Deconstructing Silos of Knowledge Around Lung Transplantation to Support Patients: A Patient-specific Search of Scientific Registry of Transplant Recipients Data

“You don't know what you don't know”: A qualitative study of informational needs of patients, family members, and living donors to inform transplant system metrics

“…Previous research has shed light on transplant information needs and gaps that are related to living donation. [2][3][4][5] Other qualitative studies have identified information patients and caregivers consider when selecting a transplant center, [6][7][8][9][10][11] as well as the decision support needs of kidney transplant candidates and their family members. 12,13 These analyses have segregated participants by organ type and participant type (recipients, donors, deceased donor families), and most have not described experiences seeking care beyond clinical interactions with centers.…”