Data Management System in a Movement Disorder Center: Technical Report

Abstract

Objective: We designed a specialized monitoring unit and data management system with systematic storage and easy access for a deep brain stimulation program of patients with movement disorders. Methods: All patients were monitored and evaluated in a specialized 24-hour monitoring system whenever it was needed, postoperatively as well as preoperatively. We digitized all the data and developed a data management system that allowed for systematic storage and easy access to the data on demand by users in the offices and outpatient clinics. Conclusion: We describe our data management system and how it provides benefit to patients in order that others may use it as a template for designing their own data management system.

Long-Term Outcomes of Bilateral Subthalamic Nucleus Deep Brain Stimulation for Patients With Parkinson's Disease: 10 Years and Beyond

“…With the recent development of imaging and emerging new technologies, accurate positioning of the electrode within the STN may be helpful, and a better prognosis is expected in the future. 24 It is noteworthy that the UPDRS-II scores in previous studies that were followed for more than 120 months listed in Table 5 [1][2][3][4][5][6][7][8][9][10][11][12][13][25][26][27][28][29][30][31][32][33][34][35][36] returned to the same level as at the time of the surgery. However, UPDRS-III, LEDD, and daily off time are still maintained in an improved state.…”

“…As previously reported by our group, all patients were recruited according to defined inclusion/exclusion criteria and protocol. 6,7 This retrospective study was approved by the Institutional Review Board of our institution (IRB No. 1904-015-1022) and conformed to the principles of the Declaration of Helsinki.…”

Diagnostics, rehabilitation and models of Parkinson’s disease

“…A review of the use of deep brain stimulation (DPS) electrodes for externally controlled recording or stimulation at the level of basal ganglia nuclei discussed the physiological observations underlying the engagement of structures affected by the electrical field around the electrode in motor and sensory functions [81][82][83][84]. Based on the information from the fused images of preoperative MRI-postoperative computer tomography, it was emphasized that the documentation of the electrode position by using mutual information technique after unilateral or bilateral STN stimulation provides useful information for the prediction of the surgical outcome [85][86][87][88][89][90]. Fusionimage-based programming and reprogramming of the stimulator parameters using the visual information of the location of the electrode contacts propose to find the best sites and the best stimulation parameters for the advanced PD patients treated with deep brain stimulation of subthalamic nucleus (STN-DBS).…”

Estimation of Electrode Position with Fused Images of Preoperative MRI and Postoperative CT Using the Mutual Information Technique After STN DBS in Patients with Advanced Parkinson's Disease

“…Therefore, the outcome of DBS programming is highly dependent on the physician's capability and the capacity of the DBS care facility (Moro et al, 2002;Moro et al, 2006). We have developed a fusion method that combines images of pre-operative magnetic resonance imaging (MRI) and postoperative computed tomography (CT) (Kim et al, 2008a;Kim et al, 2008b;Lee et al, 2008;Kim et al, 2009;Paek et al, 2010). This fusion method enabled us to determine the 3-dimensional (3D) location of the leads and each contact in relation to the STN.…”

“…The Movement Disorder Center of Seoul National University Hospital (SNUH MDC) was launched in March, 2005; at that time, DBS began to be covered by the National Health Insurance system in Korea. During the past six years, we have systematically approached the analysis of clinical outcome in terms of electrode position after bilateral STN stimulation (Heo et al, 2008;Kim et al, 2008a;Kim et al, 2008b;Lee et al, 2008;Kim et al, 2009;Lee et al, 2010a;Lee et al, 2010b;Paek et al, 2010). In this chapter, I would like to briefly touch on these issues based on a review of the literature as well as on our own experience.…”