Cyborg Assemblages: How autistic adults construct sociotechnical networks to support cognitive function

Williams, Anna; Park, Chorong

doi:10.1145/3544548.3581556

Cited by 6 publications

(4 citation statements)

References 59 publications

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“…Such design decisions could contribute to reducing structural inequalities faced in health promotions tailored to the sighted population to maximise health equity in digital health interventions [18]. Embedding accessibility guidelines in health interventions early on in the design process is a move towards Universal Design [16], with solutions catering towards those with specific needs and the wider population; as such, this is referred to as 'design for all' [22], which can move towards "equitable and agential technology use for disabled people" [32,33]. This research aligns with universal design, as such, identified key barriers and facilitators to using eSHC during design and not once developed and disseminated.…”

Section: Discussionmentioning

confidence: 99%

Design Recommendations for an Inclusive Online Sexual Health Clinic for Blind and Partially Sighted People

Mooney,

Bandukda,

Patel

2023

The 25th International ACM SIGACCESS Conference on Computers and Accessibility

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Sexually transmitted infections are highly prevalent in the UK, and chlamydia, which is largely asymptomatic, is the most common.Digital health is being integrated into health services provision to support the increasing demand for testing and treatment. However, with this integration, there is a need to ensure that the design, development, and deployment of digital health platforms are inclusive and accessible for all. This paper explores the needs of blind and partially sighted people when using an online sexual health clinic through interviews with seven blind and partially sighted people. The findings identified key barriers and facilitators that impact the accessibility of online sexual health clinics, including the accessibility of the visual content, particularly for self-testing and the need to consider the privacy of disclosing sexual health information. We align with the principles of Universal Design and, as such present design recommendations to inform the design of inclusive online sexual health interventions. CCS CONCEPTS • Human-centred computing ~ Accessibility ~ Empirical studies in accessibility

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Section: Discussionmentioning

confidence: 99%

Design Recommendations for an Inclusive Online Sexual Health Clinic for Blind and Partially Sighted People

Mooney,

Bandukda,

Patel

2023

The 25th International ACM SIGACCESS Conference on Computers and Accessibility

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“…Such interventions have explored the participatory design of assistive technologies in mixed-ability groups, and how identities affect knowledge production in participatory design with disabled children (Baldwin et al, 2019;Brul e and Spiel, 2019). This developing domain of HCI research calls for the inclusion of disabled people as active participants in design processes that center their experiential knowledge and lived experiences, rather than dismiss their roles as knowledge producers and cocreators of access-making technologies (Bennett et al, 2018;Williams and Park, 2023;Ymous et al, 2020). This strand of literature underscores the importance of design and research practices that enhance disabled people's agency and self-determination through validating their experiential knowledge (Bennett and Rosner (2019); Spiel et al, 2020Spiel et al, , 2019.…”

Section: Developments In Critical Hci Research With Disabled Peoplementioning

confidence: 99%

“…One example is Williams and Park’s (2023) “cyborg assemblages”, which brings together interdisciplinary approaches from feminist science and technology studies and critical disability studies to explore how autistic people form embodied, communal knowledge that results from their everyday experiences and mutually constitutive relationships with sociotechnical systems. The concept extends theories of crip technoscience and design justice.…”

Section: Developments In Critical Hci Research With Disabled Peoplementioning

confidence: 99%

“…Design justice is a theory, practice, and social movement oriented toward establishing design practices that foster equitable participation and highlight the community-based knowledge of those historically marginalized within design processes and in society more broadly, while leveraging design to interrogate differentials in power, maintain accountability, foster collaboration, and center communities most affected by such practices (Costanza-Chock, 2020). Williams and Park (2023) extend the above multidisciplinary frameworks to challenge dominant approaches to designing “technologies” for “autism”, opting to highlight their communal expertise based on lived experience (p. 11). While still a relatively small subfield within HCI, there is a growing subfield of research that explores ableist epistemic violence within research (Spiel et al , 2022; Spiel and Angelini, 2022; Ymous et al , 2020).…”

Section: Developments In Critical Hci Research With Disabled Peoplementioning

confidence: 99%

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Critical pedagogy and disability in participatory research: a review

May

2024

ILS

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Purpose The literature review explores how multidisciplinary approaches based on critical pedagogy and participatory research can provide frameworks for equitable partnerships and genuine participation in educational design and research practices. Additionally, the essay aims to expand understandings of equitable engagement within educational research and design based on principles from critical pedagogy. Design/methodology/approach The essay draws from diverse literature in the learning sciences, health informatics, industrial design, disability studies, ethnic studies, rehabilitation science, and to a lesser extent HCI research to understand how critical pedagogy and participatory research methods can provide useful frameworks for disabled peoples' equitable engagement and genuine participation in educational research and design. The literature reviewed in the paper concern topics such as participatory approaches to community development with disabled adults, the implementation of university-initiated community partnerships, participatory research with students and disabled people, and the importance of culturally-responsive research practices. The design literature in this review explores various arenas such as the co-design of assistive technologies with disabled children and adults and the design of curricula for students with and without disabilities. This review focuses on research practices that engender disabled peoples' participation in educational research and design, with focus on developing multidisciplinary frameworks for such research. Findings The literature review concludes that participatory research methods and critical pedagogy provide useful frameworks for disabled peoples’ participation in educational design and research practices. Critical pedagogy and participatory design allow for the genuine participation of disabled people in the research process. Social implications Emphases on collaboration and collective knowledge-building in social transformation are present in scholarship concerning critical pedagogy, participatory research, and disability studies. However, these connections have been routinely underexplored in the literature. This paper aims to underscore these integral connections as a means to build solidarity between disabled and other marginalized people. Originality/value The connections between participatory research methods, critical pedagogy, and disability studies have been previously underexplored. The literature review proposes a combined approach, which has the potential to radically transform multiple realms of research beyond the learning and information sciences.

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Towards Digital Independence: Identifying the Tensions between Autistic Young Adults and Their Support Network When Mediating Social Media

Cullen,

Johnson,

Wisniewski

et al. 2024

Proceedings of the CHI Conference on Human Factors in Computing Systems

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Cyborg Assemblages: How autistic adults construct sociotechnical networks to support cognitive function

Cited by 6 publications

References 59 publications

Design Recommendations for an Inclusive Online Sexual Health Clinic for Blind and Partially Sighted People

Design Recommendations for an Inclusive Online Sexual Health Clinic for Blind and Partially Sighted People

Critical pedagogy and disability in participatory research: a review

Towards Digital Independence: Identifying the Tensions between Autistic Young Adults and Their Support Network When Mediating Social Media

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