Daughters Caring for Dying Parents: A Process of Relinquishing

Read, Trudy; Wuest, Judith

doi:10.1177/1049732307306123

Cited by 31 publications

(67 citation statements)

References 29 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The emotional turbulence experienced by caregivers during the transition of their loved one from home to institutional care is well documented in the Alzheimer's literature (as reviewed by Afram et al, 2015). For the family caregiver, the transition may be eased by seeing their relative receive better institutional care than they could offer at home, by maintaining a positive but less intensive role in the caregiving process through regular day visits, and via pursuing new interests to stay busy in the absence of the previous caregiving role (Read and Wuest, 2007). Such comforts were, however, elusive for Caroline due to the combined experience of losing her mother so soon after moving her into formal care, and the concurrent deterioration of her own health.…”

Section: Mick: She's Got Alzheimer'smentioning

confidence: 96%

“…At this point, Caroline's symptoms reached a threshold where she felt stretched to 'breaking point' (Read and Wuest, 2007), no longer able to prioritise her mother's illness over her own. She and her husband found a care home for her mother in order to minimise the upheaval whilst they looked for a new place to live but she had only been in the home for a few weeks when she passed away.…”

Section: Mick: She's Got Alzheimer'smentioning

confidence: 99%

See 1 more Smart Citation

Ménière's disease and biographical disruption: Where family transitions collide

Bell

Tyrrell

Phoenix

2016

Social Science & Medicine

View full text Add to dashboard Cite

People's lived experiences of chronic illness have garnered increasing research interest over the last 30-40 years, with studies recognising the disruptive influence of illness onset and progression, both to people's everyday lives and to their biographical selves. We extend this body of work, drawing on the experiences of people living with Ménière's disease; a long-term progressive vestibular disorder characterised by unpredictable episodes of debilitating vertigo, tinnitus and permanent sensorineural hearing loss. In response to calls for more critical examination of the wider biographical contexts in which chronic illnesses are encountered, we draw on 28 in-depth narrative interviews with Ménière's patients and their family members to discuss how personal chronic illness experiences may be closely entwined with, and deeply shaped by, the life transitions (illness-related and otherwise) of 'linked others'. Interviews were conducted in south west England from January to June 2015. Focusing on intersecting transitions of parenthood, caregiving and retirement, we explore how and why familial relationships can both facilitate and hinder adaptation to a lifetime of chronically disrupted normalities, contributing to fluctuating experiences of 'cherished time', 'anomalous time' and 'turbulent time'. In so doing, we suggest that the onset and progression of chronic illness could usefully be re-conceptualised as one of many 'biographical oscillations' encountered during the life course that serve to re-route us between continually shifting life trajectories. In recognising life's dynamism and challenging the identity-limiting and self-damaging nature of entrenched cultural life course constructions, we suggest value in recognising alternative ways of 'living well' when negotiating the wide-ranging biographical maps that life can follow.

show abstract

Section: Mick: She's Got Alzheimer'smentioning

confidence: 96%

Section: Mick: She's Got Alzheimer'smentioning

confidence: 99%

Ménière's disease and biographical disruption: Where family transitions collide

Bell

Tyrrell

Phoenix

2016

Social Science & Medicine

View full text Add to dashboard Cite

show abstract

“…Stressors for rural carers are compounded by isolation, multiple transitions in accessing specialist care, excessive travel requirements and experiences of being ‘lost’ in the system (Hatcher et al, ). Isolation is also exacerbated by geographic dispersion from neighbours (Read & Wuest, ).…”

Section: Introductionmentioning

confidence: 99%

Preparedness for caregiving: A phenomenological study of the experiences of rural Australian family palliative carers

Mason

Hodgkin

2019

Health Soc Care Community

View full text Add to dashboard Cite

The care of people with life‐limiting illnesses is increasingly moving away from an acute setting into the community. Thus, the caregiver role is growing in significance and complexity. The importance of preparing and supporting family caregivers is well established; however, less is known about the impact of rurality on preparedness and how preparedness shapes the caregiving continuum including bereavement. The aim of this study, conducted in 2017, was to explore how bereaved rural family palliative carers described their preparedness for caregiving. Interpretative phenomenological analysis was employed following semi‐structured interviews with four women and six men (N = 10, aged 55–87 years). Participants were recruited voluntarily through past engagement with a Regional Specialist Palliative Care Consultancy Service in Australia. The experiences of caregivers illustrated a lack of preparedness for the role and were characterised by four major themes: Into the unknown, Into the battle, Into the void and Into the good. The unknown was associated with a lack of knowledge and skills, fear, prognostic communication, exclusion, emotional distress and grief experience. Battles were experienced in a number of ways: intrapsychically (existing within the mind), through role conflict and identity; interpersonally with the patient, clinician and family; and systematically (against health, financial and legal systems). The void was felt during isolation in caregiving, in relinquishing the role, in bereavement and in feeling abandoned by service providers. Positive experiences, such as being valued, included and connected to supports, and the fostering of closer relationships and deeper meaning, occurred less frequently but temporarily buffered against negative aspects. Implications from this study for policy and practice centre on the frequent, purposeful and genuine engagement of caregivers. Services and clinicians are encouraged to enhance communication practices, promote meaningful inclusion, address access issues and enhance support at role relinquishment.

show abstract

“…When adult children had their own core families, parents had to acknowledge that they were not the primary caregivers and decision-makers and that their involvement depended on the adult child’s willingness to include their parents as well as on the relationship with the child’s family 22 23. In dyad 2, a feeling of filial responsibility influenced the adult child’s identity of being a caregiver 20 24 25. The influence of the social norm or obligation to care for a dying parent and the specific relationship with the parent was negotiated.…”

Section: Resultsmentioning

confidence: 99%

Adult Child-Parent Dyadic Interactions at the End of Life: A Scoping Review

Herbst

Gawinski

Schneider

et al. 2019

BMJ Support Palliat Care

View full text Add to dashboard Cite

BackgroundBeing terminally ill affects not only the life of patients but also that of their loved ones. Dyads of adult children and their parents at the end of life may face specific challenges with regard to their relationship and interactions that need to be further examined.AimThe aim was to identify, describe and summarise available evidence on adult child–parent interaction and psychosocial support needs at the end of life. Research gaps in the existing literature are disclosed and recommendations for future research are presented.DesignA type 4 scoping review according to Arksey and O’Malley’s (2005) methodological framework was conducted. The review includes studies regardless of study design and provides a descriptive account of foci of available research.Data sourcesThe PubMed, PsycINFO, CINAHL, Google Scholar and Web of Science databases were searched from inception to 16 August 2018. An additional hand search was conducted. A highly sensitive search strategy was employed to cover all potentially relevant results.ResultsThe authors screened 1832 records by title and abstract, retrieved 216 full-text articles and included 15 studies from the database search. One study was identified by way of hand search. The review identified six major themes: (1) adult child–parent relationship, (2) adult child–parent communication, (3) involvement in caregiving, (4) benefit and burden of caregiving, (5) coping strategies and (6) support and information for caregivers.ConclusionsThe scoping review accentuates the paucity of studies that address both patients’ and their parent/adult child caregivers’ relationship, interaction and psychosocial support needs.

show abstract

Daughters Caring for Dying Parents: A Process of Relinquishing

Cited by 31 publications

References 29 publications

Ménière's disease and biographical disruption: Where family transitions collide

Ménière's disease and biographical disruption: Where family transitions collide

Preparedness for caregiving: A phenomenological study of the experiences of rural Australian family palliative carers

Adult Child-Parent Dyadic Interactions at the End of Life: A Scoping Review

Contact Info

Product

Resources

About