Delivery of Culturally Competent Care to Children With Cancer and Their Families—The Latino Experience

Munet-Vilaro, Frances

doi:10.1177/1043454204264405

Cited by 41 publications

(33 citation statements)

References 20 publications

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“…In one of the few studies examining patient perceptions, the majority of Latino-American youth believed that cancer "happened for a reason" (e.g., cancer was a "wake up call" to live a better life, reprioritize values; Jones et al, 2010). Perceptions such as these are consistent with common Hispanic spiritual beliefs (Munet-Vilaró, 2004 disease management behaviors (e.g., treatment adherence, communication with the medical team). Most studies have examined illness representations in the parent and only one study has examined child/adolescent beliefs.…”

Section: Illness Representationsmentioning

confidence: 91%

Cultural Influences in Pediatric Cancer

Gray

Szulczewski

Regan

et al. 2014

J Pediatr Oncol Nurs

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Section: Illness Representationsmentioning

confidence: 91%

Cultural Influences in Pediatric Cancer

Gray

Szulczewski

Regan

et al. 2014

J Pediatr Oncol Nurs

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“…Munet-Vilaró (2004) stresses that the experiences of groups culturally different are formed by a variety of historical, political, and socio-economic circumstances while one's conception of the health-disease continuum is also culturally molded. The authors stress differences concerning the attribution of causality to the disease and responses to treatment based on more or less fatalistic perceptions and the attribution of locus to external control.…”

Section: Psychosocial Distressmentioning

confidence: 99%

Impacto psicossocial do câncer pediátrico para pais: revisão da literatura

Kohlsdorf

Costa

2012

Paidéia (Ribeirão Preto)

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A diagnosis of childhood cancer represents challenges for patients, family members, and health workers. The parents of a child or adolescent have to play an expanded role because they need to reconcile parental tasks and treatment demands. This study presents an integrative literature review concerning difficulties experienced by pediatric caregivers during onco-hematological treatment. The CAPES periodicals portal and the Scientific Library Online (SciELO) were searched for papers published between 1999 and 2009. Relevant themes are highlighted in Brazilian and international studies published in the field, such as psychological disorders experienced by caregivers, the professional and financial impact associated with treatment, changes in educative practices and family dynamics, and the influence of cultural practices on the experience of treatment. Suggestions for further research are presented to support efficient psychosocial interventions and minimize the psychosocial costs experienced by pediatric caregivers over the course of onco-hematological treatments.Keywords: Childhood Cancer, Caregivers, Children, Psycho-oncology. Impacto Psicossocial do Câncer Pediátrico para Pais: Revisão da LiteraturaResumo: O diagnóstico de câncer infantil representa desafios para pacientes, familiares e profissionais de saúde. Os pais de uma criança ou adolescente em tratamento têm seu papel estendido, pois precisam administrar práticas parentais e exigências do tratamento. Este artigo objetiva realizar revisão integrativa da literatura relacionada a dificuldades vivenciadas pelos cuidadores pediátricos durante tratamento onco-hematológico. Foi realizada revisão da literatura publicada entre 1999 e 2009, a partir da busca em bases de dados Portal de Periódicos CAPES e Scientific Library Online (SciELO). Com base na literatura nacional e internacional recentemente publicada na área destacam-se temas importantes, como perturbações psicológicas vivenciadas pelos cuidadores, impacto profissional e financeiro associado ao tratamento, mudanças em práticas educativas, alterações na dinâmica familiar e influência de práticas culturais na vivência do tratamento. São apresentadas sugestões para pesquisas que possam subsidiar intervenções psicossociais eficientes para diminuir custos psicossociais vivenciados por cuidadores pediátricos ao longo do tratamento onco-hematológico. Palavras-chave:Câncer em Crianças, Cuidadores, Crianças, Psico-oncologia. Impacto Psicosocial del Cáncer en la Infancia para Padres: Revisión de la LiteraturaResumen: El diagnóstico del cáncer en la infancia es desafío para enfermos, familia y profesionales Hoekstra de salud. Los padres del niño o adolescente en tratamiento tienen su papel extendido y necesitan asociar prácticas de paternidad a exigencias del tratamiento. Constituí objetivo de este artículo realizar revisión integrativa de literatura, con atención para dificultades vivenciadas por cuidadores pediátricos en tratamiento onco-hematológico. Fue realizada busca en la literatura publicada entre...

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“…Survivors diagnosed as adolescents and young adults (AYA) may experience learning difficulties, social stigma, poor peer relations, depression, anxiety, post traumatic stress disorder (PTSD), and difficulty transitioning to adult healthcare2–4 Despite increasing numbers of survivors, there has been little study of the psychosocial outcomes of surviving childhood cancer. In particular, the experiences of Latino cancer survivors have not been explored 5. Hence, the purpose of this qualitative pilot study was to explore the lived experience of Latino AYAs who have survived cancer to provide groundwork for programmatic recommendations for improving their care.…”

Section: The Meaning Of Surviving Cancer For Latino Adolescents and Ementioning

confidence: 99%

“…Adolescence is a critical developmental period and a cancer diagnosis can have significant psychological outcomes which can include depression, anxiety, PTSD, distorted self image, poor self esteem, peer isolation, developmentally incongruent fears of death, reduced social skills, and a foreshortened sense of future 1, 2, 5. Adolescent cancer survivors are often lost to follow-up by their pediatric clinic due to their growing independence and mobility as they enter adulthood.…”

Section: The Meaning Of Surviving Cancer For Latino Adolescents and Ementioning

confidence: 99%

The Meaning of Surviving Cancer for Latino Adolescents and Emerging Young Adults

et al. 2010

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Background Adolescents and young adult (AYA) survivors of cancer are an understudied population with unique developmental and medical needs that extend well beyond their active treatment. Survivors diagnosed as AYAs may experience both physical and emotional late effects. In particular, the experiences of Latino cancer survivors have not been explored. Objective The purpose of this study was to conduct interviews with AYA Latino cancer survivors to inform professionals working with these survivors. Design A hermeneutic phenomenological approach was selected based on the focus on experiences and meanings of Latino adolescents’ cancer survivorship. Phenomenology allows for understanding the subjective meaning and lived experience of populations that are understudied or marginalized. In-depth interviews were conducted with participants Participants Latino AYAs between the ages of 14–21 who were all post treatment. Results Interviews revealed seven themes regarding the experience and meaning of survivorship for this population: gratitude, humor/positive attitude, empathy for younger children with cancer, god and faith, cancer happens for a reason/cancer changed my life/, familial support, and staff relationships. Conclusions Latino adolescent and young adult cancer survivors develop meaning out of unique cancer experiences. Programs need to be developed specifically to address Latino adolescents and young adult survivors of cancer.

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Delivery of Culturally Competent Care to Children With Cancer and Their Families—The Latino Experience

Cited by 41 publications

References 20 publications

Cultural Influences in Pediatric Cancer

Cultural Influences in Pediatric Cancer

Impacto psicossocial do câncer pediátrico para pais: revisão da literatura

The Meaning of Surviving Cancer for Latino Adolescents and Emerging Young Adults

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