Decision-making and Poor Prognosis: When Death is Silenced by Action

Fortin, Sylvie; Gall, Josiane Le; Payot, Antoine; Duval, Michel

doi:10.1080/01459740.2021.1928662

Cited by 4 publications

(2 citation statements)

References 31 publications

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“…In the last decades, demographic ageing is increasingly becoming a public health issue as well as an economic and social concern, as ageing populations are also populations at great risk of ND and other comorbidities (Partridge et al., 2018 ). This adds another layer of complexity, as both phenomena intersect at a pragmatic dimension, but also a political one, raising questions about the allocation of resources, the prioritization of certain types of care over others and decision-making in clinical settings (Fortin et al., 2022 ). This goes beyond the demographic phenomena, as these populations may be conceptualized within hermetic sociocultural representations (Hillman and Latimer, 2017 ).…”

Section: The Political Space Of Ageing and Neurodegenerationmentioning

confidence: 99%

“…As stated by Sylvie Fortin: “Expert knowledge is combined with that of patients who benefit from taking part in the production of medical knowledge. This knowledge is no longer limited solely to representations of the disease and the social and cultural experience of suffering, but extends to the recognition of a unique expertise born of the experience of the disease and the experience of care” (Fortin et al., 2022 , p. 3). …”

Section: Knowledge “From Death”mentioning

confidence: 99%

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Necropolitics of Death in Neurodegeneration

de la Rosa,

Berrocoso,

Scorza

2024

Cult Med Psychiatry

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Neurodegenerative diseases (ND) pose significant challenges for biomedicine in the twenty-first century, particularly considering the global demographic ageing and the subsequent increase in their prevalence. Characterized as progressive, chronic and debilitating, they often result in higher mortality rates compared with the general population. Research agendas and biomedical technologies are shaped by power relations, ultimately affecting patient wellbeing and care. Drawing on the concepts of bio- and necropolitics, introduced by philosophers Foucault and Mbembe, respectively, this perspective examines the interplay between the territoriality and governmentality around demographic ageing, ND and death, focussing on knowledge production as a dispositif of power by highlighting the marginal role that the phenomenon of mortality plays in the ND research landscape. We propose a shift into acknowledging the coloniality of knowledge and embracing its situatedness to attain knowledge ‘from death’, understood as an epistemic position from which novel approaches and practices could emerge.

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Section: The Political Space Of Ageing and Neurodegenerationmentioning

confidence: 99%

Section: Knowledge “From Death”mentioning

confidence: 99%

Necropolitics of Death in Neurodegeneration

de la Rosa,

Berrocoso,

Scorza

2024

Cult Med Psychiatry

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2 Hope, Trust, Medical Action, and Care

Fortin,

Lessard

2024

Gesundheit, Kommunikation Und Gesellschaft

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La diversité en fin de vie : la rencontre de « l’Autre » à l’approche de la mort en contexte gériatrique

Lessard

2023

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Dans un contexte sociétal où, d’une part, on valorise les avancées de la médecine qui donnent accès à une vie de plus en plus longue et où, d’autre part, le mourir dans la dignité est un droit pour toutes les personnes en fin de vie, comment les proches et le personnel soignant s’expliquent-ils les divergences de point de vue au moment de reconnaître l’approche de la mort et de choisir les soins appropriés? À partir d’une étude ethnographique menée au Québec dans deux institutions gériatriques, cet article vise à documenter la façon dont les proches et les soignants mènent la négociation du juste et de l’assez dans une perspective d’accompagnement en fin de vie des personnes du grand âge, où les enjeux deviennent éminemment moraux. Nous y interrogeons les rapports de pouvoir et les représentations de « l’Autre » qui ont une influence lorsque vient le moment d’établir non seulement si un soin de fin de vie est approprié, mais aussi à quel moment il le devient.

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Decision-making and Poor Prognosis: When Death is Silenced by Action

Cited by 4 publications

References 31 publications

Necropolitics of Death in Neurodegeneration

Necropolitics of Death in Neurodegeneration

2 Hope, Trust, Medical Action, and Care

La diversité en fin de vie : la rencontre de « l’Autre » à l’approche de la mort en contexte gériatrique

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