Decision making in pediatric oncology: Views of parents and physicians in two European countries

Abstract

Patient participation in these processes was reported as sometimes limited, but parents and oncologists should continue to probe patients' abilities and desire to be involved in decision making. Future research should expand the DPM and explore how decisional priority and authority can be shared by oncologists with parents and even patients.

Researching children's perspectives in pediatric palliative care: A systematic review and meta-summary of qualitative research

“…These research implications are consistent with recently published articles (Badarau et al, 2017;Snaman et al, 2018;Weaver et al, 2016), which list topics of urgent consideration. Among them, effective communication (Snaman et al, 2018), and shared decision-making (Badarau et al, 2017;Weaver et al, 2015) are pressing subjects.…”

“…Accessing the voices of children through QR may also contribute to helping parents communicate with their child about the child's life-threatening illness and the likelihood of death (Baker et al, 2015). These research implications are consistent with recently published articles (Badarau et al, 2017; Snaman et al, 2018; Weaver et al, 2016), which list topics of urgent consideration. Among them, effective communication (Snaman et al, 2018), and shared decision-making (Badarau et al, 2017; Weaver et al, 2015) are pressing subjects.…”

Hospital staff perspectives towards health technology assessment: data from a multidisciplinary survey

“…Physicians refer to availability and reasonableness of clinical care, while also taking into consideration the outcome of the technology used [31] when evalulating 'clinical effectiveness'. Other values, such as equity, justice, accountability or transparency, are rarely investigated as part of the decision-making process during HTA [32, 33], but rather observed on a global panorama.…”

Challenges of paediatric palliative care in Romania: a focus groups study

“…The Swiss project, a mixed method study, aimed to understand the end-of-life situation in the Swiss paediatric oncology context and to explore how and by whom decisions regarding the integration of PC were made [ 20 – 26 ]. For Romania, the first part of the project consisted of semi-structured interviews with parents and physicians on shared decision making in paediatric oncology [ 17 – 19 ]. The present study used focus groups (FG) to capture the perspective of different HCPs (physicians, nurses, psycho-oncologists, social workers) from four university-affiliated paediatric oncology centres located in three distinct regions (Bucuresti-llfov, Nord-Est and Nord-Vest) of the country and included also patient representatives.…”

“…Despite these high numbers, there is scant literature and research available on PPC, with some important exceptions [ 5 ]. Most studies focus on PC in adults; those that do address PPC are not updated [ 14 ] and have taken place mostly in oncology settings, with a specific focus on patient distress [ 15 ], pain management [ 16 ] and shared-decision-making [ 17 – 19 ]. To our knowledge, no research has been done on the challenges faced by HCPs on how to implement PPC in their practice.…”