Deciding Whether to Continue, Share, or Relinquish Caregiving: Caregiver Views

Caron, Catherine; Bowers, Barbara J.

doi:10.1177/1049732303257236

Cited by 87 publications

(79 citation statements)

References 39 publications

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“…These, we believe, address the fundamental motivation for caregivers to care for the care recipient in their homeenhancing daily quality of life. While the urgency of addressing stressors such as Incontinence is initially great, such problems may be of secondary importance to the goal of remaining connected to the care recipient as a person (Caron & Bowers, 2003).…”

Section: Discussionmentioning

confidence: 99%

Dementia Caregivers' Most Pressing Concerns

Nichols

Martindale‐Adams

Greene

et al. 2008

Clinical Gerontologist

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This primary-care-based study was designed to determine needs as identified by the informal caregiver. A total of 165 caregivers identified selected topics of concern. Depressed caregivers requested more information about depression, adult day care, grief, caregiver feelings, and relaxation. Caregivers of individuals with mild dementia requested more information on confusion, driving, patient depression, shadowing, telling the patient and others, grief, and depression. Behavioral (activities, combativeness, communication, confusion) and stress (healthy lifestyle, grief, relaxation, Received April 15, 2006; revised June 30, 2007; accepted August 31, 2007. This research was part of the Resources for Enhancing Alzheimer's Caregiver Health (REACH) project, which was supported by the National Institute on Aging and the National Institute of Nursing Research (Grant: U01-AG13313). It was also supported in part by the Office of Research and Development, Department of Veterans Affairs, and the Memphis VA Medical Center. Our thanks to Barbara Higgins, MA, and Juliana Lindenberg, M.Div, for assistance with data collection and intervention. We also want to thank our caregivers for providing excellent care to their family members and for finding the time to participate in this study.Address

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Section: Discussionmentioning

confidence: 99%

Dementia Caregivers' Most Pressing Concerns

Nichols

Martindale‐Adams

Greene

et al. 2008

Clinical Gerontologist

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“…The profile of a typical caregiver is a woman aged 46, married, employed full-time, and spending 18 hours a week on caregiving (Lockwood, 2003). There is increasing awareness that many illnesses like cancer have become a family issue instead of being solely the concern of the individual with the disease (Caron & Bowers, 2003;Dumont et al, 2006). Some studies identify that the tasks and burdens of nurses associated with family caregiving are often numerous, varied and frequently changing across the course of a family member's illness, as it often is for caregivers more generally (Mills & Aubeeluck, 2006).…”

Section: Introductionmentioning

confidence: 99%

Lived experiences of nurses as family caregivers in advanced cancer

Cicchelli¹,

McLeod²

2011

CONJ

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“…Since informal caregivers have an important voice in the process of admitting their relative with dementia to institutional long-term care, 1,11 they are a valuable source of information regarding reasons for institutionalization.…”

Section: Introductionmentioning

confidence: 99%

Reasons for Institutionalization of People With Dementia: Informal Caregiver Reports From 8 European Countries

Afram¹,

Stephan

Verbeek³

et al. 2014

Journal of the American Medical Directors Association

184

146

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Objectives:To explore reasons for institutionalization of people with dementia according to informal caregivers as well as variation in reasons between countries.Design: An explorative cross-sectional study was conducted in eight European countries. Setting:Per country a minimum of three long-term care facilities, offering care and accommodation as a package, participated in this study. Participating countries were selected to represent different geographic areas in Europe. Participants:Of the 791 informal caregivers involved in the RightTimePlaceCare project of people with dementia who were recently admitted to a long-term care facility, 786 were included for this study. Measurements:As part of a semi-structured interview, informal caregivers were asked the main reason for institutionalization in an open-ended question. Answers were categorized according to a conventional coding approach. All reasons were then quantified and tested. Results:Mainly patient related reasons were stated, such as neuropsychiatric symptoms (25%), care dependency (24%) and cognition (19%). Neuropsychiatric symptoms were among the most often mentioned reasons in the majority of countries. Beside patient related reasons, caregiver burden and the inability of the informal caregiver to care for the patient were stated as reasons (both 15%). Further analyses showed countries differ significantly in reasons according to informal caregivers. Additionally, reasons were analysed for spouses and child-caregivers, showing that spouses more often stated reasons related to themselves compared to child-caregivers. Conclusion:Multiple reasons contribute to the institutionalization for people with dementia, with several factors that may influence why there were country differences. Variation in the organization of dementia care and cultural aspects, or the relationship between the informal caregiver and person with dementia may be factors influencing the reasons. Because of a wide variation in reasons between countries, no one-size-fits-all approach can be offered to guide informal caregivers when facing the possibility of institutionalization of the person with dementia.

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Deciding Whether to Continue, Share, or Relinquish Caregiving: Caregiver Views

Cited by 87 publications

References 39 publications

Dementia Caregivers' Most Pressing Concerns

Dementia Caregivers' Most Pressing Concerns

Lived experiences of nurses as family caregivers in advanced cancer

Reasons for Institutionalization of People With Dementia: Informal Caregiver Reports From 8 European Countries

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