However, multimorbidities have emerged as an important concept in this process. In countries where the population is rapidly aging, those who have multimorbidities have become a burden to the health care system's revenue, manpower, and service quality. Therefore, health care reform to cope with those who are aging and have multimorbidities is necessary to establish. Reform measures can consist of the following suggestions. First, proper medical guidelines for multiple diseases need to be developed. Second, professional manpower should be trained. Third, the reimbursement system should be improved to relieve those with multimorbidities. Fourth, disease prevention services should be improved. Finally, instruments to measure health care service quality for chronic disease need to be developed.

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Section: Low Fertility and Aging Population In The Oecd Countriesmentioning

confidence: 99%

Challenges of Multimorbidities in the Era of an Aging Population

Jung

2016

The Health Care Manager

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“…The change in attitude towards disclosure of a dementia diagnosis is more recent, but since the start of the 21st century there has been a shift towards thinking that early disclosure is beneficial to the patient, and is the starting point for medical and social interventions (Werner et al 2013). …”

Section: Attitudes To Breaking Bad Newsmentioning

confidence: 99%

Breaking bad news to people with learning disabilities and dementia

Tuffrey‐Wijne

Watchman

2015

Learning Disability Practice

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People with learning disabilities are now enjoying a longer life expectancy than ever before as a result of enhanced medical and social interventions and improved quality of life. As a consequence of this we now know that some people with a learning disability, particularly individuals with Down syndrome, are susceptible to dementia at a significantly younger age.Currently there is limited guidance on how to talk about dementia to someone with a learning disability. Yet until information is shared about dementia, we are unable to position people with a learning disability as an authority on their condition. The new model presented in this article suggests a way of supporting staff and family to have enabling conversations about dementia with people with a learning disability that centre around their current situation and level of understanding and capacity.

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“…Nevertheless, the guidelines are general, and there is wide variability in physicians’ attitudes and behaviors (Bamford et al, 2004; Werner et al, 2012); thus, practices based on local cultural values and preferences often prevail. In the case of the diagnosis of MCI due to AD based on the revised criteria, diagnostic disclosure is made even more difficult because the validity of these criteria is still under study (Porteri et al, 2010; Visser et al, 2012; Gauthier et al, 2013).…”

Section: Diagnostic Disclosure Of MCI Due To Admentioning

confidence: 99%

Biomarker-based diagnosis of mild cognitive impairment due to Alzheimerâ€™s disease: how and what to tell. A kickstart to an ethical discussion

Porteri

Frisoni

2014

Front. Aging Neurosci.

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New criteria for the diagnosis of Alzheimer’s disease (AD) based on biomarker results have recently been developed and are currently undergoing extensive validation. The next few years may represent a time window where the diagnostic validity of biomarkers will be studied in highly specialized research settings. Biomarkers results will be used to direct clinical diagnosis and, whenever appropriate, therapy and management. This piece aims to stimulate discussion by identifying the ethical challenges involved in the use of biomarkers to make a diagnosis of mild cognitive impairment due to AD and disclose it to patients. At the individual level, these challenges are related to (i) the ethical appropriateness of implementing an ecological diagnostic research protocol, (ii) the related informed consent process, and (iii) the diagnostic disclosure. We justify the ethical legitimacy of implementing a research diagnostic protocol by referring to the respect of patients’ subjectivity and autonomy, and we suggest guidelines for informed consent development and diagnostic disclosure. All of the above points are discussed in light of the unique features of AD, currently scanty treatment options, and knowledge and uncertainties regarding the diagnostic value of biomarkers.

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Current knowledge and future directions about the disclosure of dementia: A systematic review of the first decade of the 21st century

Cited by 74 publications

References 97 publications

Challenges of Multimorbidities in the Era of an Aging Population

Challenges of Multimorbidities in the Era of an Aging Population

Breaking bad news to people with learning disabilities and dementia

Biomarker-based diagnosis of mild cognitive impairment due to Alzheimerâ€™s disease: how and what to tell. A kickstart to an ethical discussion

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