Delivering Person-Centered Care: Important Preferences for Recipients of Long-term Services and Supports

Abbott, Katherine; Klumpp, Rachel; Leser, Kendall A.; Straker, Jane; Gannod, Gerald C.; Haitsma, Kimberly Van

doi:10.1016/j.jamda.2017.10.005

Cited by 40 publications

(38 citation statements)

References 21 publications

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“…In response to the challenges associated with these conditions, LTC facilities are shifting from traditional medical models to more humanistic approachs to care [3]. Person-centered care within LTC has been described as moving away from caring for residents according to set schedules and routines and instead caring for residents according to their individual lifetime practices, habits, and preferences [4, 5]. Key elements of patient-centered care within LTC are facilitated contact with family, privacy, having choices of food and bathing times, spiritual well-being, and being treated with respect and dignity [6, 7].…”

Section: Introductionmentioning

confidence: 99%

Perspectives and experiences of compassion in long-term care facilities within Canada: a qualitative study of patients, family members and health care providers

et al. 2019

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Introduction This paper details a subset of the findings from a participatory action research project exploring a palliative intervention in long-term care sites across Canada. The findings presented in this paper relate to understanding compassion within the context of a palliative approach to long-term care. Methods Findings presented are drawn from qualitative interviews and focus groups with residents, family members, healthcare providers, and managers from 4 long-term care sites across 4 provinces in Canada. In total, there were 117 individuals (20 residents, 16 family members, 72 healthcare providers, and 9 managers) who participated in one of 19 focus groups. Data was analyzed by multiple members of the research team in accordance with thematic analysis. Individual concepts were organized into themes across the different focus groups and the results were used to build a conceptual understanding of compassion within Long Term Care . Findings Two themes, each comprised of 5 sub-themes, emerged from the data. The first theme 'Conceptualizing Compassion in Long-Term Care generated a multidimensional understanding of compassion that was congruent with previous theoretical models. 'Organizational Compassion: resources and staffing', the second major theme, focused on the operationalization of compassion within the practice setting and organizational culture. Organizational Compassion subthemes focused on how compassion could support staff to enact care for the residents, the families, one another, and at times, recognizing their pain and supporting it through grief and mourning. Conclusions Results suggest that compassion is an essential part of care and relationships within long-term care, though it is shaped by personal and professional relational aspects of care and bound by organizational and systemic issues. Findings suggest that compassion may be an under-recognised, but essential element in meeting the promise of person-centred care within long-term care environments. Electronic supplementary material The online version of this article (10.1186/s12877-019-1135-x) contains supplementary material, which is available to authorized users.

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Section: Introductionmentioning

confidence: 99%

Perspectives and experiences of compassion in long-term care facilities within Canada: a qualitative study of patients, family members and health care providers

et al. 2019

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“…The number of quantitative studies was 10 [1-10], qualitative studies 5 [11][12][13][14]26], literature reviews 7 [15][16][17][18][19][20][21] and case studies 2 [22,23].…”

Section: Study Characteristicsmentioning

confidence: 99%

“…Coordination of services and nursing, the competence of professionals and economical organization of work are important factors influencing client-centeredness and quality. The level of collaboration with family members appears to be directly proportional to the quality of care and services [18][19][20]. This research topic is important because client-centered care is an ethical and fundamental value of home care.…”

Section: Introductionmentioning

confidence: 99%

A client-centered approach in home care for older persons – an integrative review

Sanerma

Miettinen

Paavilainen

et al. 2020

Scandinavian Journal of Primary Health Care

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“…This finding might suggest that this aspect is important for reducing symptoms of anxiety after discharge and to achieve greater satisfaction with the intervention. A more individualized approach to post-discharge hospital care has the potential to increase the quality of the care after discharge [39]. However, executing post-discharge care is complex, and interventions that are multimodal are more likely to yield lower readmissions [11,40].…”

Section: Mechanism Of Impactmentioning

confidence: 99%

Facilitators of and barriers to reducing thirty-day readmissions and improving patient-reported outcomes after surgical aortic valve replacement: a process evaluation of the AVRre trial

Danielsen

Moons

Leegaard

et al. 2020

BMC Health Serv Res

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Background: The Aortic Valve Replacement Readmission (AVRre) randomized control trial tested whether a telephone intervention would reduce hospital readmissions following surgical aortic valve replacement (SAVR). The telephone support provided 30 days of continuous phone-support (hotline) and two scheduled phone-calls from the hospital after discharge. The intervention had no effect on reducing 30-day all-cause readmission rate (30-DACR) but did reduce participants' anxiety compared to a control group receiving usual care. Depression and participant-reported health state were unaffected by the intervention. To better understand these outcomes, we conducted a process evaluation of the AVRre trial to gain insight into the (1) the dose and fidelity of the intervention, (2) mechanism of impacts, and (3) contextual factors that may have influenced the outcomes. Methods: The process evaluation was informed by the Medical Research Council framework, a widely used set of guidelines for evaluating complex interventions. A mix of quantitative (questionnaire and journal records) and qualitative data (field notes, memos, registration forms, questionnaire) was prospectively collected, and retrospective interviews were conducted. We performed descriptive analyses of the quantitative data. Content analyses, assisted by NVivo, were performed to evaluate qualitative data.

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Delivering Person-Centered Care: Important Preferences for Recipients of Long-term Services and Supports

Cited by 40 publications

References 21 publications

Perspectives and experiences of compassion in long-term care facilities within Canada: a qualitative study of patients, family members and health care providers

Perspectives and experiences of compassion in long-term care facilities within Canada: a qualitative study of patients, family members and health care providers

A client-centered approach in home care for older persons – an integrative review

Facilitators of and barriers to reducing thirty-day readmissions and improving patient-reported outcomes after surgical aortic valve replacement: a process evaluation of the AVRre trial

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