Definitions, signs, and symptoms of constipation in people with severe or profound intellectual disabilities: A systematic review

Towards Criteria and Symptoms of Constipation in People with Severe or Profound Intellectual and Multiple Disabilities: A Delphi Study

“…The participants were then invited to share their experiences and describe in a text box which criteria and symptoms they see when they suspect that their child or the person they support has constipation. Based on literature [17] Thirdly, participants could fill in if they recognized criteria and symptoms found in a previous systematic review of literature [17]. Additionally, this list was supplemented with symptoms not described in the studies included in the review but found in textbooks for nurses, concerning, for example, odour and colour [24].…”

“…A range of criteria and symptoms of constipation in persons with intellectual disabilities have been ascertained in literature. However, a substantiated definition specifically for persons with SPIMD has not been identified [16,17]. The studies that were found used: Rome Diagnostic Criteria [18,19], ICD-10 criteria [20], criteria of the Bristol Stool Scale [21][22][23], criteria of the proposed definition of Veugelers et al [16], signs and symptoms from another reference, or self-composed definitions [17].…”

“…However, a substantiated definition specifically for persons with SPIMD has not been identified [16,17]. The studies that were found used: Rome Diagnostic Criteria [18,19], ICD-10 criteria [20], criteria of the Bristol Stool Scale [21][22][23], criteria of the proposed definition of Veugelers et al [16], signs and symptoms from another reference, or self-composed definitions [17]. However, people with SPIMD are not able to express that they are experiencing some of the criteria and symptoms.…”