Cutaneous body image in patients with hidradenitis suppurativa: a hospital-based cross-sectional study

Koumaki, Dimitra; Rovithi, Evangelia; Apokidou, Erato Solia; Papadakis, Marios; Katoulis, Alexander; Evangelou, George

doi:10.1038/s41598-023-35120-9

Cited by 4 publications

(1 citation statement)

References 41 publications

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“…The latter assess the severity of symptoms [212]. The Harley classification, the HS-PGA and the Modified Sartorius Scale (MSS) are widely used to assess disease severity [213].…”

Section: Hidradenitis Suppurativa and Severity Treatment And Quality ...mentioning

confidence: 99%

Qualitative Systematic Review on the Bio-Psycho-Socioeconomic Impact of Hidradenitis Suppurativa/Acne Inversa

Augusto,

Monica,

Giulia

et al. 2024

J Surgery

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Hidradenitis Suppurativa or Acne Inversa (HS) is a chronic, inflammatory, recurrent integumentary disease, with periods of exacerbation, related to metabolic comorbidities, affecting the well-being, quality of life and mental health of patients, in addition to negatively influencing oral health and women’s health levels as well. It often presents little responsiveness to conventional dermatological treatments. With the aim of estimating the biopsychosocial and economic impact on patients’ lives, a qualitative systematic review was planned. The results were similar to clinical practice and also with several qualitative reviews, i.e. low efficiency. It was observed few studies of good quality, low number randomized clinical trials, and quantitative systematic review, as well. Thus, (HS) has not yet been mapped into the Evidence-Based paradigm and justifies the low assertiveness of therapeutic modalities conventionally instituted to date, as most of them are still structured empirically. Under this circumstance, and due experience and achieviments with these patients at the Instituto da Pele/Departamento de Dermatologia da Escola Paulista de Medicina da Universidade Federal de São Paulo/UNIFESP/Brazil (Monson 2019) [1], was decided to expand spectrum the research, and to add Oral and Systemic Health and Women’s Health, simultaneously to the conventionally studied biopsycho-social parameters. The results were not surprising and revealed the importance of expanding scientific research on HS. As implications for practice, we sought to qualitatively map knowledge to help organize a comprehensive minimum protocol for HS care beyond the conventionally adopted parameters, and include ways of measuring the quality levels of oral health and women’s health with aimed at the quality of life of these patients. Thus, a more realistic and assertive management could be given to the target population, as well as the adoption of complementary therapeutic modalities (according to WHO parameters), and applied in a co-intervention regime, to control these new sets of comorbidities that have been considered by the present study with the objective of increasing the levels of efficacy, effectiveness and safety by Good Clinical Practices. Even though we still do not have the methodological conditions to establish Guidelines for HS, we at least strive to make care for these patients increasingly humanized and inclusive

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“…The latter assess the severity of symptoms [212]. The Harley classification, the HS-PGA and the Modified Sartorius Scale (MSS) are widely used to assess disease severity [213].…”

Section: Hidradenitis Suppurativa and Severity Treatment And Quality ...mentioning

confidence: 99%

Qualitative Systematic Review on the Bio-Psycho-Socioeconomic Impact of Hidradenitis Suppurativa/Acne Inversa

Augusto,

Monica,

Giulia

et al. 2024

J Surgery

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Cutaneous body image in patients with lichen planus: A cross‐sectional study

Koumaki,

Gregoriou,

Chatziperrou

et al. 2024

JEADV Clinical Practice

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Dear Editor, Lichen planus (LP) poses a significant challenge due to its chronic inflammatory nature, profoundly affecting the quality of life (QoL) of those afflicted. 1 The present study sought to comprehensively evaluate the QoL in patients with LP, utilizing a multidimensional approach to capture the diverse facets of their lived experience. Consecutive patients with LP were recruited from the outpatient clinic of the Dermatology Department at a University Hospital in Greece between January 2021 and January 2024. Inclusion criteria comprised individuals aged 18 years and above, diagnosed with LP by a qualified dermatologist. Patients with comorbidities affecting QoL or those unable to complete the study questionnaires were excluded. Demographic and clinical data were collected from eligible participants, including age, gender, duration of LP, and disease severity based on the physician's global assessment of disease (PGA). The patient's disease severity was assessed using an 11-point numerical rating scale (NRS) from 0 to 10, with higher scores indicating greater severity. Additionally, participants self-reported the intensity of pruritus associated with LP using a similar 11-point NRS. Participants completed four validated self-administered questionnaires to assess various dimensions of QoL: Cutaneous body image scale (CBIS), 2,3 Dermatology Life Quality Index (DLQI), 4 Skindex-16 4 and EuroQol-5 Dimension-5 Level (EQ-5D-5L) and EQ-VAS. 5

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Psychosocial effects of hidradenitis suppurativa in the literature: A systematic review

Richards,

Joshi

2024

Int J Psychiatry Med

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Hidradenitis suppurativa (HS) is an inflammatory disorder characterized by painful, deep follicular nodules, abscesses, sinus tracts, and scarring, most commonly presenting in the inguinal, axillary, and anogenital regions. This condition substantially decreases quality of life in affected individuals, resulting in higher rates of psychiatric disorders including depression, anxiety, suicidality, and substance use. The detrimental effects of HS are well documented by dermatologists, as individuals with HS make up a large proportion of the patients that they see daily. However, it is unclear whether psychiatrists are aware of the degree of psychosocial impairment present in HS patients. It is important that those in the field of psychiatry and behavioral medicine are aware of this condition and are comfortable managing it from a psychosocial perspective. This systematic review chronicles the existing literature on the psychosocial effects of HS and assesses the extent to which dermatology journals review these effects in comparison to psychiatry or behavioral medicine.

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Cutaneous body image in patients with hidradenitis suppurativa: a hospital-based cross-sectional study

Cited by 4 publications

References 41 publications

Qualitative Systematic Review on the Bio-Psycho-Socioeconomic Impact of Hidradenitis Suppurativa/Acne Inversa

Qualitative Systematic Review on the Bio-Psycho-Socioeconomic Impact of Hidradenitis Suppurativa/Acne Inversa

Cutaneous body image in patients with lichen planus: A cross‐sectional study

Psychosocial effects of hidradenitis suppurativa in the literature: A systematic review

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