Current state of medical, psychological and pedagogical support of children with spinal muscular atrophy (SMA)

Abstract

The article offers a systematized review of scientific data on current development of psychological and pedagogical support technologies in complex rehabilitation of children with Spinal Muscular Atrophy (SMA) in both Russian and international practice. In addition, the paper presents current state and areas of psychological and pedagogical support of families of children with the rare genetic disorder, as part of complex rehabilitation process. Moreover, the article defines the prospects of studying the children’s special educational needs, along with defining the criteria in selection of educational patterns and programs for children with different types of SMA. As a result, the article concludes that a differentiated approach in psychological and pedagogical support of children with SMA and their parents, as part of a complex rehabilitation process, allows for individualized selection of rehabilitation treatment methods that promote moderation of pathological processes and prevent possible complications related to the disease.